Lisa

Thanks Karen, I re-posted. - hugs--

This is a new format and a thread that I started and the TOPIC was very inacurate due to brain fog and vast misspelling. I have with this post created a new forum/thread.

The topic includes:

Forgetting where you were going, and reminding yourself you were going to the post office.

Begininning a statement and not being able to choose the correct words.

Blending words.

Forgetting details, that you deal with every day.

Calling the telephone, the "thingy over there".

Thinking that you have serious brain damage due to Celiac and Malnu.

Thinking that I can't return from that.

Thanks to all that posted earlier.

Karen, thanks

Patti, we must be on the same page. Scary though.

To my understanding MSG is gluten free, but no the best to consume.

To your last question OH YEAH.

Took me over two months to feel better, but the acid poops stopped within a couple of weeks, but the D continues, even today after 6 months. Although it comes back when I feel that I have been glutened.

I took B-12 shots once a week for about a month and they really helped with the energy level.

We are all in this for the long haul. I don't expect to be physically and emotionally adjusted for at least a year.

At six months, I am now in a new stage. I feel very fragile, a little withdrawn, introspective and seriously in need of a self-pep-talk. I think we all go through stages. Take your time, be patient on press on. You will have up times and down times. In the beginning your are so busy learning and riseing up to the challenge. I still enjoy the grocery store as it is a challenge for me. There are a many bumps in the road. That is the real challenge.

I think that I am talking to myself. ....Hope this was helpful and not too down. I kinda feel that way today.

Keep on keeping on, that's the only way to go.

Please send some verification, I HAVE to have that. I can't give up the only sweets that I eat. I am truely afraid that our diets will be shortened with the new labeling issues. M&M's may be the next fall-out. What's next........Necco's. (God-forbid). Pitts

Glad you did, if I read to post, I would have said "what the heck does that mean". BLA

Recently, when I was conducting a public meeting to open the meeting, I hit the gavel, and said "Let's adjourn the meeting for whatever date it was" instead of "calling to order...." I don't know why everyone didn't get up and leave. My fellow board member made a joke of it and I did not even know. I guess sometimes you have to laugh at yourself, but not at a public meeting.

I am required to know architectural terms....Often, I am speachless and refer to something as that "thing above the door". I'm sure that I am very impressive to the applicant. I feel like a dumb a** so many times.

It is a little reasurance that others are in the same boat as I. I just hope that this gets better, as I am considering resigning my position since it is so public. I have worked so hard to bring my commision from a dog and pony show to something that has gained respect from the community. This is my baby, but I want to continue to be respected and knowledgable. I just feel that I'm back-sliding, and so frustrated with myself.

Just venting a little, ya gotta do it sometime.

Lisa B

As so obvious, with brain fog, my thread should have said "Completing Sentences, or lack of. I have no earthly idea where the posted one came from in my head.........gheesh.

Thanks for all you impute. I find it pretty scary when I'm driving down the road and can't remember where I'm going, then remember it was to the grocery store. I feel that my IQ has dropped 50 points.

Does this get better, or is it permanent?

Karen, will this get better or am I destined for an MRI ? I can deal with the diet, but sadly, I have this inner feeling that I am not the same person that I was a year ago. I know that you can't predict that or have an answer, but it's kind of freaken to me.

If any one else has this issue, please post.

Turtle, I will e-mail you tomorrow. Hope you sleep tonight.

Brain damage frightens me. I write this very reluctantly. I am beginning to not pronounce words that I have been familar to for all my life. I don't know what to write . I stumble over words when I talk to my husband, I don't complete sentences when I talk to my daughter, I blend words.

Ok, what can be the brain effect of digestive malnur. for a period of time. What can be the cause and effect.

Off the pitty party, good night and god bless.

Probly soo. (as my daughter would say). The big D is to me the main issue and with that includes the malabsorbtion (sp) issue the includes weight loss, brain fog, I get the hand shakes, and a little speech impared. (also typing impared, as is obvious).

Excuse the discription, but when I have a poop that lookes like a real poop, that is a good day. This issue of poop has been a daily post here. So don't feel that you need to be polite.

Being now gluten free, I am more sensitive to fiber/or lack of it at times. I have a good morning, after lunch I usually stay at home. By dinner I'm ok. Lunch somehow gives me a challenge to figure it out.

You are probable still healing and that will take some time. Stay cool and gluten free, and I bet it will clear up in the near future.

Hang in there. Things will get better.

PLease be careful. This brings up a past nightmare for me. I have been to counciling sessions with my daughter (one of two). Adderal can be very dangerous and can alter the person that you truely are.

If you have more energy and are feeling good, slowly decrease the adderal. Go very slowly as there will be side effect. And, Please consult your doctor.

Continue with gluten free, totally.....shampoos, soaps, lipsticks, and so much more. Try this totally, and maybe the adderal can hit the road. I hate that stuff. That stuff scares me for you.

