Lisa

Also, all of Mrs Dash's Seasonings are gluten free.

I would like to suggest a great book by Dr. Peter Green , Celiac Disease - A Hidden Epidemic. It's very informative.

Open Original Shared Link

Some of your husbands symptoms could point to Celiac. Celiac Disease has over 200 symtoms.

Here is the blood panel for Celiac to requestion of your doctors:

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

To generate the most accuracy in testing, he must continue to eat gluten.

Nancy.....you obviously have touched on a nerve here but I must agree with you completely on this one. Except for those with DH, who react topically, gluten has to reach the gut for a reaction to occur and this medical fact can be backed up with any reference to Celiac Disease. Gluten cannot be absorbed through a mucous membrane because the molecule is just too large to do so. But if some want to believe that it does and go to greater lengths wth their personal care products, that's their choice. I take care with lipstick, for obvious reasons, and eye drops, because the medication will end up going down the back of your throat. The hand soap thing is beyond me as I usually rinse all soap off before drying so the problem should be taken care of. To back this up, my blood work is fantastic so I KNOW I am not ingesting gluten. Simple enough to find out with a blood test.

The balsamic vinegar problem may be from sulfites because balsamic does not contain gluten....especially the good stuff. It's all I use on salads and I have never had a problem with it. If it does contain caramel coloring, that is safe if the source is US made...it's made from corn here. From Italy, it could be another story. I highly doubt any reputable balsamic manufacturer in Italy would ever use barley malt in their product...they are food purists and tend to not do stuff like that. I have used the Williams Sonoma brand and have had no problems. Maybe try another brand and see if it makes you feel bad?

Yes...all good information.

I do TRY to buy gluten free topical products just in case I do have a gluten reactions, I can eliminated that source immediately. I do not find it critical to my health and I do not have any DH issues.

In the past three years information as developed and changed quite a lot. As Gemini stated caramel color is not a gluten issue in the US, but it does take some time for the correct information to filter down to where it is considered safe to all concerned. There still are many incorrect myths still floating around that just won't die.

YAY!!!! I heard from Deborah and they had no listing for a Bakersfield Support Group...so I signed up! So I have to get through some paperwork but I hope to start a Bakersfield Support group here shortly! So everyone in the Kern County area you are MORE than welcome to come! I am also going to be going to the Celiac Foundation convention on May 3d. My first Convention! Im a little (just a little ) excited. Thanks for the help guys... and hope to hear from you if your in my area!

-Cheryl

Glad to hear that you are getting started. I kinda feel like it's great to "pay it forward" and the CDF and a local support group is a great way to do that.

Let us know about the Convention. I have never been to one and hopefully in the future I will be able to.

www.celiac.org and contact Debroah J. Ceizler, or (818) 990-2354

Celiac Disease Foundation will hook you up with wonderful starter information.

Thanks for wanting to do this.

sorry to sound ignorant here but, i though that yoplait was no longer gluten free. where i live all the ypolait's no longer say "gluten free". (mass) is it just the whips that are gluten free. i have never looked into eating them and i can only stomach brown cow yogurt for so long. can someone please clarify . so can we have yoplait. i am seriously missing the boat on this one. thanks

As stated earlier by company response, Yoplait will clearly list all forms of gluten to include barley, rye, malt or wheat. If you do not see these words on the ingredients list, it is gluten free. As so are the products that these companies sell:

Open Original Shared Link

It is not the amount of gluten that you consume, but rather the autoimune reaction that as little as one molecule can kick off in your small intestines. The gluten does not do the damage, it's the chain reaction set off by the gluten and your body turns against itself. Make sense?

Your personal care products are always a personal choice (except for lipsticks and such), but I would choose my make-up to be gluten free. It's just one thing less to worry about when you do get glutened.

BTW, no dumb questions around here!

"And by the way, In my panic, I read some threads about getting rid of gluten skin products and gluten everything. I did stop using certain lipsticks because that sits on my mouthc, but this misinformation spreads panic unnecessarily. Gluten is not a danger unless it hits the stomach or villi, which can only happen if it is swallowed, then producing / aniti giagladin response which gets into the blood. Gluten has to meet with stomach for a problem to occur. I saw one woman intimating that having sex with someone who eats gluten is a problem!!!!! We all have to be careful, but we need to have all our information as well."

Nancy

I have had diagnosed IBS for most of my life, and seemed to function with that fact. One day in July kept me housebound and close to the bathroom for two months. My Celiac was triggered by stress and I can pin point THE day.

If you wish to pursue testing, this is the test that needs to be ordered by your doctor:

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

Celiac has over 200 symptoms and the ones you listed certainly fit. Here is some information that might pertain to the rash you have : https://www.celiac.com/categories/Dermatiti...Celiac-Disease/

Here is a blood test for Celiac:

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

If you do not wish to be tested due to lack of medical insurance, you can try the gluten free diet. Many here have used that as a legitimate form of diagnosis. The diet information can be found by reading here.

Coke, Coffee and Alcohol are harsh on your insides regardless of Celiac.

You are fortunate to be feeling some inprovement in a weeks time. It may take some time before you see a marked improvement. This is just the beginning.

Ok thanks! I too wondered when I saw that the other packages of Yoplait stuff says gluten-free but the chocolate Whips does not.

Susan

Someone inquired about this in the past. If I recall, they are using up their old containers and slowly integrating the new labeling containers. Yoplait has stated that the only gluten containing Yoplait are the crumbs and cookies.

