Lisa

You know, we ask a lot of our spouses. They did not sign onto this project and quite a project it is.

My hubby's favorite meal is spaghetti and the poor man never get it. I can make a mean sauce, but he has to cook his own pasta (as I can not taste if its cook properly)

It will be a change, but it will happen. There are always bread crumbs around, but he is trying. He went to the store tonight and bought maple fudge, it listed wheat and he bought it. But he called before he got home and explained his purchase and offered to buy me some organic chocolate at a specialty store before he got home.

Change will come.

I think one of the best memories for me was when I was 3 or 4. I got from santa a "rocky rollie school bus". It was one of those weeble wobble things. LOL. I was so excited. I think my mom still has that thing up in the attic. Oh the memories that are stashed up there.

-Laurie

Oh, I love the weebles........ weebles wobble but, they don't fall down.

In fact, when I was recovering from symptoms of celiac, it was a joke in our home. "Mom wobbles, but she doesn't fall down" It sure is good not to be a weeble anymore.!!!!

I don't know Alex, but sometimes you have to trust. For strep, sometimes you have to choose and trust the information that you are given is correct. Don't mess with strep, it can have some very bad effects is not handled quickly.

Gosh, baking soda, I can handle, Palmolive soap.........don't think so.

Interesting site, thanks for both of you for posting.

Let me tell you why I ask.

At the grocery store I bought some fresh broccoli (one bunch and one single). The cost was different between the two. The clerk weighted the bunch in the bag, without the single floret as she held it in her hand. She then put the single directly onto the scanner (no bag).....I thought eeeewwwwwww!!!!

Can you imagine all the cooties on that scanner. And how about all the handling that fresh produce passes through before we cook it.

So, hence, my question. Does anyone use a main line produce wash?

I do not recall this question coming before the forum before.

Any thoughts?

Lisa

When my daughters were young, one would wake in the wee hours and wake the other. They would sneak down stairs and grab their stocking and tip toe back upstairs, hide in a closet and go through their goodies from Santa. (I always put a pair or two of shoes on the last step and they always knocked the shoes to the floor, and that was my cue that they were up and around).

I miss hearing those shoes fall. In later years, I had to knock them in the head with the same shoes just to get them OUT of bed at 11:00am.

Lisa

Sorry Lisa.

Take a deep breath and go and do your best. We're pulling for you.

Lisa

How adorable!!!

B: How about "Mojo Twist"

Read the label and if it says "wheat" , don't go there.

Cin, if there is wheat there, it is required by law to list. If you don't see that on the label, enjoy it.

Hallo Jess, ich bin Deutsche. Aber ich bin seit 27 Jahren mit einem Kanadier verheiratet, und lebe in Kanada. Ich komme urspruenglich von Hamburg.

Ich werde dir eine Private Nachricht schicken, mit meiner e-mail Adresse, dann kannst du mir schreiben, ohne dass Leute hier sich aergern, dass sie nicht wissen, was wir sagen!

Ursula:

Let me give this a try I am from Germany. I met my husband 27 years ago and I live in Canada. I come form Hamburg..a town from around Hamburg.

You can write me in private with my e-mail address (and a little bit else)

(Don't mean to be intrusive, but just trying out my translating, which is very bad. )

My father's last name was Honigsberg...From the town of Honey and that is why I am sooo sweet.

Mike:

This same topic has come up several times and it has lead to heated discussion.

If the wafer was dipped into the wine, the wine would not be suitable for a Celiac due to contamination.

It is my understanding that some people have approached their Parrish priest about this issue, and some have agreed to use a substitute (as a rice cracker) to receive communion, other have refused.

I would suggest that you take this first step and discuss this with your priest, and then go from there.

Good luck

Oscar Meyer is gluten free. Perhaps is may be something else. sorry

Sigrid:

Welcome to the board!

Yes lipstick is very important to be gluten free. Anything that can get into or near your mouth must be safe.

To start with I would recommend Burts Bee's lipgloss and lipstick - they all are gluten free and readily available at CVS.

And Dove Shampoo and Conditioner are also gluten free.

Hey Just wondering if there were any teen guys here that have celiacs. I think that is the hardest part about Celiacs. If a guy wants to take you out its is hard and you have to go through this big ordeal at the resturant trying to decide what to eat. Its embarrasing. I mean theyare always understanding but still it would be cool to meet a guy who knows whatI am going through and we could annoy the waiter together.

Yes, many that will respond. But if I recall, this is exam week. Aside from school work, an answer to your questions should come soon.....

Be patient and a comrade will come forth.

Jess:

I too live in North Carolina on the north east coast. You can PM me if you have any questions.

