Lisa

Zax:

For every week for about six, I got a B-12 shot, as I was not absorbing through the normal rounds that most do. Everything that I ate during this time went into the can, so to speak. I am now doing this once a month. That first shot was wonderful and I had be best energy that I have had in months. I would strongly suggest that. As I was healing, the effect was less apparent because I was absorbing more vitamines and retaining things longer. Vitamine D is also essential to fight bone loss.

I take a daily Oil of Olay multi and Sweet Essentials Calcium Chews 2x's (they taste like a tootie-roll and are gluten free).

Hope this will be helpful.

Lisa B.

Hershey's Kisses

Hershey's Milk Choc. Bars

Baby Ruths

Butterfingers

My favorite snack is peanuts, raisans and m&m's

These are just a few....many others

Ameme:

Welcome to the site. After being gluten free for three years, you can pass on your wisdom to other that are new to the disease. That's why we are all here.

Please feel free to chime in anytime.

I am not a glucose person, but someone will post soon.

Welcome again.

Lisa B.

Lipton Onion Dry Soup Mix with sour cream.

Good for you for demanding answers. Isn't funny how we know our own bodies? I kept telling my doctor that my terrible back aches felt like my insides were inflamed. He said that it could not be related to my intestinal problems (pre Dx) and they were two unrelated issues.

After going gluten free, guess what......no more back aches!!

Hope you do well with the surgery and it relieves all you pain.

Lisa B

Hey You Two:

Trust me, it gets easier. We all went trough that frustration period and still do, but please try not to overreact untill you learn as much as you can about this disease.

I have tried to concentrate on the things that we CAN have and not dwell on what we cannot.

First of all you need to ask celiac3270 if he would kindly send you the Delphi Forum Product List. That will help you with all products by name as, soaps, foods, hair products, meds.

I have not bought new pots and pans. I do not use wooden spoons though. If feel that the dishwasher illiminates my "Kooties". A single use toaster would be a good idea.

I really don't miss gluten, although, restaurants are a little tricky. I enjoy cooking and there are some super recipies on this forum.

When I was tested, I thought that I had Cancer, celiac disease is a blessing as an alternative. I hope that this will get you two started. Just remember that there are no questions that can't be answered on this forum. It is the best help you could ever imagine.

Good luck and keep us posted as to your progress.

Lisa B.

Laura:

I too have switched several doctors and each one wanted to do their own testing. I think that this is very unnecessary and very expensive.

The whole point is to feel better and you seem to be headed that way. The biopsy is the "gold standard" to test for Celiac Disease. Nothing is better. If your villi are flattened then you have Celiac Disease nothing more need be done except to be 100% gluten free.

I had a positive biopsy and a month after that I had negative blood test after being gluten free.

In my humble opinion, you should not need to return to the doctor and have any more tests done. Eat gluten free and very gradually you will feel better again. It may take as much as a year or so to feel 100%, but it comes.

Good luck and keep in touch.

Lisa B

Hey, Lisa! You've come a long way, baby!!!!

I also whip out my cell phone for those 1-800 numbers right in the middle of the aisle......

Karen

Nettiebeads and Karen:

Wow!!

It has only been since August that I was screaming for help here on the site. It is hard to believe how much you can learn in this short of time. I couldn't have done it without all of you.

There are so many new names here that I would like to know. I am not so good with the technical part of the disease, but I can sure help others get started and show how well you can eat and avoid gluten.

Thanks for all of your shoulders

Lisa B.

Karen - your picture portrays your personality, beautiful.

Miko,

Where do you live?

Glad that you joined the message board, welcome.

Lisa B

Lipton's Onion Soup Dried Mix is gluten free to the best of my knowlege........the others are not. I use that in my beef stew as I have done before DX. Add herbs of your choice and butter just before dishing out...so good on a cold day, with gluten-free cornbread (I add sour cream, sweet cream of corn, that I put up, sugar and mexican peppers in the small can.)

Yum, maybe tomorrow night?

OK. I ran a scan while we went out for dinner tonight. Hope this will help. Thank for directing the problem back to me to fix it. Have a good new year every one.

Is anyone else in the mist of posting getting erased by pop-ups? I keep getting the vacume cleaner guy.

If it is me, I will run some scans. Please let me know if others are having this problem.

Lisa B.

Tamari has a "wheat free" line. I would suggest that you look on the bottle it will clearly list on the front that it is wheat free.

Austrian

I just go kicked off by spam (something to think about by the change in the system??)

Nathela:

I had the biopsy when I was feeling really bad and it showed a true positive for celiac. I am in full agreement with the Dr., that if you feel better going gluten free, then continue. I too wanted to call my infliction with a "name", but with the diet and health getting better, you can assume the name.

Since you have fatigue issues, please contact your doctor and request a full blood panel (they used to call it and executive panel) to test your levels of essential elements for your bodies heath. They will show all deficiencies regarding vitamines (I can never spell that word). That may be the source of your fatigue.

Hope this will be helpful.

Lisa B

Skippy, Jiff, and Smuckers Natural..........hope this will be a start.

Lisa B

Mom:

I too had a daughter on Paxil, Adderall while she was in college. Please note that she does not have celiac disease. She was very shy and anti-social, in the mist of rowdy college girls which made her the attack of their cruelness. She became increasingly depressed (although I saw it, but she did not mention it to me).

It became a very critical situation, with my concerns of someone being hurt. My concern was for my daughter (did not give a dookie about the other cruel girls).

The manager of the house was called in to a very volital situation and he agreed to release the lease and separate the girls. I feel stongly that this saved her life.

Please make sure that these drugs are monitored closely by the prescribing doctor. It is vital.

As mothers, we watch our children struggle and it tears at our heart. We made it through that tough time and she is now off the drugs. She is so much more happy and feels the ownership in her own life.

