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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    I tested positve to only the DGP IGa and yet biopsies revealed a Marsh Stage IIIB (moderate to severe intestinal villi damage. Even when glutened and with follow-up testing, I still test this way. Try to research more. Good Luck!
  2. cyclinglady
    You are in good hands at the University of Chicago!
  3. cyclinglady
    Here is a recipe for Royal icing. Open Original Shared Link You can purchase the powdered sugar in bulk at Costco or Smart and Final. Make sure each batch is wrapped tightly as it dries out and hardens like mortar (as needed to glue the house together). It will keep in the refrigerator. I also recommend the pasteurized eggs because of the classroom...
  4. cyclinglady
    I am not a doctor, it yes, it appears that you are IGA deficient. In terms of diagnosing celiac disease, that means that the IGA celiac tests that were run would be invalid. Your doctor would need to run the IGG versions (hopefully he ran them all or you have to go back in for another draw). So, if you get a negative on the celiac IGA tests (TTg and...
  5. cyclinglady
    If you do not get a response (I do not use sprinkles), consider jelly bellies, raisins, nuts, chopped peppermint, colored coarse sugar (you can do yourself), etc. But here is my concern. As a person with celiac disease, I bake gluten-free in my gluten-free house using gluten-free dedicated bowls, pans, potholders, etc. I do attend cookie making...
  6. cyclinglady
    We use Trident. I am sure there are other gum manufacturers. I recall that all Trident Gum is gluten free, so I purchase that brand because other brands might have a few products where gluten is involved. Who has time to think in the grocery line? Not me. I am exhausted (not really) from reading labels once I get in line.
  7. cyclinglady
    My daughter did that project. She does not have celiac disease and it was before my diagnosis. It was a mess in the classroom. I would make sure your child's desk is separate from the rest (lots of teachers group desks into "tables"). The crackers and cookies were everywhere and there was only one sink in the classroom. And parents were there to help...
  8. cyclinglady
    Welcome Jodi! Keep us postd on your results. I hope you find answers to your health problems! ?
  9. cyclinglady
    That's weird! Gluten can be burned off a grille or the inside of an oven but the temperature has to be very high (e.g. Oven cleaning cycle). At those temps, your pizza would burn up! I think you have been lucky. Not worth the risk for me. Make your own pizza! ?
  10. cyclinglady
    Here is the list: -Tissue Transglutaminase (tTG) IgA and (tTG) IgG -Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG -EMA IgA -total serum IgA and IgG (control tests) -AGA IGA and AGA IgG - older and less reliable tests largely replaced by the DGP tests -endoscopic...
  11. cyclinglady
    Aren't any of your doctors able to recommend a GI doctor? I know you are trying to find a cheaper endoscopy, but if it were me, I would pay the $2k even if I had to get a second job or borrow from family and friends. But only you can make that decision since you know your financial circumstances. You had two positives on the celiac panel. Getting the...
  12. cyclinglady
    Have you had follow-up celiac disease testing to make sure you are diet compliant? You may think you are gluten-free, but you might be getting glutened. There was the study in Boston where they tested probiotics and found that almost 75% of them contained gluten (Google to check that percentage, but it was very high!). I only take gluten-free certified...
  13. cyclinglady
    Cheryl, I am sorry that you feel snubbed! It has been a little slow lately and that seems to be the nature of forums! Folks get busy or well! Anyway, I do not have any expertise on genetic testing or DH (celiac disease rash), so that is why I did not respond. I do know that if you look through the DH section, it can be more difficult to diagnose...
  14. cyclinglady
    Thanks! I am not sure I would eat anything there at all except for a drink (my humble opinion!)
  15. cyclinglady
    The IGA deficiency test is just a control test to see if the IgA tests (TTG, DGP) are valid. Otherwise your doctor would have to run the IgG versions. It is hard to say, but since you had been gluten free for so long I think the tests are invalid despite your attempt at a gluten challenge. You might just have to go gluten free without a formal diagnosis...
  16. cyclinglady
    Welcome to the club you never wanted to join! I am not a doctor, but you appear to have celiac disease. The next step is an endoscopy to obtain four to six tissue samples (biopsy). Keep eating gluten until all testing is complete! Research, research, research! Get prepared to go gluten free and soon your tummy will not be ?!
  17. cyclinglady
    Any autoimmune can flare up or calm down and that includes lupus. I would send an email requesting lab testing prior to your going. It is worth a shot and I always do it. Save time and it is documented.
  18. cyclinglady
    Sorry, , in my haste to get my kid to school I forgot that the Electric Company shut down our power for line repair today. Spent the day at the Mall ? I would create another posting and in the title reach out to fellow Canadians. It will get you a faster response. Our NVSMOM is a terrific source but she is homeschooling and coaching and I can imagine...
  19. cyclinglady
    Welcome! How fortunate that your daughter's celiac was caught early. I am not a doctor, but I would bet that the GI did not take enough tissue samples or he did not take them at the recommended locations. ? Make sure that she is consuming gluten prior to that next biopsy (4 weeks daily) if you decide to go forward with that procedure. It is such...
  20. cyclinglady
    Winter! I am sorry that your posting was overlooked! Thanksgiving holidays here in the States made things pretty slow. I am getting a kid off to school but will respond later. I think you have celiac disease. I understand the long wait times in Canada for a GI and I bet that only they can run a full celiac panel (I tested postive barely yet...
  21. cyclinglady
    Great advice! ?
  22. cyclinglady
    Nope, I still have trouble with Xanthan gum after being gluten-free for three years. Funny thing is that my gluten-free hubby has no issues with it at all. So, I use guar gum instead when baking and do not eat commercial gluten-free bread and things that contain this product. If I recall, it is corn -based. I know I do not have a corn intolerance.
  23. cyclinglady
    Yes, even a tiny exposure to gluten can cause a flare-up. I understand that this spice is usually diluted with wheat flour. It is best to contact the manufacturer or find a certified gluten free source.
  24. cyclinglady
    Lab ranges would be helpful as they vary from lab to lab. The rediculin tests are not recommended anymore for celiac disease. Read here: Open Original Shared Link These are the current tests: -Tissue Transglutaminase (tTG) IgA and (tTG) IgG -Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG -EMA IgA ...
  25. cyclinglady
    Were you not able to get a celiac blood test? The saliva test is not even accepted by celiac experts. It can be difficult to adhere to the diet if you are not confident about your diagnosis. Depending on the amount of damage, healing can take months to years for a celiac. Flowerqueen offered excellent advice! Eating whole foods and avoiding processed...
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