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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    DH has been described as the rash from Hell as the itching is relentless. Celiac disease can cause different rashes, but not as severe. Sounds like (but I can not diagnose you over the internet and I am not a doctor) Keratosis Pilaris. Very common. Not to worry. Open Original Shared Link As I told my own kid this morning (who was reading a...
  2. cyclinglady
    At 19 my niece was diagnosed with Crohn's. They checked her for celiac disease (because of me), but all tests were negative. She was still getting severe abdominal pain every few months (many ER visits) but it was getting worse (but never daily). Her 4th GI ordered a pill camera and found the Crohn's damage located at the very end of the small intestine...
  3. cyclinglady
    I think your doctor told you that you do not have celiac disease because he did not test you for celiac disease? Instead, it looks like he tested you for allergies. An allergic reaction can cause stomach pain, nausea, swelling, hives, itchy rash, breathing issues, fainting, and throat swelling and even death. If severe, you should carry an EPI pen. ...
  4. cyclinglady
    You can go gluten free, ( I would with hypothyroidism and Fibro), but seriously, I would get a second opinion. Why are you hypo? Did your doctor run a thyroid antibodies test? Does he/she know anything about celiac disease? I just took my FIL to his doctor and she was clueless about celiac disease! Okay she mostly see geriatric patients, but you can...
  5. cyclinglady
    Welcome! These are the blood tests specific for celiac disease: Open Original Shared Link I am not sure your doctor actually ran a celiac test. Not sure what "gluten" means. Can you write out the actual test name and lab ranges? I am guessing that the Anti TPO test is for thyroid antibodies (autoimmune thyroiditis). This autoimmune disorder...
  6. cyclinglady
    I am sorry that you are now dealing with all these allergies. Have you heard about Mast Cell Activation Syndrome/Disorder? How are you treating your allergies now? I have some unresolved food intolerances, but have anaphylactic reactions to many medications and insect stings. The severity of my reactions seem to be way worse during a glutening...
  7. cyclinglady
    Welcome! My endoscopy was a breeze. I was not worried about it at all! Your anxiety (many Celiacs experience anxiety) is probably contributing to your worrying. With strong celiac antibody markers, it is likely that you have celiac disease. Just make sure they take plenty of samples. Even if negative (damage can be patchy), consider trialing...
  8. cyclinglady
    The original poster has not been around for a while and I personally do not have the back pain you described. Celiac disease (celiac disease) can cause osteoporosis. Have you been evaluated for fractures? Neurological issues are also linked to celiac disease and can take a long, long time to heal. How long have you been gluten free? You might...
  9. cyclinglady
    Gluten Ataxia is still relatively "new". Unfortunately, there has not been much research. It may not apply to your child as it tends to impact gait. The treatment is a very strict gluten free diet. But many celiacs (who do not have ataxia) do have neurological issues. Brain fog, tingling arms and legs, itching, but no rash, anything to do with the nervous...
  10. cyclinglady
    If you REALLY wanted to find out if she has celiac disease, you would have jumped at the chance when you were offered to have her tested for around $90 (see previous thread). I understand that you want to resolve her many issues, but besides a celiac blood panel and/or an endoscopy, there is no way for sure to determine if she has celiac disease. It...
  11. cyclinglady
    My brother was very smart. Did not apply himself at school. His verbal conversation responses were, "Yeah, Uh Ha, Nah, and Maybe". It drove my mother nuts. She thought he would be a bum. He did not finish college and my Mom evicted him (family rule was to go to University or get out and earn a living). He got a job and became computer savvy. He has...
  12. cyclinglady
    @Linda1948, if you were glutened by this product you should report the company. I was serious! We need to advocate for the safety of our foods, supplements and prescription drugs. It is nerve-wracking to take a medication and really not know if the item contains gluten or not. I personally experienced this with a recent course of antibiotics. I...
  13. cyclinglady
    That was my strategy. I ate all the gluten things I could get my hands on until my endoscopy (seven weeks, my choice due to work constraints). Anemia was my only symptom at the time. By the end of seven weeks, I could tell that gluten was my enemy as I slowly developed gut issues. Maybe consuming a loaf of sourdough a day, not to mention all the other...
  14. cyclinglady
    Brain fog is real for those with celiac disease or even Non-celiac Gluten Intolerance. He may also have another condition which can impact his learning. If negative for celiac disease, consider getting him evaluated by the school psychologist. The school should (and is required by law) to help develop a plan for him. In the US, celiacs can file a 50...
  15. cyclinglady
    Welcome! Do you suspect that celiac disease is the root cause of your symptoms?
  16. cyclinglady
    Glad that you are improving. It is a slow process. A recent study confirmed (what most forum members have experienced) that it can take up to two years to completely heal from celiac disease. Everyone has different areas of the body that have been impacted (celiac disease does not just affect the small intestine). The learning curve for the gluten free...
  17. cyclinglady
    If this is the case, you should report them! This product is a supplement and must follow FDA food labeling rules and regulations (unlike cosmetic products). The ingredient list does contain a highly processed Vitamin E which can be derived from wheat but most often in the US is derived from soy. Read more about the safety of this by the gluten...
  18. cyclinglady
    Wow! Have you talked to the head waiter, head chef or even the Captain? Do you notify them in advance of the cruise? I have not been on this cruise line, but other lines have been so accommodating. But....I was just thankful not to get glutened. I would have eaten sawdust, if necessary. Being with my extended family and seeing various ports was our...
  19. cyclinglady
    Yippee! Glad to hear! ?
  20. cyclinglady
    My GI runs my vitamin and mineral levels each year as well as testing my celiac antibodies. It is part of my GI "well-check" and paid by my insurance. As a result, I do not supplement with anything except for the rare probiotic taken when given a round of antibiotics (just recovering from a tooth infection). I just make sure my foods are rich in nutrients...
  21. cyclinglady
    Many celiacs are lactose intolerant because the intestinal villi tips are often blunted (damaged) and that prevents the enzymes that help to digest lactose from being released. A lactose intolerance often goes away once healing is done (or almost done). In my case, I added it back in to my diet slowly and started with products that are naturally lactose...
  22. cyclinglady
    Just wanted to add that I found that when glutened, I have a hard time digesting anything! So, my go-to foods are well-cooked mushy meats and veggies (stews or soups). I even eat cooked fruit. So much easier to digest when your gut is ravaged during a celiac flare-up.
  23. cyclinglady
    I am glared the Fasano diet worked for you! I have read that building materials can make you sick (those containing gluten, like plaster). Is your new job at the same place? If not, why go back to your old job? Ask to do your exit interview from home.
  24. cyclinglady
    Ask your doctor for another celiac antibodies test. It might be gluten and your antibodies might be flaring up. I was glutened one summer and my GI thought it might be SIBO but it was a glutening based on my antibodies which were even higher (off the charts) than I was diagnosed (barely positive). What threw us both off was the severity of my symptoms...
  25. cyclinglady
    Hey, we just had a recent posting about eye dilation (2/24/17) and kids were involved. Hope this helps! Just wanted to add to keep advocating for your son's health! You are doing a great job! My heart goes out to you and your family. If gluten is the culprit, you might need to think how he can qualify for a 504 plan for school. It is one...
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