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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Try real maple syrup. ? Oh, the waffles and pancakes? There might be additives (e.g. Xanthan Gum), etc. added to the gluten-free flours or the flour blend (e.g. Tapioca, potato) that you might be intolerant to. These are processed foods. Try sticking to a Whole Foods diet so you can identify intolerances during the early stages of healing. What...
  2. cyclinglady
    I am sorry that you are sick. When was the last time your GI measured your antibodies? This would confirm if your celiac disease is active. Open Original Shared Link
  3. cyclinglady
    Eating out is like playing Russian Roulette. Unless, you are at a 100% gluten free restaurant, then skip eating out until symptoms have improved. A gluten free menu does not mean that it is safe for celiacs! Sad, but true.
  4. cyclinglady
    Research and ask about Mast Cell Activation Syndrome/Disorder besides ruling out another autoimmune disorder. Jebby, a forum member, is a premie doctor who also has celiac disease:
  5. cyclinglady
    I will chime in. Rosacea can and does resolve on a gluten free diet. Mine is long gone! There is some reaseach that links it to autoimmune issues. Toaster bags. We use these when we travel or hang at the family lake house. So handy and they keep us safe.
  6. cyclinglady
    Honestly, based on our forum DH posters threads, there is no way to visually identify your rash. A skin biopsy obtained specifically to DH specifications is required. My non-doctor opinion? Your family history and your insanely itchy rash? My money would be on celiac disease, if I were a betting gal!
  7. cyclinglady
    Read through our DH section. I am pretty sure that steroids can impact test results not to mention that some DH suffers do not test positive on the celiac blood tests even on a gluten diet. There is a very specific way to biopsy DH (to verify antibodies in the skin), so finding a celiac-savvy dermatologist is critical. Hope this helps!
  8. cyclinglady
    Welcome Ruth! I am so sorry that you are struggling with your new diagnosis. It is common. You are not alone. You are grieving about the loss of old foods, the constant label reading, and your old social life. All NORMAL! It will take time to heal both physically and emotionally. But there is good news! Your depression and anxiety might become...
  9. cyclinglady
    You are probably low on those vitamins, so supplementing them would mostly not harm you. Besides, gluten free look for for methylated versions (e.g. B-12 methylated cobalamin, sublingual). But it comes down to the fact that you are just three months into the gluten-free diet. You need a lot more time! Most of us on the forum take a year or two to feel...
  10. cyclinglady
    Rashes, hair loss, and itchiness are common, so do not worry. A lot has to do with deficiencies which will resolve slowly on a gluten free diet. Be sure your doctor checks your thyroid (tests for thyroid antibodies) as that can be attributed to hair loss and dry skin too. Autoimmune thyroiditis is commonly linked to celiac disease. After six months...
  11. cyclinglady
    You should be celebrating! A healed intestine! Yippee! Now the downer.....get a new GI who knows about celiac disease. This doctor does not even keep up on celiac disease (he just needs to read GI journals). Remember too that you need to wait for the pathologist's report. Villi damage is microscopic. Your GI would not be able to see that type...
  12. cyclinglady
    Welcome Luke! It does take time for most of us to heal and two months in is such a short amount of time. There is a steep learning curve to the Gluten free diet. Try reading our Newbie 101 tips under the forum's "Coping" section. I would recommend a Whole Foods diet as many processed gluten-free foods might have ingredients that do not agree with...
  13. cyclinglady
    @jillri -- this is a pretty old post, but a great topic. I do not think the original posters are around. But I will respond! ? Absorbic acid should be fine for a celiac provided you personally do not have an intolerance to it (a recovering gut can have a hard time digesting anything). Aside from celiac disease, apple juice can be high in Arsenic...
  14. cyclinglady
    Well, we are not doctors and we can not diagnose you in the internet. What I can say is that your symptoms are common with celiac disease. I normally get a pinching pain where my actual stomach is when I accidentally get exposed to gluten. You should should follow-up with your GI at six months and get your antibodies retested ( the doctor looks for a...
  15. cyclinglady
    I am not a genetic expert, but the reality is that some 30% of the population has the genes that can develop into celiac disease (rare about 1% or so). Genetic testing is used to rule out celiac disease, not to diagnose it. You should ask your doctor to order a complete celiac blood panel. Learn more about testing from the University of Chicago: Open...
  16. cyclinglady
    I could not have said it better!
  17. cyclinglady
    Good for you Ennis!
  18. cyclinglady
    Holy Cow! JMG! The cake looks great! Going back to the diet.....I have been low carb, high fat for three years, but that is because I have diabetes on top of celiac disease. I eat very little fruit at all and I am not deficient in anything. I eat a lot of veggies (just had some steamed broccoli with at least 2 tablespoons of melted butter). My...
  19. cyclinglady
    Don't worry about your weight. Instead just focus on the gluten free diet. You might find those extra pounds, just slipping away just from being gluten free. Others can gain weight on the gluten-free diet. Everyone is different. Fruit, veggies, it is all good for now!
  20. cyclinglady
    Just focus on avoiding gluten. You will know soon enough if you are super sensitive or not. There is no way to tell, unless you get scoped all the time or you have DH. Celiac symptoms can change. I was just anemic when diagnosed. I probably had a few other symptoms that I chalked up to menopause (like anxiety or irritability --- and who would not with...
  21. cyclinglady
    Ha! Ha! ? I know your grammar skills are superior to mine. I should have left the "e" off the word grill. ? You are correct. All managers and chefs should be gluten free before grilling them. For that matter, the grill should be gluten free as well!
  22. cyclinglady
    Consider using the dining cards in the grocery store. We used our card in Poland, where even being part of the EU, we were not always able to read the labels. Store employees were so helpful.
  23. cyclinglady
    Glad it worked out. Hope your son feels better fast!
  24. cyclinglady
    Welcome! I am sure others will offer you excellent advice, but neurological issues unfortunately are the last to resolve. Keep to a very strict gluten free diet at least until you see some symptom improvement. This includes a Whole Foods, less-processed, diet and avoid going out to eat. Were your B-12 levels checked too?
  25. cyclinglady
    Welcome! I am sorry that you are sick! Unfortunately, we are all different in terms of recovering from a glutening. You see, it is not about the gluten in your body. It is about gluten triggering an autoimmune reaction (flare-up) that can last for days, weeks or months. We are lucky that we know the trigger, unlike those with MS, lupus, RA, etc...
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