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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    I can assure you that Armour (by Forrest Pharmacuticals) is gluten free. I just took one this morning! But like any other drug, get accustomed to: 1) asking the pharmacist, 2 read the ingredients on the bottle or packaging, 3) visit the website, 4) and/or call. It is good to verify each time you get a refill. A hassle for sure, but it is important. ...
  2. cyclinglady
    I don't know.....fun to experiment, but from my research it has many limitations (cross contamination, etc.). Read the Gluten Free Watchdog's comments. They are the Consumer Reports for gluten testing/verification. Even the GlutenDude who was enthusiastic initially before the NIMA was released (think advertising dollars), has altered his stance. I guess...
  3. cyclinglady
    I think you might get a better response if you published your University, Department, etc. so that others can verify that this is a legitimate request. I am sure your department chair can help guide you, so that your own personal identity is secure. Personally, as a person who conducted marketing research for a living as well as being currently on...
  4. cyclinglady
    Welcome! My heart goes out to you! I have a soon-to-be 16 year old. She does not have celiac disease, but I can relate to your daughter wanting to fit in and not calling attention to herself. My daughter is in marching band and there is a 16 year with celiac disease. Luckily, I have been able to inform the parent boosters and the director about...
  5. cyclinglady
    Unless you already know or have identified other food intolerances (that can be temporary or permanent), you can really do gluten free cheaply. Need a protein snack? If are not a vegetarian, snack on meat. I pack my kid sliced chicken breast as part of her snack. Hardboiled eggs, slice beef, tuna salad. I often eat fish for breakfast. Leftovers. ...
  6. cyclinglady
    Welcome! what has your doctor advised? The EMA is really specific for celiac disease. Are you sure she had the complete panel? Did they run the DGP IgA or the DGP IgG? Open Original Shared Link how many biopsies were taken? The minimum is four and more is better.. Even then, celiac disease can be patchy and the small intestine is vast...
  7. cyclinglady
    Making your home gluten free would be ideal. My one gluten eater gets her gluten fix outside of our home. It just makes it so much easier on the rest of the family. Preparing Whole Foods is best, especially during the healing process. Save gluten-free snacks for special treats. I personally held off feeling my kid junk food until she was exposed...
  8. cyclinglady
    Learn more about celiac disease testing: Open Original Shared Link
  9. cyclinglady
    Just know that some 30% of the population carries the genes for celiac to develop. It is not used to diagnose celiac disease, but to rule it out. This is how to diagnose celiac disease: Open Original Shared Link Many doctors just order the TTG IgA test for screening. It is very good but does not catch all celiacs. Ask for a complete panel.
  10. cyclinglady
    In my personal experience, celiac symptoms can vary with each gluten exposure. You might not experience any symptoms at all! Just move forward! Congrats on adhering to the diet so well!
  11. cyclinglady
    All of those symptoms you described could be attributed to celiac disease and your thyroid. Four weeks into the diet is honestly, nothing. You need way more time. Most folks here take one to three years to heal. That is the reality of celiac disease. This is the time to learn the gluten-free diet, take it easy and do some gentle exercise. Before...
  12. cyclinglady
    Ennis gave excellent advice. Here is more about the testing process: Open Original Shared Link
  13. cyclinglady
    Ha, great response, Gemini! Tessa25 is right about keeping a warm house. Problem for us is that I am post menopausal and am still getting hot flashes. I like a cold house. Bought a small heater for my daughter to use in her room. Just bought her a down vest to wear around the house and we keep blanket throws everywhere. Small bean bags can be nuked...
  14. cyclinglady
    Soups? Ham and bean, chicken rice, veggie. Baked potatoes and all the fixings. Spaghetti, Gluten free. Build a salad (egg, tuna, lunch meat). Egg casserole and fruit. But, it would be easier just to bring your own meal to someone else's house. Welcome to the forum!
  15. cyclinglady
    No, I do not think compression socks will help. Keeping warm will. This site has some practical tips: Open Original Shared Link
  16. cyclinglady
    We are still learning. Looking at buying some heated gloves. It is another autoimmune disorder. Folks tend to have more than one. My daughter's friends tease her about being a vampire. Our doctor put the pulse gadget on her finger and was shocked that she did not have a normal pulse. Her aunt has it too. Ai runs like crazy on both sides.
  17. cyclinglady
    Because you are not IgA deficient, I would still recommend asking for the EMA and DGP (IgA versions). An elevated TTG IgG is odd and many doctors will sadly dismiss it. In theory, any positive necessitates further investigation (e.g. Complete blood panel or biopsy), that doesn't always happen. I wish you well!
  18. cyclinglady
    I think that cross contamination in manufacturing/material sourcing is most likely the root cause of some probiotics having measurable amounts of gluten. I use Bio-K probiotics. They are in a liquid form and there are several mediums to choose from (soy, dairy, rice-based). The are certified gluten free. Big guns, but I just bought some since I...
  19. cyclinglady
    I can confirm that any sweeteners will increase my cravings (your mileage may vary). As a diabetic, I just avoid all sweeteners. If my meter is happy, I can consume it. If I do cheat, I prefer natural sources.
  20. cyclinglady
    I am with GFinDC. I have Hashi's (very strong link to CD). I had no intestinal issues when I was diagnosed (went for routine colonoscopy because I am in the "over 50 club"). Luckily, my GI ordered a complete celiac panel. I tested negative to the popular, but cost effective, TTG tests -- just a single positive on the DGP IgA. Biopsies revealed a Marsh...
  21. cyclinglady
    Yeah.....I am one of them. I only tested positive to the DGP IgA (biopsies revealed Marsh Stage IIIB). In fact, even in follow-up testing, I continue to only get a positive on the DGP IgA (when accidentally exposed to gluten). The screening TTG IgA catches most celiacs, but not all. Then there are about 10% of celiacs who just test negative to all...
  22. cyclinglady
    Even if you do not have autoimmune thyroiditis (high antibodies), your doctor should probably continue to treat your thyroid with hormone replacement. Why suffer? A small dose migh help you feel better while you are healing. Retest the thyroid in six weeks to see if it is helping (or to measure if your thyroid is getting worse. Treating your celiac...
  23. cyclinglady
    My daughter is currently selling Girl Scout cookies. The Trios are gluten free -- certified gluten free. They are made in dedicated gluten free facility. Hubby eats them. I have eaten a few. I have diabetes....dang, so consuming the whole package is not going to happen. Consuming any cookies is not a good option for me. My gluten-eating kid likes...
  24. cyclinglady
    Welcome to the forum! i think you are doing a fine job. The only obvious thing missing is time. It takes time to heal. Time to master the gluten free diet. TIme to learn about cross contamination. Time to figure out any other intolerances you might have (and those could just be temporary). That's it -- time. Only you and your doctor can...
  25. cyclinglady
    You can develop intolerances to just about anything. Most are just temporary and improve with intestinal healing. The creamers should be gluten free, but they are full of "junk". You could be reacting to any of the ingredients. Even though the creamers say dairy free, (lactose free), they still contain milk proteins (whey and casein). You could be reacting...
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