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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Kid testing is important as celiac disease can impact their development. Better to be safe than sorry.
  2. cyclinglady
    Glad to see you back. Nice to hear that you are improving. Just typing on a tablet is a pain. I hate the auto correct!
  3. cyclinglady
    I add a blob of refined (no taste) coconut oil to my coffee for extra calories.
  4. cyclinglady
    Try increasing your fats (avocado, olive oil, coconut oil, meat and fish fats, etc.) for added calories.
  5. cyclinglady
    I tested my daughter (was recommended by my GI and research supports) and encouraged all 1st-degree relatives to get tested. Our GP ordered the entire celiac panel and checked for anemia as well with no resistance! celiac disease is an autoimmune disorder, as you know. It was first discovered in kids, but it can develop at any time.
  6. cyclinglady
    Are you still deciding whether or not to go gluten free?
  7. cyclinglady
    That food journal? Keep in mind that your transit time may be off for days. I had a BM everyday, but my transit time was three days long. What you eat today may not be processed for days and your reaction might be delayed as a result. Honestly, supplements (excluding probiotic or enzymes) can be be hard to digest for the first few months.
  8. cyclinglady
    Really? Listen to your MIL? Ha! Please direct her to the U of Chicago's celiac website (link above)! She needs to do some some research! Listen to your GP and eat a gluten-free donut. There are some frozen ones out there that are pretty good (once you have "forgotten the taste of a gluten-containing one!)
  9. cyclinglady
    No problem. You will find that the old veterans on this site often know more than most doctors. Many attend all the U.S. celiac conferences and attend lectures featuring the leading researchers in celiac disease. We can only offer opinions as we are not medical doctors and diagnosing via the internet would be irresponsible! The one thing we do know...
  10. cyclinglady
    You should continue to eat gluten until all testing is complete. The decision for the endoscopy is up to you. Most doctored prefer it. The biopsies can show the amount of damage and check for cancer (rare) and set a benchmark (for later biopsies if needed). On a personal note, my blood tests were barely positive but my biopsy showed moderate to severe...
  11. cyclinglady
    I have neuropathies which are slowly improving. I suspect they are related to celiac disease or blood glucose spikes (over 140). I would imagine your infections are related to celiac disease. My husband, who has been gluten free for 13 years, has not had a single sinus infection since then. He was plagued with sinus infections and horrible snoring (besides...
  12. cyclinglady
    Ivy, Based on your previous posts, I think you need to get tested for celiac disease. Print off a copy of testing requirements to share with your doctor here or find a reputable site in your country. Open Original Shared Link Anemia (low ferritin) was my only symptom when I went for a routine colonoscopy (yep, I am over 50). During my GI consult...
  13. cyclinglady
    With a positive blood test, she probably has Celiac Disease. The biopsy should confirm it. But even if the biopsy in inconclusive (think about it....the small intestine is vast), the next step would be diet. If she gets relief, then you have your answer. I know you are a RD, but here are some tips from from our "Coping" section: https://www.celiac.com...
  14. cyclinglady
    But why get it? I never have had the flu shot. I have had the flu once or twice in 20 years. My old doctor did not recommend them to me. Because you have had Lyme Disease, I would ask your doctor before getting the flu shot. I have no expertise in this area, but a red flag went up on when you mentioned that the Lyme Disease group was against it. Oh...
  15. cyclinglady
    You are new right? Your gut is a mess. It takes time to heal (up to 2 or 3 years). It is best to do whole foods, keep a food journal (help identify intolerances) and eliminate all milk products (damaged villi can not release the enzymes to digest things like milk lactose. Have you read the newbie section under "Coping"? https://www.celiac.com/forums...
  16. cyclinglady
    Good news! I am happy for you!
  17. cyclinglady
    My GI ran both the AGA tests along with others. I tested positive on only one of the AGA test and negative in the TTG which is the more popular of all the tests and most often given alone (unfortunately) to test for celiac disease. My biopsy was a Marsh Stage IIIB which is moderate to severe damage. My doc still uses it as part of the complete panel...
  18. cyclinglady
    Glutenings can last for days or weeks for celiacs. It can take years for complete healing and once off gluten, accidental glutenings can be severe. I think you need more time (lots of it). There is a steep learning curve so you are going to have mishaps (like taking a risk eating out and paying the price). It might not be related to gluten at all...
  19. cyclinglady
    Sounds like you need "Newbie 101", which is a thread under our coping section. It contains valuable tips. Here is the link: https://www.celiac.com/forums/topic/91878-newbie-info-101/
  20. cyclinglady
    Gene testing is not affected by what you eat (otherwise, your eye color would change all the time! ). Gene testing can help rule out celiac disease. Some 30 to 40 % of people carry genes that could trigger or turn into celiac disease. Most never get celiac disease. You must adhere to the diet 100% in order to get the health benefits if you seriously...
  21. cyclinglady
    Nah! I am fine. One spike will not kill me. Seriously, it is the spikes that are over 140 that lead to diabetic complications (like getting your foot chopped off or kidney failure). I test foods all the time. The best thing is for me to consume more fat, moderate protein and very little carbs -- less than 50 per day). I was hoping the article was...
  22. cyclinglady
    This is not true. Just tested plain white rice reheated from last night's dinner (for my kid). My meter hit 180 one hour later! My pre-meal test was 97 (had eaten a snack an hour prior that was low carb). Will test in another hour! I hope it comes down fast! The theory does not work on diabetics! Dang, I should have gone for a cupcake. Rice is not...
  23. cyclinglady
    Yes, it is possible, but I think (based on your earlier comments) that you eat lots of pasta dishes. That would be enough gluten, unless the pasta is not wheat-based. Still you did not get the computer celiac blood test panel. In any case, eat more veggies and fruit to gain weight. Make sure you are not getting any gluten (like kissing your boyfriend...
  24. cyclinglady
    Yes,I think you are on the right track. Based on your lab results (helps to have the lab ranges as each lab varies though), I would say that you have Celiac Disease. I had the biopsy because only one of my celiac disease blood tests was positive. I was "on the fence". Plus, I was scheduled for a routine colonoscopy anyway......and I need a firm diagnosis...
  25. cyclinglady
    I eventually narrowed my intolerance to store-bought bread and crackers to Xanthan gum. I switched to products using guar gum. I use Pamela's flour though I am sure there are others on the market. But I only bake cupcakes and cookies. I just gave up bread. I must say that my husband (gluten-free for 13 years) has never had an issue with commercial breads...
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