End of lecture. Hope things get better between you and your friend. Keep in touch.

Lisa

I am sorry that you are having so much trouble. How old are you, are you living at home with your family.?

Dealing with Celiac is not always easy, but it will get better in time. Keep reading some of these posts and I am sure that it will be helpful to you.

There are alot of people here that are going through what you are, or have been. Sometimes it hard to get support from people around us, that why we have to be strong withing ourselves. My father, who died along time ago, used to say "What challenges us will make us stronger".

There is always alot of support here. So please stay with us, we all try to get through this disease together....and it just makes it a little easier.

Take care, Lisa B.

Made this up today, too good not to pass on:

Cut Butternut Squash in half, scoop out seeds.

Micro until soft, and scrape out into a pot.

Add one can of Swansons Chic. Broth, blend with a mixer until smooth, or whisk.

Add 1/2 chunk of your choice of cheese ( I used butterkase) and stir to melt.

Add salt, pepper, fresh chives to taste, nutmeg is a must to taste

Add half & half, or whipping cream

Warm, do not boil.

Enjoy.

This may be a take off of on of Tiffany's recipies. IT IS VERY EASY AND GOOD ENOUGH FOR COMPANY.

That is really cool. I sure wished that I had that in August. I know that it will be a great help to all the newly diog. Kinda pay it forward. Very cool. Thank you for your time to do this.

Lisa

I'm so tired of french fried by now, that I wouldn't eat them now even if they were gluten free.

Do I have a witness????

James:

Let us know a little about yourself, your diognisis or your symtoms. This will help us help you. If you truely have Celiac Disease, you will have to be gluten free for the rest of your life. A little bit is a no-no. It is all or nothing.

We are glad that you joined the message board and all of us are here to answer any of your question. This is the best source of information that you can find. We are all here to help each other.

So ask away........

Lisa B.

I want to know why they waited so long to release this info? And why are they trying so hard to cover their butts....look at any other company....you ask them about their food and the majority of them just tell you to eat it at your own risk! I think McD's is taking a big risk in saying it contains these things...but dont worry....they wont hurt you....ha...I think I will just trust them and when this backfires in their faces and they find out they were wrong I will get to be part of a big class action law suit! And hell, if they are right...then Im not missing out on the fries. I dont know...just my feelings....but hey I havent got sick from the fries before....that I know of, I have been sick from eating there, just dont think it was the fries.

I love it when I order a big n tasty w/no bun and they put it on a bun before they read the screen right...then they peel it off the bun and put it in a salad thing instead of just making a new one, and I dont find out until about an hour or two later when my stomach freaks!....Or even better....they leave it on the bun and just tell you to peel it off assuming you are just on the adkins diet and just being difficult. Bastards!

I don't understand your stance. You KNOW the risk of eating out. You continue to do this. You are totally responsible for your diet, NOT the rest of the world. You have to take your dietary restrictions into your own hands and not blame others for their lack of knowledge. When I go to a restaurant and order off the menu, I assume all responsibilty of my choice of food. I will ask for assistance, but the bottom line here is, it was my CHOICE to eat out, in a kitchen that I am not in control of. I am totally apreciative of those who offer my assistance, but I always know, that this is not a guarentee. THIS WAS MY CHOICE TO TAKE A CHANCE.

I will never hold them liable if I get sick. If I do, I will say "my dumb a**, that was my fault.

I will alway put my disabilities totally on the responsibilty of myself. Who else is going to do that.

Be frustrated if you chose, but my health is in MY hands and MY hands alone.

Lisa B.

If the GI Dr. did an endo and he/she saw damage to the villi he/she should have taken 6-8 samples to be tested. My guess that he/she only took a few. If he/she saw damage, then most likely you have Celica.

Try some Herb-ox dry chicken boulion water/cream to consistency - all gluten free

Wish I could help, but others will come soon.

Lisa

My e-mail is listed on the members list.

L

I too had a frustrating experience Friday night when invited to a neighbors for dinner. She said that she was having chilli and asked if I could eat it. I asked her to save the ingredience for me to read, and she said that she would be more than glad to.

I offered to bring a ceasar salad. (looking out for myself).

When, we got there and I was helping in the kitchen. She totally changed the menu and we were having pork, well ok. Then she said that she put bread crumbs on the pork. WHO IN THE H*** PUTS BREAD FRIGGIN CRUMBS ON A PORK ROAST. "Oh, I forgot you can't eat the pork". While others were dinning and complementing the chef, I ate my salad. Pisser.

For a neighbor who feigns concern over my illness.............THIS REALLY PISSED ME OFF.

People sometimes really seem to care, but THEY JUST DON'T GET IT.

Lexipro is gluten free

Yes it could happen. No takers yet. But may be small would be good. As I don't own the house, I would have to check on the date. But it still a go..........

PM if you have interest. Think it should be an adult issue though.

Say good night Dick......sweet dreams to all.