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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Okay. You do not have a celiac diagnosis. The gene test can help rule out celiac disease but it is not the normal diagnostic tests. I guess your plan was to go gluten free to help your thyroid issues. I have seen that on the internet. Who knows? It may help. Autoimmune (e.g. celiac, MS, RA, Hashi's) can take time for a flare-up to subside...
  2. cyclinglady
    I am confused. Exactly what tests did you have to determine you have an autoimmune problem? What were the results? Your doctor said that you had a chance of developing celiac disease because of the gene test or did you have a positive on one of the tests on the celiac blood panel? -- Celiac gene test -- Celiac antibody panel -- TTG IgA and...
  3. cyclinglady
    Squirmingitch is right. You need to consume gluten daily for 8 to 12 weeks prior to getting re-tested. Our house is gluten free (hubby and I). I do buy pre-packaged gluten-containing foods for my kid's lunch. She does not eat gluten in the house or car. She's just been tested once since my diagnosis. Before she's retested, I would need to increase...
  4. cyclinglady
    You bet! My main symptom at the time of my diagnosis was anemia. No tummy issues at all. I knew that I had issues with dairy, eggs, almonds, garlic and onions for most of my life, but if I avoided those, I was fine and had no tummy issues at all! I went in for a routine colonoscopy (yep, the over 50 club). During my consult with my new GI, he noted...
  5. cyclinglady
    I pack hot leftovers in my kid's thermos (flask) all the time for her school lunches. Just pre-heat the flask with hot water and dump before putting the food in. Our thermos keeps food hot for four to six hours.
  6. cyclinglady
    Keep on researching! Another mis-informed doctor! Gluten Free in DC has given you the blood tests because just villi damage (hope they took at least four biopsies of the small intestine and were looking for celiac disease) can be attributed to many things (like parasites, SIBO, allergies). So, the blood test is part of the total diagnostic package. Read...
  7. cyclinglady
    If your doctor suspected that you had a gluten intolerance, he really should have tested you for celiac disease before recommending you go on a gluten free diet. It can take months to YEARS to heal from all the damage that celiac disease can do. Staying on a gluten free diet is hard (but doable) when you are not really sure you have celiac disease. Now...
  8. cyclinglady
    It can take months to several years to recover from celiac disease. Is there a reason why you had the gene test and not the antibodies test? The gene tests just tells you if you have the chance of developing celiac disease. About 35 to 40 percent of the population has the gene but on a tiny fraction go on to develop celiac disease. Doctors use the gene...
  9. cyclinglady
    Get some celiac travel cards to print off and keep in your wallet. Present them to your waiter. Open Original Shared Link Tell the airline that you need a gluten free meal, BUT take food with you because odds are the airlines will make a mistake. As far as the wheat pasta.....some folks say the wheat is different. I personally think they...
  10. cyclinglady
    It looks like you have a few options that you need to consider pursuing: 1. Get back to your doctor and tell him to figure out what's wrong with you. Take a friend because it helps to have someone listen and take notes who is not the patient. Get copies of all lab reports and doctor notes always and keep a file on yourself to share with future doctors...
  11. cyclinglady
    Try keeping a food and symptom diary. She could have allergies or intolerances. But, again, I am not a doctor! I am healed from celiac disease, but I still react to certain foods and have allergies. Those will probably never go away as I have been plagued with them all my life (as my siblings have too). She could have a milk protein intolerance and...
  12. cyclinglady
    Let me tell you that based on what people post on this forum, it takes MUCH longer to heal. In theory, it should just take a few week on a gluten diet to promote villi healing. Your body is constantly regenerating new cells in your gut on a daily basis. Why the delay? First, it takes a long time to really master the gluten free diet. So, in the...
  13. cyclinglady
    Your best bet is to contact the manufacturer (as Squirmingitch suggested). My doctor has no time to worry about medication containing gluten. My pharmacist admitted that she does not have the time to help me, but recommended that I take responsibility and always contact the manufacturer. My pharmacist did help by insuring that my thyroid replacement...
  14. cyclinglady
    Hey, do you have to be a member of Medscape to see the article? I could not get in pass the sign-in page.
  15. cyclinglady
    Ugh! Run from that doctor. Are you located on Mars? Kidding aside, here's the deal. If you go gluten free just to test it out and you feel good, then you might think you have a gluten issue. A few months or a year go by and you realize that this is HARD. REALLY HARD. So, you start to cheat. You get sloppy. You start sharing a toaster. Your symptoms...
  16. cyclinglady
    Well, you are no longer anemic, so that's great! As long as you are healed, you should be able to absorb iron easily. Of course, there could be other issues that would prevent you from absorbing iron as villi damage can occur from many things other than celiac disease. Want to know for sure where you stand? Ask your doctor to check your iron and...
  17. cyclinglady
    That's a bummer! I just bought some Crunchmaster gluten-free Rice Crackers at Costco (Toasted Sesame and Artisan Four Cheese) for my hubby. There is no soy in those. Of course, there's garlic and onion....which is not good for me but you might like them. I am sure they are also available at many other retailers (Just not a large box with a relatively...
  18. cyclinglady
    Your GI is sadly mis-informed! You should be tested for Celiac Disease before embarking on a gluten free diet. Celiac Disease should be ruled out first! So many doctors think that you have to be malnourished and wasting away to have celiac disease -- not true! You can develop celiac disease at ANY age. Do you have any other autoimmune disorders? Celiac...
  19. cyclinglady
    Hey, happy to see your posting, Fenrir. I hope you are doing well!
  20. cyclinglady
    Well, you do not HAVE to get tested, but since Celiac Disease is genetic and you have kiddos, you should seriously consider the pros and cons. Take for instance, my hubby. He went gluten-free over 15 years ago per the very poor advice of his GP and my allergist. "Try giving up wheat and see how you feel." Well, it worked. No more sinus infections...
  21. cyclinglady
    So interesting! Please keep us posted!
  22. cyclinglady
    SugarCube, I saw your other posting today. I can not believe that I missed your original posting! Maybe I was doing something super fun that week (oh, my parents were visiting!). Your celiac blood panel was positive and you had intestinal damage that was caused by both celiac disease and Giardia? After treating the Giardia, your CD resolved...
  23. cyclinglady
    Remember, celiac disease is an autoimmune disorder like lupus, MS or R. Arthritis except the trigger for a flare-up is known -- gluten. Unfortunately, no one knows what causes lupus or MS to flare-up (lots of theories, but no definitive answers). For some celiacs, a flare-up is just a day or so. For others a week or months! I can vouch for months! My...
  24. cyclinglady
    Happy to hear that!
  25. cyclinglady
    Welcome! How does your doctor interpret your results? You obviously have intestinal damage, but that can be attributed to many things. Open Original Shared Link There are celiacs who do not test positive on the antibodies tests (you only need one positive out of the panel). (I had a positive DGP Iga test and the rest were negative, yet my...
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