Lisa

Most product these days have a www. address that you can e-mail for their list of gluten free products and by my judgement many are happy to comply with in a short time.

If you have an interest in a particular product, perhaps we can help. (US and celiac disease).

Thanks guys!

Wellll.....I don't know what the dingos have planned (once again, they have not gotten me anything, and they mumbled something about how hard it is, not having jobs and opposable thumbs and all ) but *I* am going to work all day, and I have a great deal of.....bloat and flatulence. Wonder if a gassy Celiac will be good for business?

So have my birthday party without me, I will check in later!

Bloating and flatulence.....Susan you could blow up your own balloons for your birthday. (But don't let anyone pop them. ).

Up cheers for you and I hope that you have a wonderrful day. Happy Birthday.

Lisa

Lipton Onion Dried Soup is the ONLY Lipton dry soup that is gluten free. Onion Beef is not. I use the onion alot and have not problems.

You can still cook, but only the Lipton Onion.....and still have the same taste. Sorry that you are feeling bad.

Lisa

Hello,

I'm 32 now and have recently been diagnosed with Celiac. Ever since I can remember, I've been dealing with typical symptoms of the disease, but I just thought my stomach was really sensitive. However, this past year was tough and I realized I had something serious that I needed to deal with. I'm just relieved to find out what it is.

Anyway, my questions concerns my bloated stomach or "pot belly". I've always been skinny, but about 10 years again I began to get a gut. I couldn't understand it because everything else on me is skinny. I went nuts with different ab workouts without seeing any results.

If I remain gluten free, can I expect to see my stomach to slowly flatten? Any idea how long it might take? Or did I do too much damage over the years?

I don't think that I have an answer to that one. I too have been thin all my life. My problem is that I have a very flat bum and a full belly. I am trying to find a way to twist my torso around to get that perfect figure.

Honestly, remain gluten free and continue work on those abs.

This isn't quite the same, but Philadelphia Cream Cheese brand makes cheesecake filling in a tub. It's not bad, and it's gluten-free.

I served that for Thanksgiving and topped with home made cranberry sauce. Not, the best, but it's good for a fix.

This is all a learning process. To be frank: (who is frank, anyways??, frank, who?)

Sometimes within 12-24 hours, I can see what I ate. (got the drift?)

Sometimes is see what I remember as normal (can't identify)...that's a good thing.

When you see what you consumed, back off of that and go back to the basics, rice, fish, meat, veggies and other simple foods.

When I was sick, it took about 20 minutes for the entire meal to pass, totally undigested. With no villi, my lunch went slip slidding away. "Slip-Sliddin-Away"... Great song, I may add. I think it should be our theme song.

Pepsid OTC has helped me. Mylanta is also a quick remedy.

It is not uncommon, roughage is very hard to digest. If you are new to healing, it may pass through fairly quickly.

We all have to be respectful........it could be one of us. But, I don't expect anyone to step forward.

I could tell some stories.......can't we all.

I doubt it's doubt , but a lot of us who have been on this board for a long time feel like sometimes we jump the gun when it comes to thinking someone has gluten issues. We try and remind ourselves that not everything is celiac and try not to be too pushy with people who are in the process of figuring it all out. We just don't want to be too pushy or encourage you so much down the celiac path that you don't investigate other possibilities if they're warranted.

I think that anyone who gets to the point where they even find out that celiac even exists and that they have a lot of the symptoms, and finds this message board really needs to investigate the possibility that gluten is their issue. I figure that if you get to the point where you're here, you need to kick off your shoes and stay a while. Some people figure out it's not gluten, some people figure out it's gluten AND something else, and some people, like me, figure out that it's 100% gluten.

Your list looks like my list before I went gluten free. The only thing I did NOT have at all on your list was mouth ulcers. I didn't have the leg tingling, but had other mobility issues. And I'm not sure what acidosis is..? Other than that, I had all of it and then some. The "then some" may be things that you never would have thought to connect to gluten. For me one of the things that I never would have considered a symptom was nightmares and anxiety dreams. Who knew? But now, the only time I get them is if I get glutened.

I also had negative blood tests and a negative biopsy. If it wasn't for me just deciding to go gluten-free on my own, I would still be trying to live in the middle of that list.

My doctors both told me that they have several other patients like me who have negative test, but positive dietary response. They treat me just like they would any other celiac patient. (I have great doctors.) My doctors totally support people trying the gluten-free diet despite test results, and are starting to recommend it as the final "test" for a patient when they're investigating the possibility.

Nancy

Nancy:

I think that you have made some wonderful points and very well said!