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Lisa

Speech Problems - Following Through With Sentences

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Brain damage frightens me. I write this very reluctantly. I am beginning to not pronounce words that I have been familar to for all my life. I don't know what to write . I stumble over words when I talk to my husband, I don't complete sentences when I talk to my daughter, I blend words.

Ok, what can be the brain effect of digestive malnur. for a period of time. What can be the cause and effect.

Off the pitty party, good night and god bless.

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Hey Lisa, don't feel bad, I am 42 (well, will be 43 in April), and it happens to me more often than I wish to admit. Just today, I was booking an appointment for something, giving my address, phone number, and I ALMOST drew a blank at my house number, and I TOTALLY blanked out at my phone number....... Scary...

Also, I am talking to Terry and in the middle of the sentence, I will totally lose my train of thought and absolutely can't pick out a word to continue - total blank....... Scary......

I am talking to Terry and I am trying to say the word for an "everyday" item, say e.g. telephone, and I am looking at the object and totally drawing a blank for about 5 seconds before the name of the object finally pops into my brain. Scary..........

Boy oh boy, I know how you feel........

Hugs!

Karen

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Thank goodness, it is not just me with these problems. My mother who is 83 has told me for the more than three years that I am going senile. I was afraid I was going senile. I couldn't remember my phone number, my brothers, at work sometimes I can't even remember where I am. It has been slightly better since going gluten-free but I still have it, I feel like I have lost my mind sometimes. I will be talking to someone and all of a sudden I have no clue on what we were talking about.

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Karen, will this get better or am I destined for an MRI ? I can deal with the diet, but sadly, I have this inner feeling that I am not the same person that I was a year ago. I know that you can't predict that or have an answer, but it's kind of freaken to me.

If any one else has this issue, please post.

Turtle, I will e-mail you tomorrow. Hope you sleep tonight. :)

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Lisa, I have been there and it has improved. I still am not to where I was, but it has improved! I still have the same problems Karen has, but the ones in the beginning were so much worse. I felt like all of that gluten had eaten my brain :blink: . I figure if it takes 5 years or longer for a full recovery, then my brain is going to take the same time. After all, when we deprived our body of vitamins and nutrients, we also did the same deprivation to our brains. I have to laugh at the word deprivation, because two months ago, I would not have remembered that word. It has been two years being gluten free and I have just noticed that some of the larger words I used to use are slowly coming back. But, I don't think that I am always using them properly, but I am sure that also will come with time. There really is light at the end of the tunnel. Hang in there. {{{{{{{{{{{HUGS}}}}}}}}}}}}

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Hang in there, the words are in the vitamins! If the vitamins don't get to the brain, the words don't either :P

I'm only 22 and I can't remember the words for anything. I have trouble with my address, phone number, family names...drives me nuts. Never thought it might be gluten related...

I also have the short term memory of a goldfish, which is about 3.....

....hey look! Something shiny! :rolleyes:

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Hang in there, the words are in the vitamins! If the vitamins don't get to the brain, the words don't either :P

I'm only 22 and I can't remember the words for anything. I have trouble with my address, phone number, family names...drives me nuts. Never thought it might be gluten related...

I also have the short term memory of a goldfish, which is about 3.....

....hey look! Something shiny! :rolleyes:

ChelsE,

You are too funny!!! :P

I too have a problem with thinking. I've been gluten-free for 2 years now and it's starting to get better. I still could use a lot of improvement. Good news: I no longer get lost coming back from the grocery store (it's 2 blocks down and 1 block over). I sometimes have to describe the word I'm looking for i.e. Isn't that a beautiful .....hmmm.....thing you sit in over there, isn't it? I have to be very very careful of the written word. I often use the wrong word - it will have the same 1st letter and sometimes the 2nd letter is the same but totally different meanings. example: remember/rely it's/isn't. I've read this message 5x trying to get all the misused words out.

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Yes, it's 3:30 a.m. and I am up again, bowels fully active (as usual).........

Lisa,

I fully agree that it is all vitamin related. Once your body starts healing and absorbing the vitamins and nutrients again, those brain cells that have gone to sleep will wake well rested and ready to go......

The problem with me is because I fail to heal even with strict gluten-free diet (bloodwork proves it, but villi just won't respond), I still can't get rid of the brain freeze. I guess that's why I have such low iron that won't come up and why the GI specialist has me classified as refractory (which I don't agree with.....)

I guess I just have to continue going through life like Dorie in Finding Nemo!

Hugs.

Karen

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Guest nini

I'm 36 and I forget stuff a lot, too much for my comfort. Especially at work when I should know something and my brain just can't seem to access the correct word. Very frustrating.

Just the other day I forgot how to spell chicken. CHICKEN... how simple is that? I forgot. I couldn't remember for the life of me, and my husband was looking at me like I was a "tard" and I just could not remember. My daughter was asking me to spell it for her and I must've looked like a complete idiot.

I've been gluten-free for almost 3 years now, and I do notice more brain function returning, but I worry that it won't ever be what it used to be.

