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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Ah, the good news is that you can recover from osteopenia at your age (I am old...already have had fractures, but have been holding steady). Do weight bearing exercise and eat well to build up before you get pregnant. You should not be hungry. Eat! Eat fat! It will satiate you. Guess what? My skin is no longer dry. No cracked heels. All those...
  2. cyclinglady
    Great advice!
  3. cyclinglady
    Jasmine, I kind of got side tracked. Most likely from travel on my brain. I just returned from visiting with family. Drove our RV packed with gluten-free food. Stayed at my Aunt's house. I just went into my RV and prepared my own food. I love my RV! I also went alone....so I just took care of me. Hubby and daughter stayed home. What a treat...
  4. cyclinglady
    My advice is is always get and retain copies of all lab tests. Keep notes on doctor visits and outcomes. I have kept 20 years of records. My new doctors love it. I also put a family medical history (first names only) for my extended family. It has helped so many!
  5. cyclinglady
    Sounds like you have a great plan. Do treat your daughter to some gluten-free goodies once healed. It can be lonely not be able to eat cake at a birthday party. We eat mostly Whole Foods (ugh, spell check....not the store!) but I keep goodies in the freezer Freddy for a party. I make them myself. Travel? Car, plane? We do both. At my parent...
  6. cyclinglady
    I just want to add -- exercise. It can help you not only physically, but mentally too. It has helped me with insomnia.
  7. cyclinglady
    I firmly believe in "leaky gut". Even Dr. A. Fasano, a leading celiac researcher (Ped GI) at Harvard/MA General discovered Zonulin which may be contributing to leaky gut. But.....that is as far as science has gone. There is so much we do not know yet. You should consider a celiac retest. Ask for the entire panel. Why? I am one of...
  8. cyclinglady
    I think a gluten free household could make a huge difference in your daughter's health, especially with other small children around. Your other children (and you and hubby) should be tested before going gluten free. My kid eats gluten. She just consumes it outside the house (usually at school).
  9. cyclinglady
    I am sorry to hear about your UC diagnosis, but at least you know what it is. Now you can move forward and treat it (sounds like what you have been doing has helped immensely). Hugs!
  10. cyclinglady
    I know nothing about bubble (boba) tea except mixes are used (processed) and whole tapioca is added. There are many stores around my house which are owned by Koreans. Nice people, but they do not have much exposure or knowledge about celiac disease in my personal experience. You know that "deer in the headlights" look when you ask about gluten. My gluten...
  11. cyclinglady
    I am glad your experience this time was much better! ?
  12. cyclinglady
    I would not assume it is the medication after one dose. Thyroid "medication" for hypothyroid is not really a med, but a hormone replacement. You can take too much (or if a celiac, start to finally absorb the hormone replacement properly), and then you will experience hyper symptoms instead of hypo. If your thyroid panel indicates that you are hypo, a...
  13. cyclinglady
    True, the Gluten Dude does seems to get glutened a lot! I read his website because it is amusing. I do not consider him to be an expert at all. I only stated that he seems to have backed off endorsing the NIMA sensor. I just observed that his attorneys most likely advised him not to give a firm opinion on the product (liability issues). I do consider...
  14. cyclinglady
    One dose? What is the dosage mg (amount/size)? It takes a few days for the body to absorb thyroid replacement -- often a few weeks. That is why lab tests are ordered six weeks after a dosage change. It can take that long for a body to adjust to a new dosage. Other things to consider....don't you have a cold? Are you on any other medication?...
  15. cyclinglady
    We eat Lara Bars all the time. Never glutened. Just simple ingredients. I keep them in my purse always. I use them on bike rides too. Great for traveling.
  16. cyclinglady
    What? You have been drinking regular Heineken for five years and have not caused intestinal damage? Has this been backed up with antibody testing and a repeat endoscopy? Celiac disease symptoms can wax and wane (change). Just because you may be symptom free, you can still be doing intestinal damage. All celiacs should be checked annually for this reason...
  17. cyclinglady
    I hope you feel better soon!
  18. cyclinglady
    Welcome! Here is a reputable website that discusses celiac testing which first begins with a blood test: Open Original Shared Link I can tell you that celiac disease is found at the microscopic level. Most often there is no visual damage seen during the endoscopy. I personally had none and had to wait for my biopsy results from the pathologist...
  19. cyclinglady
    If you do react, it might just be due to a damaged gut. So, don't blame Angry Orchard! I could not drink alcohol for a while until my gut healed. Now, no problems!
  20. cyclinglady
    Welcome! I am sorry that your daughter has been sick. I am a celiac who tested negative to everything but the DGP IgA too. I have Hashimoto's thyroiditis as well (another autoimmune disorder commonly with celiac disease). Better yet, I have a 16 year old who hates needles for good reason -- they can never access her veins! She has not tested positive...
  21. cyclinglady
    Well....you are not alone! This is a great online community. We are here to offer tips, support and just a shoulder to cry on. I am not a college student anymore, but I can offer some tips. Read our "Newbie 101" thread located at the top of the "Coping section". I do hang out at a lake house with tons of family members who eat gluten. I keep...
  22. cyclinglady
    Celiacs, when diagnosed, have typically sustained substantial intestinal damage. Not only are the villi damaged, causing malabsorption, but the whole immune system is compromised. Science has shown that a majority of the immune system resides in the gut. If you get a chance watch this video. The speaker is a leading celiac researcher: So...
  23. cyclinglady
    Did you know that 10% of celiacs test seronegative? Yep. So, you can not rule out celiac disease yet! Open Original Shared Link Probably, trying the gluten-free diet for the next six months to a year is your best bet. Your symptoms should improve, but note that neurological symptoms seem to take the longest to resolve. There are other...
  24. cyclinglady
    We buy OreIra.
  25. cyclinglady
    Well back in 2015, Columbia University found that many probiotics (they were recommending them to their celiac disease patients and wondering why they were not getting well) contained gluten: Open Original Shared Link Your current symptoms could be related to gluten. I know personally, my symptoms have changed each time I have been glutened. The...
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