I don't know if any of this will be helpful. But, I certainly feel what you are struggling with. I hope you find a solution that will give her peace and health.

Lisa B.

Erin:

I have never had a child with this situation. It is just me and I'm 51. But.......

Try going gluten free for her and she will never know.

Kiddy food:

Hot dogs - Oscar Meyer, Hebrew National, Hillshire Farms sandwish meats (always check the labels)

Kraft Singles

Wheat Free Eggo's

Eggs

All Fresh Fruit

Yoplait Yogurt

Jiff Peanut Butter, All Smuckers/Polander Jellies

gluten-free Rice Cakes

M&M's

My suggestion is to try her on a total gluten diet. She will not be able to go to pre-school without a diaper. She is too young to handle her urges by herself as young and distracted as a two year old can be. She is so young, she won't ever know that she was on a specific diet. They she will eat what she is used to.

And be very specific about her caretakers about her diet. It truley will be beneficial to them as well

I know that other mothers in your same position will post, but I wish you well and best of luck with your baby sweet thing.

Liz:

There are so many people of this site that a far more technical than I. But I will try to answer your question from my personal experience. Remember always that everyone reacts differently to being glutened. Some of us have a lesser reaction to gluten than others, those who may have a severe reation which can wipe them out for days and sometimes weeks with migraines, D, fatigue and severe cramping and pain. What you need to be aware of is, that even though your reation to gluten may not be severe, it is still doing damage to your small intestines. That damage can lead to very terrible things, some perhaps being fatal if not address currently.

Gluten Free is Gluten Free as said 100%. I feel that you have been partially gluten-free for ten years. Being wheat free is not being gluten free as well you know. Your blood work-up may show a negative as you have been gluten free for 5 weeks. But that does not insure that you do not have Celiac Disease. You may, have a wheat allergy.

I do not know about the gene testing as I have not had this, but if you need to know for sure. I would recommend a biopsy which will determine a definate diognosis for Celiac.

Or you could totally go gluten free and make the judgement for yourself by determining how you feel.

I hope that this will help you a little. I am sure that those more familiar with your tests of interest will post and help you with your decision. Good luck.

Lisa B.

Yeah, I know, it can be terribly frustrating. I too got zapped on Christmas. We do a pot luck dinner so everyone brought something. We did the standing rib roast, mashed potatoes and country ham. So I know that they were safe and that's all I ate. I think that my problem came from twenty people, and perhaps double dipping utensiles into the non-gluten free bean casserole.

Someone also made a big public deal about my declining to eat a cranberry cheese cake with graham cracker crust. You know the deal...."one taste can't hurt you."

But nothing has gotten me as bad a today's lunch. Everything was closed in town except "Mamasita's" (does that give you a hint?) I order a plain salad and I brought my Annie's dressing. They brought it out with croutons after I told the waitress that I cannot eat bread, or flour. They must of picked them off and added more cheese to cover it up.

Yeah well, it's the pitts, but it isn't chemo. I know that we all need to be grateful and take this into our own hands. Our heath is our responsibilty and no one elses. , but it IS difficult at times.

A wonderful holiday wish for a joyous new year to you all.

Lisa B

celiac3270, you must have the longest post on record.

If you have the new updated version, I would appreciate as well....jimbaker@mchsi. com (unzipped)

Hope this doesn't take up all you school break.

(for further reference: "you know you're a Celiac when you drive around with a roll of toilet paper in your car".

Lisa B.

Sweetie,

I am sorry that I can't help you with your question. I am on the flip side of your situations. I am 51, but wait until other chime in and they can better inform you. Hang in there and there will be an answer soon from someone your age...Take care

Merry Christmas to you.

Lisa B.

Jessica:

I have never liked breakfast food. But try making a lot a rice from dinner and use the leftovers with scrambled eggs (not together, but separate). I also love my rice with seasoned "Herb-Ox"chicken bouillon seasoning. It makes it wonderful. I use Uncle Bens Rice.

Hillshire Farms makes good sausage and Jimmy Dean sausage is also gluten free.

Yoplait yogurt is gluten free and is great to dip apples and other fruits for lunch.

For dinner, Hillshire Farms Kilbassa is good, with mashed potatoes and Hellmanns's Dijonnaise Creamy Mustard, and fresh green beans with butter and dill seasonings.

Hope this gives you a good start

Lisa B.

Welcome Adam:

If you have been possitive in the blood test and choose to be gluten free and you are feeling better, there is no reason to go through the expense of a biopsy. If you are already gluten free as your best ability, then it may effect the biopsy. The endocopy exam is the "gold standard" for detecting Celiac Disease, but, if you are feeling better on the diet, my suggestion is to continue on the diet.

Apparently, we all carry a pre-disposed gene that may trigger Celiac, some may and others may not. We are the chosen.

I often refer to my friends as a car, in neutral is rolling slowly down a grade, with no problem/no harm, then something brings it to the cliffs edge, and it goes over. Therein becomes Celiac Disease.

Watch you child closely, celiac may not be apparent, but watch for the signs.

I wish you well and welcome to the club.

Happy Holidays

Lisa B

Jessica:

The endoscope is easy. I didn't remember much and had to ask my husband what the doctor said, several times.

Good for you, no pills, no surgery and best of all no cancer-related treatment. That was my worry.

All you need to do is a dietary change. It may be overwhelming at times, but after several months you will get the hang of it. There are many, very tastey recipies on the recipe forum that can get you started. Food does not need to be bland, you just have to find out the safe seasonings that will help you make your way through Celicacland.

Good for you, and you now know what you are dealing with. If any of us can be of help, do not hesitate to ask. We are all in the same boat.

Wishing you well.

Lisa B.