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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Tiny red blood cells may be related to Thalassemia (a genetic anemia which can produce minor symptoms in many cases). I have Thals and had iron-deficiency anemia. Was never an issue until I could not keep up with my iron stores (due to celiac disease and menopause) and my normal hemoglobin levels (which are always slightly below range) dropped very low...
  2. cyclinglady
    You can maintain a shared kitchen, it just takes planning and some rules. My kitchen was shared for 12 years until I was diagnosed and I previously controlled the kitchen. There is just the three of us, so two against one won. It is nice to have a safe place to relax. You will figure out what works best for you. Our daughter was 12 when I was...
  3. cyclinglady
    Congrats, Ennis! Looks like you are doing a great job remaining gluten free. I can not give you an opinion about the endoscopy. I have no clue what would look good or not.
  4. cyclinglady
    DH is not as common and we have fewer members. I can recommend that you ask your GP for a celiac screening and then a referral to a dermatologist who knows how to biopsy for DH. Then keep reading through the DH section for tips and suggestions. There is a very specific way to obtain a biopsy. Keep eating gluten because all celiac disease/DH testing requires...
  5. cyclinglady
    Great advice given.....I would follow it. But the good news is that as you heal, you might find that you can now eat dairy! Yep! Wait until you feel better and then try yogurt or hard cheeses (less lactose in those items). Of course, you might be lactose intolerant genetically, but let's hope not.
  6. cyclinglady
    I am no doctor, but your iron and HB seem great! Why do you want an iron IV? Did you know that too much iron can cause serious illness? No medical doctor is going to give you iron if your lab results are normal. I was iron deficient. My ferritin was a two. It is a 55 now and I feel great. I have low body temps too. That is part of being...
  7. cyclinglady
    So sorry to hear that you were glutened. It happens to the best of us! I cope by eating well-cooked, easy-to-digest foods (think crockpot) like soups and stews. While I am feeding my family gluten-free, I am eating my mushy food! I am fine as long as I don't eat, but I have to eat. I also found (have been glutened twice as measured by follow-up...
  8. cyclinglady
    Sella, Maybe you have something else going on. Can you get your celiac antibodies re-checked or another endoscopy? It might help rule out that celiac disease is causing your symptoms for sure. Then you can look at other things. In any case, dairy is safe for all celiacs who have basically healed. There are some exceptions. Some folks who...
  9. cyclinglady
    Just curious. I am sure you said before, but why are you avoiding dairy? Not celiac related, right?
  10. cyclinglady
    Hope you feel better soon! Say, you should be dining at Gourmet Girls Girls on Oracle. Open for dinners now. Also you can get breakfast and lunch at Dedicated located on Speedway. We eat there each time we are in town. Both are 100% gluten free! Dedicated has Challah bread baked on Fridays. It goes fast!
  11. cyclinglady
    I use Gabriel lipstick too. It is certified gluten free. Red Apple is also certified gluten free (available online). I am sure that there are other mainstream companies who manufacture lipstick that is gluten free, but the ingredient list is too tiny for me to read! ? My foundation is gluten free -- just a simple mineral foundation (I am kind of big...
  12. cyclinglady
    Hey, be careful about the chiropractor. Nothing against them (hubby used them for shoulder issues and used our old doctor's chiro), but if you have not been tested for osteoporosis or osteopenia, I would not let anyone manipulate my back. Just my personal-non-medical opinion. Two months after my celiac disease diagnosis, I fractured two vertebrae doing...
  13. cyclinglady
    I can not help answer your questions (my own rib and hip pain was a result of osteoporosis and occurred when trying to sleep on my sides), but I recently listened/watched this webinar: Open Original Shared Link Several top celiac doctors (Fasano, Guandalini) spoke. Interesting. I listen to all kinds of weird things when ironing, etc!
  14. cyclinglady
    Victoria, I have not gone in these tours, but would love to try them. Why? Very little thinking or planning required. Ah, you could really relax! Maybe when our daughter is out of high school. Our next few summers are AP classes, band and sport camps! We'll be lucky to camp at the beach on a weekend. Oh, never count on the airlines to provide...
  15. cyclinglady
    We were in Poland with my entire family (parents, siblings, spouses and grandkids) this past summer. We actually visited with family in Tarnow. But while in Krakow, hubby and I ate at Pod Baranem on our own. We sent our gluten-eating kid with the rest of the family to dine at other restaurants on the square. On the last night, we took her with us. We...
  16. cyclinglady
    I can not help with a recipe that is so restrictive, but I can provide some tips. Cross contamination is a huge issue. Use disposable pans. Line with parchment as gluten-free tends to stick. Have a clean oven. No wooden or old plastic. I think you get the picture. Read up on it. gluten-free bread does not need to do all the risings and kneading...
  17. cyclinglady

    ARCHIVED New Doctor - Austin Texas

    cyclinglady replied to TexasJen's topic in Doctors

    I think you GI has done a pretty good job (better than most). I got pretty much the same thing from my GI. However, I give him credit for finding celiac disease, when I went in for a routine colonoscopy and he saw that I had been anemic forever. I did not have intestinal issues. Coffee, dried beans (sorted and washed), and cheese are all safe food...
  18. cyclinglady
    It is possible to eat at a shared sandwich shop, but I would be concerned about a chain. For example, we eat at a family-owned sub shop in Alpharetta, Georgia. It has over 50 good ratings on "Find Me Gluten Free" , has a family member with celiac disease, their website talks about celiac disease, they have a completely dedicated area and do not share sandwich...
  19. cyclinglady
    That wouldn't have been Pod Baranem in Krakow, would it? We ate there three days in a row! They have an extensive gluten-free menu, plus have received many positive reviews from other celiacs.
  20. cyclinglady
    You should probably follow-up with your doctor and have your celiac antibodies checked, even if symptom free. They should be checked annually (more often if you are newly diagnosed). celiac disease symptoms can wax and wane. A blood test might help you figure out if you are truly gluten free while at work. Open Original Shared Link
  21. cyclinglady
    If you have celiac disease and remain on a gluten free diet, your ferritin levels should improve within a few months (intestinal healing = absorption of nutrients). How long have you been on the Armour? When where you last checked? Your thyroid should be checked every six weeks (Armour adjusted accordingly), until it is stable. Have you been following...
  22. cyclinglady
    Anti-TPO is for the thyroid. How are you treating it? Is your thyroid stable? In my case, when unstable, it impacted my other hormones. After a gluten-free diet of more than two years, my thyroid is no longer enlarged and I do not have nodules. Unfortunately, it is permanently damaged and I take thyroid replacement. A mainstream GI is not going...
  23. cyclinglady
    Karen is so sharp (and so early in the morning). My glutenings were tested four weeks after my exposure (had been on vacation and could not physically get into my GI). I was sure I had SIBO (so did my GI), but we ruled out celiac disease first with antibody testing. It was celiac disease. The first four weeks were awful, with no relief. Took a full three...
  24. cyclinglady
    Exactly what follow-up celiac tests were given? Because, I have never tested positive on the TTG --only the DGP. What if your GI is just ordering one and it is not registering as positive? Make sure he is ordering the complete panel. Here is a long shot. I swore that my young niece had celiac disease. But she did not. Her last GI gave her a pill...
  25. cyclinglady
    Hard to even guess without more information like: current BMI, age, calories consumed daily, how fast you are riding, etc.
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