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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Ask your doctor for a celiac antibodies panel. Determine if gluten is really the culprit for your heartburn. You should be tested annually as part of celiac disease follow-up care. Get your bones checked too. Silent celiac disease can do systemic damage. Open Original Shared Link
  2. cyclinglady
    I am sorry that you are ill. I can not imagine cheating on the gluten-free diet on purpose (or maybe I can....there are days.....). There is no easy cure, you just have to wait it out. Consider talking to your doctor about a gluten challenge. Perhaps a formal diagnosis (celiac disease or NCGI) might help you stick to the gluten-free diet since this...
  3. cyclinglady
    Sorry to hear about the flu. Let's face it. You are going to be "off" for a few weeks. My kid had it. She had fever for days and days. Took her over a week to feel better. The flu tends to hit our weakest areas. For us, it is our guts. For my Grandma, it was her lungs. Get well soon! Rest!
  4. cyclinglady
    People with celiac disease can have ONE or BOTH genes. Maybe your GI is not good at reading or understanding genetic celiac disease testing. Open Original Shared Link or this in more detail: Open Original Shared Link Maybe post the actual results? Exactly which celiac tests were positive? Easy to miss damaged areas of the small intestine...
  5. cyclinglady
    You know, I just bought some Tylenol tablets for my kid. I avoid taking anything because I seem to react (allergy/anaphylactic) to many medications (OTC: aspirin and ibuprofen) and it is NOT celiac related. But, I like to keep gluten-free meds on hand for my kid and my hubby (he must avoid gluten too). I asked my pharmacist to check the gluten free drug...
  6. cyclinglady
    Very significant! It means you must be a fast learner and willing to get well. It is so hard to learn new behaviors -- especially dietary ones. My PCP has two other celiac patients who do not follow the gluten free diet. It is their choice, but I choose to strive for wellness!
  7. cyclinglady
    So very happy for you!!!!!!! ??
  8. cyclinglady
    Lab result time? Depends on where you live. Mine took about a week. Yes, celiac disease can cause constant intestinal pain, but so can many things.
  9. cyclinglady
    Here are the tests: Open Original Shared Link Your Ped is wrong. Going gluten free should not be done until celiac disease has been ruled out. Going dairy free, in the meantime, may reduce her symptoms and will not impact celiac testing.
  10. cyclinglady
    Dang, back in my day....high school or college, the highest GPA you could get was a 4.0 whether you took a remedial class or honors. I guess it still bugs me that my youngest brother graduated from high school with a higher GPA than me (they went to a weighted system when he went to HS school) ?. Anyway, good luck to you. I disagree with your logic...
  11. cyclinglady
    Yummy! I buy gluten-free Bob's Red Mill rice porridge (hot cereal) and jazz it up for my family (sweet). I have not tried savory versions. I like that idea! I also like the idea of using whole rice to reduce cost. When my grandmother was a kid (1917), it was her job to prepare the oatmeal each night for the morning breakfast. The pot was...
  12. cyclinglady
    Nice to see that you are surfing the web and doing some research! It probably would be better if you read more creditable medical sites from leading celiac groups or research centers instead of bloggers who might be trying to sell you something. But the one you sited does contain some good facts. Did you happen to read her other article about how she regrets...
  13. cyclinglady
    Welcome. That test is just an IgA deficiency test, but it is not a celiac test. The IgA deficiency, in conjunction with the celiac: TTG IgA, DGP IgA, or EMA IgA, is used as a control test. It confirms that the three celiac tests actual work. Be sure to read "One more thing...." as it explains the IgA deficiency result would have to close to zero...
  14. cyclinglady
    I know....planning meals can be a drag sometimes. It can get you down. So, we are here to cheer you up. That crockpot? A lifesaver! For example, I just bough five chicken breasts on sale for $5. I plopped them into the crockpot. At the end of the day, I took off the meat from the rib bones and divided it. Saved the drippings after straining...
  15. cyclinglady
    Here are the tests. One piece of bread per day should be enough per the University of Chicago: Open Original Shared Link
  16. cyclinglady
    Wow! So happy for you. I am going to pass this on to my SIL who suffers from canker sores. Thanks!
  17. cyclinglady
    While the risk of developing lymphoma is RARE, it is a possibility and it has been documented. We just lost a forum member to Lymphoma. Really. She was real. I took the time to find her obituary. I was so sad. We all became so attached. Why did she get cancer? Well lots of reasons, but she was a little shop owner who sold guitars and taught lessons...
  18. cyclinglady
    I agree with your doctor that your specialist is an idiot. You have celiac disease. It just presents primarily in your skin. Remain gluten free! There is plenty of documentation to support what Karen posted. Open Original Shared Link Open Original Shared Link But...my niece was recently diagnosed with Crohn's (I was sure she had celiac...
  19. cyclinglady
    Congrats on the bike ride! Heard about the nice weather. My folks live in Northern Georgia. But it's raining now...... Yogurt and cheese have the least amount of lactose. You might try lactose free milk too. I found that handy a while. Keep a journal and take one day at a time. Happy healing!
  20. cyclinglady
    Welcome! Are you on a gluten free diet? If so, you will have to go back in gluten for 2 to 4 weeks prior to an endoscopy to obtain at least six tissue samples (biopsy). Ask to be sedated during the procedure. Bring all copies of previous lab work (even really old ones) and be prepared to provide a history. I have written a brief history and presented...
  21. cyclinglady
    Dr. A. Fasano (leading celiac researcher/GI afflicted with Harvard University/Mass General Hospital -- bio: Open Original Shared Link and his team discovered Zonulin a decade ago or so. They think that zonulin are the little gatekeepers of the gut. You can read about it here: Open Original Shared Link Open Original Shared Link or...
  22. cyclinglady
    Hubby and I both eat Chobani all the time. No issues gluten issues at all. But we are pretty much healed. Skip the dairy for a week. If systems improve, then you know if lactose is an issue for you. Often this resolves with healing. But if you felt well for two weeks, you might be getting gluten into your diet somehow. Read all labels. When in doubt...
  23. cyclinglady
    If you were diagnosed with celiac disease, when was the last time your GI ran a celiac antibodies test? That might help you determine if you are actually gluten-free dietary compliant and not dealing with hidden gluten or cross contamination. If you are NC Gluten Intolerant....a bit harder to determine. In that case keep a food journal. Have you considered...
  24. cyclinglady
    Just want to add that Costa Coffee has a good gluten-free chicken wrap and gluten-free brownies (chocolate cake). Nice to grab a snack near a subway station or on the highway. We actually stayed in a few Bed and Breakfast Inns that catered to celiacs! Our farm stay was fabulous. Our daughter loved it.
  25. cyclinglady
    I use Pamela's because it uses guar gum instead of Xanthan Gum. For some WEIRD reason my body doesn't like Xanthan gum even after all these years!!! ?
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