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Lisa

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Lisa last won the day on December 26 2018

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    North Carolina

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  1. This is a specialty in our house.

    Cook them according to the direction, but substitute Swanson's Chicken Broth for the Water. I also add whatever cheese I have in the house (butterhase if my fav.)

    You can serve with eggs and ham or bacon. I love to serve it with sauted shrimp and mushrooms on top.

  2. I've started getting the shakes really bad since going gluten free. My hands used to shake and I had trouble writing before being diagnosed, but now my hands shake really bad and so does my left leg and foot. The brain fog has lifted a little bit, but it still feels like half my brain is shut off. I'm worried that these may increase or not get better even though I'm gluten free. I have been extremely careful about being gluten free so I don't think I'm still getting any by accident. I've read a lot about the neurological effects from celiac and am really concerned because I didn't get the upset stomach or anything, just the brain stuff.

    Does anyone have any information on that part of the disease? Has anything like this happened to anyone else? It's got me really worried that I won't get my sharp brain back. And I would sure hate to find out it can still get worse after going gluten free.

    Thanks for the info.

    What you are describing is very common among us. Injections of B-12 helped me tremendously. Gradually I was able to take B-12 by mouth.

    Things will improve, but sometimes it seems like it takes forever. Hang in there.

  3. HELP :-(

    No, I am going in for my first ever colonoscopy on Monday. I am gearing up for an extremely un-fun weekend for all the " prepping " that is for sure...

    But....what shoudl I be expecting with this? What should i be prepared for? Does it hurt? What about after effects - how do you feel after? Should I know anythign special to ask the doctor to do or check for???

    I dunno....I am very nervouse and scared. :o

    The worst part of it is the prep. The procedure itself is nothing to worry about. They let me drift off to sleep and woke up and everything was over.

  4. Any distilled alcohol is now considered safe for celiac to consume. There is a small portion of people who will react to grain based distilled alcohol and vinegars.

    What you need to be careful with is when flavor is added to alcohol.

    Seven up, Pepsi, Coke, Sprites and the Diets are glutuen free. Tonic and Soda water is of course.

    If you are in the beginning of healing , it would be wise to minimize your exposure. Alcohol acts as a cleaner through your body.

    https://www.celiac.com/articles/222/1/Glute...ages/Page1.html

  5. What would explain a positive blood test and a negative biopsy?

    I recently had a blood test that showed postitive atibodies for celiac. I underwent a endoscopy yesterday to determine definative diagnosis. I just heard from Dr's assitant that all was negative and no celiac.

    Not that I want to have something wrong with me, but I at least thought I had the anser to my aches and now I am back to square one

    tests done so far in order

    abdominal sonogram - normal

    abdominal cat scan - showed diverticulosis -

    blood tests - showed + celiac

    Fluroscopy - showed normal - no gurd or acid reflux

    more blood tests - still waiting

    endoscopy - told all normal

    Chris

    Welcome to the Club Chris. If you had a positive blood test for Celiac - that is your diagnosis.

    An endoscopy exam with biopsy can be hit and miss. There are twnty-something feet of intestines and it's highly likely that not all of it is viewable. I had six biopsies and two were positive.

    There are currently three ways to diagnosis Celiac:

    1. Positive Blood Testing

    2. Positive Endo/Biopsy

    3. Positive Dietary Response.

    The longer you read from this board, you will find that many of our doctors are not well versed in Celiac and its testing.

    Here is some information you may be interested in:

    Open Original Shared Link

    Again, you're one of us now....welcome and how can we help you.

  6. I finally talked to a doctor who explained that if I cheat I will kill Villi and then when they grow back is the problem. They can mutate and cause cancer. Thanks to everyone who responded. BTW - I have not cheated since : )

    Glad that you are doing well David - two years later :rolleyes:

  7. I looked at the test results the first time (I insisted on a copy) and was suprised that, yes, they were all negative. However, I remembered seeing a post once that said if you were too low on something, that meant the test was not valid. Well, now I want to take a closer look. I know lots of ppl have posted this kind of thing and gotten very little response . .. but if you cant help with the specifics, I'd love a link to a good overview of what the tests mean.

    Here's my results (keep in mind, I'd been off gluten 2 mo already):

    Antigliadin Abs, IgA: 0 (neg 0-4)

    Antigliadin Abs, IgG: 0 (neg 0-9)

    t-Transglutaminase (tTG) IgA 1 (Neg 0-3)

    t-Transglutaminase (tTg) IgG 1 (Neg 0-5)

    Immunoglobulin A, Qn, Serum 325 (70-400)

    So, that last one . .. its pretty high considering i'd been off gluten for 2 months, maybe? I dont know what it means . .. anyone?

    Here is a link that you may be interested in:

    Open Original Shared Link

    I am not so good with interpreting testing, but I do know that being gluten free for two months would certainly effect your testing.

  8. The blood tests are not always accurate. They can rule Celiac in, but the can not rule it out. A negative blood test does not mean that you do not have Celiac. There are the test that you should have had:

    Anti-gliadin antibodies (AGA) both IgA and IgG

    Anti-endomysial antibodies (EMA) - IgA

    Anti-tissue transglutaminase antibodies (tTG) - IgA

    Total IgA level.

    If you do not want to pursue further testing, you can begin the diet. A positive dietary response is a diagnosis in itself.

  9. How much does this PillCam test cost and do you HAVE to have a specialist prescribe it? Can a consumer get one done on his own if you're willing to pay for it?

    I would assume that your Doctor would refer you to a Gastro guy familiar with the proceedure. I bet it's rather pricey, too.

  10. What about Bumble Bee that says it has vegetable broth... does that mean it could have MSG? Something got me yesterday... either the tuna or coconut... :huh:

    MSG is not gluten related. A good general rule would be to look for products with the least amount of ingregients, and look for wheat, rye, barley and malt.

    Fresh tuna is far better and naturally gluten free.

  11. While reading this thread, I got the feeling that the mail man (person), may be the last bastion of personal service.

    In this age of cell phone, texting, computers, e-taxes, e-everything, I am afraid that mail delivery by foot may lost in the near future. It still rings of 1950's good old days - mail man, milk man, egg man. ( :ph34r: , a VERY VAGUE recall)

    Yes, a noble profession.

  12. Ever heard of the term "Going Postal" :unsure: When postal workers, overstressed, go crazy.

    Other pursuits may be more of an option.

    I do certianly admire those who work for the Postal Service. Remembering three years ago when we we hit directly from Hurricane Isabel. You could not manuver through the streets, due to fallen trees, wires and fallen utilitiy polls and flooded streets with a car or by foot, but the darn Postman somehow delivered the mail. Amazing.

  13. B) I was having a great deal of trouble with Tylenol (severe cramps, etc.) and Aspirin for years and just the other day I tried Tylenol Arthritis and I have had not problems whatsoever. I am wondering if the celiac may have had anything to do with it. Any ideas?

    Open Original Shared Link

    Here is a listing of glutenfree drugs. Some drugs have binders which may be gluten related.

    I would contact Tylenol and get their current gluten free listing. They are very good about that and they will send you samples and coupons as well.

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