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I'm so relieved that someone brought this up! I have had the 'can't finish a sentence' problem for years. I begin a thought, and then just stop--and draw a blank. It's embarassing when the other person actually has to speak up and finish the thought for me. I can also walk into a room and forget why I went in there--and have to stop and think for a minute before I remember. Also, when I go shopping, I always park in about the same area--one time when I lived in Georgia, I went to the mall and not only forgot where the car was, I went out the wrong exit--and searched a while before I even realized it. When I began to have the neuropathy last year, I was terrified that I had ALS or Althheimers or something like that. Lisa, thanks so much for sharing--I'm hoping that the increased absorbing of nutrients is helping. I think it might be.

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im 21 and I have the same problem. I can be talking to people and hte train of thought is out the window and i sit there in silence trying to remember what i was saying. Im always at a loss for words, which never use to be the case...so then i end up rearranging sentences to put in words that i can remember. I forget thinngs like how to spell simple words such as "just" and my telephone number haha alomst 2 times a week i call the wrong number to get my voice mail..more man who anwsers the phone must think i've lost it completely. I completley understand the worry...my university education has slipped on a steady slide downwards and the only thing i can tell myself is 'maybe next year will be better.'

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I think all we are doing is explaining in detail to anyone who is reading this thread exactly what "brain fog" is...... ;) At least we are confirming what everybody already knows - celiac and brain fog to hand in hand..... :(

Hugs.

Karen

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I remember (haha) when I first started to read through this message board that all of it relates to me- I am not crazy-I too have always had this problem. Forgetting the basics, losing your train of thought....

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This problem frustrates the hell out of me most of the time. But, sometimes I have to laugh at myself.

I actually "pat myself on the back" when I accomplish the simplest of tasks.

I read a short 5 page story the other day and actually remembered the characters names. I smile everytime I can locate my car when I walk out of the mall. And I feel great if I remember to get my change or my debit card at the cash register.

I'm sure people are wondering what I am so happy about. If they only knew !!!!!!!!!!

Dumb as a door knob ..... marcia

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:( Thanks for all you impute. I find it pretty scary when I'm driving down the road and can't remember where I'm going, then remember it was to the grocery store. I feel that my IQ has dropped 50 points.

Does this get better, or is it permanent? :(

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As so obvious, with brain fog, my thread should have said "Completing Sentences, or lack of. I have no earthly idea where the posted one came from in my head.........gheesh. :blink:

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Glad you did, if I read to post, I would have said "what the heck does that mean". BLA

Recently, when I was conducting a public meeting to open the meeting, I hit the gavel, and said "Let's adjourn the meeting for whatever date it was" instead of "calling to order...." I don't know why everyone didn't get up and leave. My fellow board member made a joke of it and I did not even know. I guess sometimes you have to laugh at yourself, but not at a public meeting.

I am required to know architectural terms....Often, I am speachless and refer to something as that "thing above the door". I'm sure that I am very impressive to the applicant. I feel like a dumb a** so many times.

It is a little reasurance that others are in the same boat as I. I just hope that this gets better, as I am considering resigning my position since it is so public. I have worked so hard to bring my commision from a dog and pony show to something that has gained respect from the community. This is my baby, but I want to continue to be respected and knowledgable. I just feel that I'm back-sliding, and so frustrated with myself.

Just venting a little, ya gotta do it sometime.

Lisa B

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As so obvious, with brain fog, my thread should have said "Completing Sentences, or lack of. I have no earthly idea where the posted one came from in my head.........gheesh. :blink:

I didn't even notice until you pointed it out. :P It was close enough for my swiss cheese brain to get the point. B)

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Mine must have more holes than a sponge!!!! LOL! :lol: I got what she meant right away too!

Lisa, to answer your question, you can go back and edit the body of your post, but you cannot change the title.....

Hugs.

Karen

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The problem with me is because I fail to heal even with strict gluten-free diet (bloodwork proves it, but villi just won't respond), I still can't get rid of the brain freeze. I guess that's why I have such low iron that won't come up and why the GI specialist has me classified as refractory (which I don't agree with.....)
Karen, I remember that you posted about low iron before and that nothing seemed to work. I was just wondering if you ever have a follow up biopsy to see if your villi are healed?

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I've had two biopsies now, although this GI professor that I go to has only done the colonoscopy to find the collagenous colitis, he didn't do a biopsy, he's going by the results of previous biopsies..... No repair....

Karen

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This is a new format and a thread that I started and the TOPIC was very inacurate due to brain fog and vast misspelling. I have with this post created a new forum/thread.

The topic includes:

Forgetting where you were going, and reminding yourself you were going to the post office.

Begininning a statement and not being able to choose the correct words.

Blending words.

Forgetting details, that you deal with every day.

Calling the telephone, the "thingy over there".

Thinking that you have serious brain damage due to Celiac and Malnu.

Thinking that I can't return from that. :(

Thanks to all that posted earlier.

Karen, thanks :)

Patti, we must be on the same page. Scary though. :)

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