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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Are you sure you had an entire celiac panel? This includes: -tTG IgA and tTG IgG -DGP IgA and DGP IgG -EMA IgA -total serum IgA and IgG (control test) -AGA IGA and AGA IgG - older and less reliable tests largely replace by the DGP tests (Source: NVSMOM -- ) In my case my ttg tests were negative. Weird, huh? Only the DPG IGA was mildly positive...
  2. cyclinglady
    Research it yourself. You do have to be eating gluten. I thought the blood test was drawn the day of your biopsy. Sorry! Good catch Squirmingitch!
  3. cyclinglady
    Welcome! Other things can cause intestinal villi damage. Look at this link put out by the University of Chicago: Open Original Shared Link The blood tests (make sure the entire panel was ordered) will solidify a diagnosis.
  4. cyclinglady
    I do not know about Brach's jelly beans or other brands. Just the Jelly Bellys.
  5. cyclinglady
    Welcome! Please go to the University of Chicago's celiac website to get currnet information about celiac disease. You HAVE to be consuming gluten or blood tests will be invalid. So, do not go gluten free yet! I know you went to TJ's and bought some gluten-free stuff, but set it aside in case the doctor wants to test you for celiac disease. Best...
  6. cyclinglady
    We toured the JellyBelly Factory up near San Francisco a few years ago. The actual line is dedicated to the beans, but there is wheat used for other products used within the facility. Nothing even remotely close to the bean line. I think Costco states that it is made in a shared facilty. We buy the Costco version (much cheaper) and pass them off as Bertie...
  7. cyclinglady
    Sorry, you are sick! Maybe a parasite or bacteria from all those raw veggies? A virus? I can perhaps see why you have lost weight. Are you getting enough fat? I am on a lower carb diet (get my carbs from veggies), but eat lots of fat. I choose the fattest meats, eat skin, lots of coconut oil, olive oil, avocado, and butter. Keeps my blood...
  8. cyclinglady
    On the FIND ME GLUTEN FREE site, read the reviews. Find the ones written by celiacs or NCGIs. Often it is just a gluten-free dieter who posts a review and is not concerned about cross contamination. Better yet, write reviews when you get a chance and help others who must seriously avoid gluten!
  9. cyclinglady
    I think it is a personal choice. If you are a newbie, I would avoid eating out. Each "glutening" will cause an autoimmune flare-up that can last for days or weeks which can set you back on path to healing. Later, you can experiment more when you think the risk is worth it. At over two years in, I rarely eat out. Unfortunately, there are no close...
  10. cyclinglady
    Anxiety levels can run high when you are either undiagnosed or just diagnosed! I blamed it on menopause, but a lot of it was from celiac disease. Talk to my hubby and he will tell you that I am normal again (thanks to gluten-free and hormone replacement ) Just wash your hands when you get home from the store to protect you from gluten and germs! Take...
  11. cyclinglady
    I think your doctor is misguided! I have never heard of such a thing. Testing again in 3 months to see if your antibodies have gone down (for diagnosis) is crazy because many folks continue to have elevated antibodies for over a year simply because that is how their body is or they maybe getting exposure to gluten. Plus, the learning curve in avoiding...
  12. cyclinglady
    I had a hard time digesting quinoa when I was first diagnosed, but I was not getting glutened -- my damaged gut could not handle it. . Give it some time and then retest.
  13. cyclinglady
    Get to your GYN for an exam. You could have an ovarian cyst, fibroid tumor or thyroid issue that is completely unrelated to celiac disease. Take care!
  14. cyclinglady
    Ah, you have so many positives on your test that you can bet you have celiac disease. . But the good news is that you can start to feel better soon! Keep eating gluten until your endoscopy. Make sure they take up to six samples. Some folks choose not to have the endoscopy for various reasons (financial, long wait times, etc.) but if you can (sounds...
  15. cyclinglady
    My hubby got that same advice, "Go gluten free and see if it helps," 14 years ago by two MDs. He did and in about a year, he was feeling great. Autoimmune disorders run on his side (Hashi's and MS) so we think he has celiac disease. But does he have Celiac Disease? For sure? I got my diagnosis two years ago and hubby will tell you that I get way more...
  16. cyclinglady
    I can not help you since I do not live in Texas, but we have hosted students from Europe and Japan many times. It is such a rewarding experience, plus we have made life-long friends!
  17. cyclinglady
    Your hubby needs to get serious! I was shocked at my diagnosis because my husband had been gluten free for 12 years (never tested/bad advice from two doctors). We maintain a gluten-free house. The kid gets her gluten fixes outside of the house. Some households can be mixed but you need safe areas to prepare food and he needs to brush his teeth before...
  18. cyclinglady
    I have Hashi's and I believe that Celiac Disease contributed to my wild swings from hypo to hyper (and back and forth) the three years before my celiac disease diagnosis. My thyroid has calmed down. It is not even enlarged anymore and my nodules are gone. Going gluten free has reduced all that inflammation and has calmed my thyroid. So, yes, your...
  19. cyclinglady
    I had life-long anemia which was attributed to 1) my being a woman and 2) a genetic anemia which was masking iron-deficiency anemia related to celiac disease which was caught finally during a routine consult for a colonoscopy (Yep, over 50!). Two months in to my diagnosis, I broke some vertabrae doing nothing. That's when I was diagnosed with osteoporosis...
  20. cyclinglady
    Oh, don't forget In n Out! Ask for gluten allergy. Their fries are safe! They'll cook your burger on the back grille to prevent cross contamination and wrap it in lettuce.
  21. cyclinglady
    Here is a link to their website: Open Original Shared Link Again, worth the drive. Have lunch and load up on baked goods to freeze. It is on Oricle just north of River on the north side of town.
  22. cyclinglady
    In Tucson? Gourmet Girls go Gluten Free. 100% gluten free! Worth a drive from Phoenix to pick up their bakery bread and freeze it! Tucson Tamales has a wide selection of gluten-free items too.
  23. cyclinglady
    A biopsy will confirm if you have celiac disease, but you have to be eating gluten for at least four weeks prior to the procedure (8 to 12 weeks for the blood test). I would suggest getting copies of your blood test. Chances are you did not get the complete panel and you can now request the complete one. Another positive result would be helpful as some...
  24. cyclinglady
    Sorry, that you have been sick! I would first look for hidden sources of gluten (meds, eating out, etc.) and then figure out if you have food intolerances. Those attacks do sound like they could be gallbladder attacks. Perhaps not stones, but a non-functioning gallbladder. A HIDA scan would be needed. An ultrasound will only catch stones. Something...
  25. cyclinglady
    Besides an iron-deficiency anemia, has other anemias been ruled out? You can have more than one type.
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