As always, when in doubt call.

All of us have had a compromised digestive system and I would think it not unusual for certain foods to irritate us. Not all of this irritation could be gluten related.

"Last year when I was diagnosed, I found that main brands of charcoal (i.e. Kingsford) had gluten. So last year I used cowboy charcoal, which is gluten-free and real wood. "

Hi Laura,

Last year, after alot of fuss over charcoal, I contacted Kingsford. I posted their repy and they indicated that Kingsford charcoal does not contain gluten.

Open Original Shared Link

*Note: I recall being very specific in products when inquiring with Kingsford.

In a rush now, but will try to find that post later.

We do use Cowboy Natural Wood Charcoal, just because it taste better.

Whips....I love 'um.

Caramel color is no longer considered a gluten issues.

Welcome to the Club! You have gotten the typical Doctor response. "Yup, Celiac", a pat on the back and the door hits you on the way out.

You have found the best site available for information regarding Celiac and its associated issues.

Questions/Answers:

1. Yes, Celiac stomach noises can wake the dead.

2. It has taken some time for you to be symptomatic and it will take some time to heal. Healing can occur only

with a TOTAL gluten free diet.

3. It is often recommended to eliminate dairy for a while until you do some healing (reason is rather scientific

and I won't get into it now). Corn, Celiac or not, is difficult to digest.

Beginning advise is to stay simple. Meat, seafood, fresh veggies, rice, potatoes and fruit in their most natural form is a good start. A new toaster is a must and watch out for scratched pots and pans, because gluten can hide anywhere. Check you meds, supplements, shampoos or anything that can find it's way into your mouth.

Learning to read labels will be your salvation.

And the best that I have to offer is to read as much as you can from this site. If you have a question, it has been asked here and we have some really great people to share their experience.

Cheers to you Amanda! What good inspiration to so many.

Open Original Shared Link

This is UK information, but I suspect that it is similar in the US. I have never seen evidence that envelope glue contains gluten. If there is information contrary to this, please post.

Open Original Shared Link

Sorry that you have not been feeling well. Goof-ups can be frequent when you are learning to be gluten free. I wouldn't worry about other issues until you have been 100% gluten free for some time (with the exception to dairy, which is recommended to avoid)

Once you have totally eliminated gluten, then you can hear the voices of other in tolerances IF you have them. Like Deb says, everyone is different.

And, I have not seen any evidence that envelope glue contains gluten. I will have to research that one.

I am sorry that you (all) are going through a tough time. I do not have other food issues other than associated with Celiac, so I can not advise you about other food intolerance's.

I DO know that anyone who jumps on the gluten free diet and claims to be 100% gluten free for the first several weeks, is delusional. (I do not mean this to be rude in anyway ) The total gluten free diet is very complex and it takes weeks, if not several months to master it. Remember with Celiac, and I don't know if you have it or not, one tiny molecule will kick off an autoimmune reaction. I was reading everything I could get my hands on when I was first diagnosed and I was left totally alone in my quest for knowledge - it took me many months to see a marked improvement. Healing time is also determined by the amount of damage.

There is just too much to learn and too many traps. That is why Scott Adams developed this site and that's why so many people stick around and try to help the "newly needy". Experience is the best teacher.

Dietary response is a diagnoses is itself. If a TOTAL gluten free diet (and you are certain of that) does not help you, and you feel that you have given the diet adequate time to heal, perhaps you should look elsewhere.

I hope you find your answers.

Open Original Shared Link

This article should be of interest to you.

Your friend is correct, blood testing is not always accurate. It can rule Celiac in, but it cannot rule it out. If yours comes back positive, it means that you do have Celiac. If it is negative, you may have Celiac or you may not.

Many people here have used Enterolabs and have been pleased with their results. They do not claim to diagnose Celiac, but rather they can test for sensitivities. I have not used them; and therefore, I do not recommend them.

I would suggest, if you have not done so, have a full metabolic blood panel done to check for any vitamins or mineral deficiencies.

I have mentioned this before, I have not intentionally eaten gluten in close to three years. I KNOW that I have been exposed to some form of gluten or at the least some cross contamination. I have never reacted in the past year and a half.

I consider myself in remission, though never cured.

Today, it would take repetitive glutenings over an unknown period of time to react. I THINK . This is territory that I choose not to venture. I am saving that adventure for a very expensive French restaurant.

Yes, it is one of the classic symptoms. Many people here have experienced the same thing. I recall that I could not get enough water and thought I was tripping over my tongue when I spoke. (well, more than usual).

If I recall correctly, a very large percentage (80%? or more?) of fluids are absorbed through the small intestines. So if the villi are damaged, it would hinder that absorption.

Do what you body is telling you to do and it will slowly subside.

Sorry that you have not been feeling well.

It took some time for me to remove gluten and when I did, I realized that dairy needed to go for a while. I was able to add it back in a month or two. Gluten reactions can have a very loud voice. When it's silenced, you often find that other things are bothering you.

B-12 takes a very long time to deplete and likewise it may take some time to add it back effectively. Have you had a full metabolic blood panel done to show any deficiencies? Fatigue was the last to leave for me.

I would also revisit everything for gluten. It is very tricky to catch everything. Gluten can be very sly.

Open Original Shared Link

In my neck of the woods, Sam's Club Rotisserie has never been gluten free. It may be different in other locations. We have always enjoyed Tyson's Baked Chicken.