Lisa
-
Posts
8,691 -
Joined
-
Last visited
-
Days Won
15
Lisa's Achievements
-
-
"Living Well, Living Without", is considered the #1 magazine for living gluten free.
Living Without
Post Office Box 2126
Northbrook, IL 60065
www.LivingWithout.com
I have never seen this magazine, but I understand that others have subscribed.
-
-
If it were me.......
I would go to the Restaurant during an off time and talk to the manager. I would explain the situation, make reference to your "Medical Diet", and ask what can the restaurant provide safely. Be polite because it is an inconvenience to accommodate you and you are subject to potential risk. Your goal is to have them WANT to help you.
If nothing is suitable, I would bring my salad dressing and order a salad without. I have found that there is always something that I can eat, not always my choice, but something.
Good luck
-
As much as this angers me, we have to take a business like approach. An angry e-mail will just further harden our goal.
My husband always says that "you catch more flies with honey". If anyone plans to contact the "Stewart Machine" I would recommend that it be done rationally, logically and approach this issue in a business-like manner.
Our numbers and statistics should be used and they speak for themselves. Numbers and money talk.
-
That link confuses me even more... but also says the same thing, there really is no explanation for "over the limits" Total Serum IgA. My son had a similar issue. TOTAL IgA was "over the normal limits" but all other results (AGA's, tTg Ab's, EMA) were all within range. I was told it was just a "fluke." And, there was no further offer of explanation.
Laura (happygirl) would know. I'll see if I can knock on her door and see if she's home.
-
A TIE MY A$$......I knew it, I knew it, I knew it. It's all about the bucks. (Grrrr, I better stop now)
-
Open Original Shared Link
Here is some information from our achieves. I am not great at interpreting testing so perhaps this may help you determine where you are. But I do know that something is cooking.
-
Thanks momma-goose and j_mommy for the very quick replies. I don't have a copy of the results with me anymore but the total IgA level was just in the positive range. I guess I'm just afraid that if I go to the GP later this week and they say everything looks normal with the biopsy I'll just be sent home. I know shouldn't be catastrophising it before it happens (but that's part of my nature, LOL) but the wait for the results is so awful.
Well, sure they will send you home. There is nothing they can do for you other than recommend the gluten free diet. I think you know you have your answer.
Stop worrying and start reading up on the gluten free diet. And, welcome to the club!
-
These are the test for the Serologic Panel for Celiac:
Anti-gliadin antibodies (AGA) both IgA and IgG
Anti-endomysial antibodies (EMA) - IgA
Anti-tissue transglutaminase antibodies (tTG) - IgA
Total IgA level.
If these are in the positive range, you do have Celiac. A biopsy can be hit and miss as to where the samples are taken. A biopsy can confirm celiac, but it cannot rule it out. And, or course, and endoscopy exam can look for other issues.
-
A BIG, BIG hug for you and good thoughts for you and your family.
-
Here is a list of companies that won't hide any gluten (wheat, rye, barley, malt, or oats) in any of its ingredients. If it contains a gluten ingredient, it will be clearly listed. (i.e., don't have to worry about starches, flavorings, etc.)
Open Original Shared Link
Hum, yeah, I stole the list from happygirl. It's a pay it forward kinda thing. -
Lizzard gave you some good advise already.
Here are a couple of links that I think will be helpful.
Open Original Shared Link
Open Original Shared Link
Soy is not gluten related.
Most soy sauces do contain wheat, but LaChoy is gluten free and San-J Wheat Free Tamari.
Caramel and Vinegar are now considered safe (although some super sensitive people do react to grain based products. Distillation is said to remove the offending proteins from the vinegar and alcohol.)
Seven-up, Pepsi, Coke and their variations are all gluten free.
In the beginning, I put a green sticky dots on those products that I verified as gluten free, so I did not have to over burden my brain remembering things that I checked on. It really helped alot. My sticky green dots also doubled from my family members to know that a product was safe for me and they are not to "double-dip" with their gluteny knife in my peanut butter.
The diet is very time consuming, but it will soon become second nature. You can learn a tremendous amount from here. Glad to have you amongst us.
-
Reference Number: 5266411
Dear Mrs. -,
Thank you for contacting us about Kingsford Regular Charcoal Sure Fire Grooves. We always appreciate hearing from our consumers.
The briquets are made of charred wood and blended with corn starch binder to hold them together. The lighter fluid is 100% petroleum solvent distillate.
Again, thank you for contacting us.
Sincerely,
Patti Copper
Consumer Response Representative
Consumer Services
-
Ok so I have a ton of hot chocolate in my house. Does any know if the packets of swiss miss are gluten free? Also swiss miss with marshmallows? I also have to purchase nestle for a project and have no idea if that is gluten free as well. That would also contain the mini marshmallows.
If you have the box at home, what is on the ingredients list? There most likely is a 1(800 #) on the box to inquire about the gluten free status. Marshmallows are generally gluten free.
-
Welcome,
I don't have young children, but perhaps you could keep a food diary and note your daughters reaction since you are nursing.
-
Great work Ken. You get the award for Advocate of the Year, here on Celiac.com
-
They are not in my area, but Chestnut flour sounds interesting.
-
Found Chef Karlin Soy Sauce at the local Ace Hardware (must be for industrial seasoning!)
There is no wheat listed although there is caramel coloring.
Does anyone know this brand and have experience with it?
I did send email to the company location north of Chicago about this and other products.
Ken
ACE Hardware?
Don't forget to check the expiration date. -
Sounds like a wonderful night, in many ways!
-
Lisa,
Glad to know that you are doing well....and busy with life.
-
Hello Thumper!
Well, it looks like we have to get you on the fast track!
Here is a quick start guide:
Open Original Shared Link
This is a list of Safe and Forbidden ingredients:
https://www.celiac.com/articles/181/1/Safe-...ents/Page1.html
https://www.celiac.com/articles/182/1/Unsaf...ents/Page1.html
This is a list of Companies who will always list gluten (as in wheat, barley, malt and rye) on their ingredients list:
Open Original Shared Link
Imodium will help with the diarrhea, but only a gluten free diet will help with the absorption (for your meds as well as food).
For the interim, can you take your meds by injection or sublingually (under the tongue into the blood)?
Start your diet simple. Meats, seafood, rice, potatoes, fresh veggies, and fruit.. Limit seasoning until you understand what to look lfor. Old scratched pots and pans can hide old gluten as can toasters, wooded spoons and cutting boards. And make calls to companyies to make sure that your meds are gluten free.
Here is another list of safe meds:
Open Original Shared Link
All of this may see overwhelming, but it can be done. We are all here to help in any way we can. I think that you will be amazed how you will feel in no time.
Hope this helps.
-
Mom23boys,
Here is a beginners guide for Celiac. Perhaps this may be helpful.
Open Original Shared Link
You sound like you have a lot to juggle with multiple issues in your household. Hats off to ya
-
A new post must be reviewed and "pinned" by a moderator, for content and proper placement. Frequently on the weekend the entire forum is slow. I'll check on your other posts.
-
As RiceGuy wrote many celiacs just grin and bear it until their gut heals enough so you don't have this problem as much. But there are quite a few inexpensive herbal treatments that your can use to help the healing along and control your problem. There are some online sites that have some explainations and remedies for you. Cure Zone and The Dr. Clark Information Center are two.
Imodium can help with the diarrhea and a very bland diet, but there is no magic potion.
Hum, yeah, I stole the list from happygirl. It's a pay it forward kinda thing. 
Don't forget to check the expiration date.
Gluten Digest?
in Coping with Celiac Disease
Posted
I am not familiar with it. What is it?