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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Admit it, you are having it because it is ?. I am diabetic and am not really supposed to eat it, but I am having some now (1/2 vanilla ice cream with cream poured on it). By increasing my fat, it slows down the digestion. My blood sugar does not rise as fast. That and I am going to do some bicep curls!!!!
  2. cyclinglady
    If you can tolerant dairy, go for it! Not all celiacs are lactose intolerant. Many are temporarily lactose intolerant and it can resolve with healing (all bets are off if genetically you are lactose intolerant). If you think your stomach rumbling is due to a lactose intolerance, cut back on those dairy products which contain the least amount of lactose...
  3. cyclinglady
    I can not comment on BlueBell (not sold in the markets I frequent), but Breyers does have a dedicated line of gluten-free ice cream. There is even a green gluten-free label on it (handy for friends who offer to bring ice cream to our house for dessert!).
  4. cyclinglady
    I am a member who has extremely elevated levels of b-12 and folate. My doctor was not concerned, so I did a little research. I concluded that I did not have cancer which is one of the reasons for such an elevation. What I discovered was that because I was lactose intolerant due to celiac disease, I had been consuming soymilk that was fortified with...
  5. cyclinglady
    @gunsandroses Maybe your doctor was smart in advising you to remove both gluten and dairy as he knew that intestinal damage from celiac disease usually causes lactose intolerance. For many it is just temporary as the intestines heal. For others, lactose intolerance is just simply genetic (a huge chunk of the world's population is lactose intolerant) or...
  6. cyclinglady
    HA! I got my endos mixed up! Anyway, yes, you need to be on a gluten diet for all celiac testing to be accurate. You can consider a gluten challenge later, but it can be brutal. Everyone heals at a different rate and the gluten free diet has a steep learning curve. It can take months or years to heal. Learn more about a challenge: Open...
  7. cyclinglady
    Are you sure you are IgA deficient? You just need one positive on the complete celiac panel to move forward with the endoscopy, but you have opted out of that step. So, the best thing is to trial a gluten-free diet. I would still recommend following up with a GI for a second opinion. Plus, your endo is not celiac-savvy from what you stated.
  8. cyclinglady
    Welcome to the forum. We are not doctors, just folks who have issues with gluten. We can not diagnose you. If you feel better by going gluten free, then by all means go for it! The gene test does not diagnose celiac disease since about 30% of the population has those genes. It can exclude celiac disease. You did not post the ranges or the actual...
  9. cyclinglady
    Welcome! Yes, follow-up care is recommended. Learn more: Open Original Shared Link
  10. cyclinglady
    Read this posted on the FDA.gov site: Open Original Shared Link
  11. cyclinglady
    I still prefer steaming, but I wash my white rice throughly. I purchase California rice which has a lower level of arsenic. Moderation is key to most everything! ?
  12. cyclinglady
    There are plenty of negatives......?
  13. cyclinglady
    Some of take longer to heal. Cut yourself some slack. A busy working mother with small children is both rewarding and taxing! You know what I asked for on Mother's Day? No cooking, food prep, or cleaning. I do not want to go out (just too busy of a day for most restaurants and my fav gluten-free restaurants are a state away). I just want to...
  14. cyclinglady
    All fruit and vegetables contain carbs. So, you can survive just fine without grains. You think the Eskimos were dining on rice and fresh salad? I am not recommending that you go grain free, but consider expanding your list of veggies. Add sweet potatoes, squashes, white potatoes (if you do not have an issue with nightshades), artichokes, taro, etc. ...
  15. cyclinglady
    And this from Consumer Reports: Open Original Shared Link Rice aside, stop giving your kids apple juice too as it can contain high levels of arsenic too! Eat real apples -- not juice.
  16. cyclinglady
    If I am in a bar and it is super busy, I ask for a "to go" cup. Why? If a dishwasher is not being used (or demand is overwhelming it), bartenders are cleaning all the glasses the old fashioned way ( sinks, wash and rinse with disinfectant). Good for killing bacteria I suppose, but maybe not for removing gluten traces. No bar is going to slow down drink...
  17. cyclinglady
    Waiting for the EMA, I bet. Keep advocating! this is interesting. If celiac disease is excluded, she might still have a gluten sensitivity. There just is not specific test for that. Open Original Shared Link
  18. cyclinglady
    I think all the flavors are all gluten free. I buy them at my local grocery store which is a Kroger store. Amazon has them too. Jenny at "The Patient Celiac" uses them too (she is a preemie doctor who has celiac disease).
  19. cyclinglady
    Hey, I had Hashi's some 15 years prior to my celiac disease diagnosis. My doc put me on a very lose dose of Armour. It did bring down my antibodies (by half), but they were extremely high to begin with (anything over 30 was positive and mine initially were close to 4,000). My nodules and enlargement stayed constant. Both actually went away since I have...
  20. cyclinglady
    Dang! If I lived that close to Chicago, I would definitely go to the University of Chicago's celiac center even just to hang out with some celiacs or celiac-savvy folk! (Maybe visit Aunt Mary too....) Consider a second opinion. Some people spend more on their Friday night bar tab instead of paying for a second opinion (cash) if they went out-of-network...
  21. cyclinglady
    Even when glutened, I have YET to have a positive TTG (IgA or IgG). Before you give up on a celiac diagnosis, get the GI to order the rest of the panel. Make sure it is firmly ruled out. This happened to my 20 year old niece. celiac disease was completely ruled out (blood and endo), and colonoscopy clear. Finally, a pill camera found Crohn's at the...
  22. cyclinglady
    Listen to these wise people! Believe me, I like exercising. I am a very fit older lady! But when sick, glutened, recovering from surgery or injury, I skip working out. I stayed off my beloved bike for almost a year because of vertebrae fractures. Instead I focused on first healing the fractures and then building up slowly. It is hard to be patient...
  23. cyclinglady

    ARCHIVED Help

    cyclinglady replied to M-SMOOTH's topic in Coping with Celiac Disease

    Oh, yes! It just takes time. I know, hard to hear, but it took a lot of time for your symptoms to develop. Most members feel noticeably better in a few weeks. Just rest as much as possible. Spend time learning the Gluten free diet. There is a steep learning curve to the diet. Want to shorten it? Eat as much Whole Foods as possible. Think stews and...
  24. cyclinglady
    George, i am sorry that you are not feeling well! ☹️ I am not a doctor, but just trying out drugs to stop your symptoms just seems like a band aid approach. It sounds like he suspects IBS which is really, in my opinion, "I be stumped". Has inflammatory bowel disorder (IBD) (more lovely autoimmune disorders) been ruled out? This includes both Cro...
  25. cyclinglady
    Celiac disease is an autoimmune disease that happens to have a known trigger -- gluten. Flare-ups develop (antibodies) causing damage. Not just in the small intestine, but systemically. One gluten exposure can cause antibodies to increase for days or months! Antibodies are being measured during the celiac blood tests. If there is no gluten exposure...
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