Jump to content

cyclinglady

Advanced Members
 View Profile  See their activity

  • Posts

    9,348

  • Joined

  • Last visited

  • Days Won

    396

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    I am sorry that you are still struggling. I read your old posts and you have had skin biopsies (might not have been taken correctly), antibodies testing, a negative endoscopy/biopsies, but I think you may have been on steroids while being tested. It sounds like diagnostic h#@$! Have other autoimmune disorders possibly related to to DH (e.g. pemphigold...
  2. cyclinglady
    Do not worry. Immunoglobulin A (IgA) can be elevated for many reasons (like infection and autoimmune). Mine is always high (over 700) and has yet to change. My doctors assume that it is due to allergies, Hashimoto’s and celiac disease. My PCP tells me that it is not good, but what can I do? It is not like I can control my allergies much or my Hashimoto’s...
  3. cyclinglady
    Welcome to the forum. It is so nice to be able to hang out on this forum and communicate with folks who have been walking in your shoes. Keep eating gluten until your endoscopy. Take this time to bid a find farewell to some of your gluten-containing favorite foods, but know that you can convert any recipe. I was anemic too and that resolved within...
  4. cyclinglady
    Welcome to the forum, Renaye! I am glad that you got some dairy back into your diet. It is so encouraging to hear a good outcome!
  5. cyclinglady
    I too am in my 50’s and was diagnosed with an elevated DGP IgA (all other tests on the panel were negative) and biopsies revealing a Marsh Stage IIIB. Because My hubby had been gluten free for 12 years, I was confident that I knew the diet well. My anemia resolved within a few months. I made the mistake of not returning to my GI. My PCP checked for b...
  6. cyclinglady
    As long as your symptoms have resolved and your blood tests have come down, I do not see the need to get a repeat scope. If you are experiencing symptoms now or in the future, it might be nice to rule out other issues that may develop. I would not consider a two to four week challenge for a firm diagnosis, but that is just me. You should talk to the GI...
  7. cyclinglady
    I know! It is SO hard to be patient! Again, your results are not really conflicting. You only needed one positive on the panel. I have never had a positive TTG or an EMA (just the DGP IgA). You can go crazy reviewing studies. Please note that not all of them are good or they can be very small which almost makes them useless. Maybe focus...
  8. cyclinglady
    If you are getting a biopsy, you need to be on gluten daily for 2 to 4 weeks before the procedure. All celiac testing (blood tests and biopsies) require a person to be on a full gluten diet. As far as genes are concerned, some 35 % of the population has the genes that could develop into celiac disease. That is a lot of people! But....only a...
  9. cyclinglady
    I am not here to argue as to whether or not these OTC supplements can help ease glutening symptoms or not, but I can add that the placebo effect is very real. Do whatever rituals work for you! The mind is amazing and I think it can impact your immune system! Now, I am going to serve up my homemade gluten-free chicken rice soup to my family (who...
  10. cyclinglady
    You are right, the label does not disclose any gluten ingredients. I tend to stick with foods that are labeled gluten free (just lazy). When I do buy foods that are not labeled gluten free, I think about the manufacturer and would the product be manufactured on shared lines, etc. I am pretty careful because a glutening for me tends to last for months ...
  11. cyclinglady
    Yes, it is gluten free, at least in the U.S. Kraft is good about disclosing gluten on their label. It is not the healthiest food (lots of additives and preservatives) but heck, the holidays are here and why not splurge? If you are having a celiac flare up and are concerned, just skip jello until you feel better. Why make it if you are going to worry...
  12. cyclinglady
    I can not contribute to the 23 and Me test interpretation, but I will state that some 35% of the population is known to carry the genes that COULD develop into celiac disease. Only a tiny fraction actually go on to develop it. The gene test is primarily used to exclude a diagnosis. For example, my family members could take the gene test. If they do not...
  13. cyclinglady
    Just looking at the site indicates this company brews beer. Perhaps, the soft drinks are bottled on the same line as their beers. Might be a reason for the company to say this root beer is not gluten free. For newbies learning to read labels: Open Original Shared Link
  14. cyclinglady
    I am sorry too. ?
  15. cyclinglady
    Welcome! Lesson learned, try not to diagnose yourself (or order labs) until you have a clear understanding of what you are doing. I went on Quest and could not even find the initial test you took (though I might have missed it). What Quest Diagnostics did say is that that you should work with a doctor and if the screening TTg and EMA are negative,...
  16. cyclinglady
    I read that getting diagnosed for celiac disease averages 10 years! The good news is that most celiacs recover on the gluten free diet. The biopsy in your case, could determine whether or not you have celiac disease and rule out things like IBD, SIBO, Cancer, etc. Cancer is very, very, rare. If your symptoms resolve, your worries for intestinal damage...
  17. cyclinglady
    You are not screwed. If you experience a resolution of your symptoms while on a gluten free diet, then you have your answer — gluten is not good for you. Just act as if you have celiac disease and you will be fine. A firm diagnosis can be needed if you have DOUBT. A diagnosis is nice to have (validation), but it really comes down to feeling better. ...
  18. cyclinglady
    A gluten challenge for the celiac antibodies blood panel does require a person to be on a full gluten diet (8 to 12 weeks). For an endoscopy the challenge is shorter (2 to 4 weeks). It is about a slice of bread per day (or equivalent). Open Original Shared Link My house is gluten free too. When I wanted to test my kid, I made sure she ate gluten...
  19. cyclinglady
    Keep us posted! ?
  20. cyclinglady
    When was your last endoscopy? If your small intestine has healed, another autoimmune disorder or illness may be the cause of your current slightly elevated TTG. If villi damage is still there, then you should look at refractory celiac disease. The good news is that most cases of refractory involves exposure to hidden gluten.
  21. cyclinglady
    Hi! To firmly rule out celiac disease (before doing the endoscopy), consider getting the rest of the celiac panel which includes the DGP and EMA. Why? Had my GI ordered just the TTG, my diagnosis would have been missed. I only test positive on the DGP IgA (even in follow-up testing). Having celiac genes just means you are one of about 35...
  22. cyclinglady
    Yes, it seems like you could break a tooth. I do not eat them anymore because frankly, they are just junk food and I was never a pretzel fiend to begin with. I personally like potato chips.
  23. cyclinglady
    About six or more tissue samples. Minimum of four. Hang in there!
  24. cyclinglady
    Welcome! You sound like me with the gallbladder removed (mine was non-functioning, no stones) and low ferritin (a 2). I went in for a routine colonoscopy (yes...I am over 50) when my GI looked at my chart and told me that he was going to run a celiac panel. I was shocked because I had no GI issues! So, do not listen to your hubby in this case...
  25. cyclinglady
    Heal strike? Nah, I would not bet on that. Like you, I looked into that when my hemoglobin was dropping like crazy. I run 3 times a week, swim and ride my bike. Nothing excessive like those 100 mike racers. ?. It was really celiac disease that caused my low ferritin and not perimenopause (heavy cycles) or hypothyroid (when I was not running hyper...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.