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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Welcome! Here is a place to start in our forum. https://www.celiac.com/forums/topic/91878-newbie-info-101/
  2. cyclinglady
    Hang in there! We know you are doing the best that you can! Are you taking care of yourself? I say this because moms tend to put their kids first before themselves (I am guilty!), but take an hour or so to take care of you! Read, have a cup of coffee or take a walk. Hugs to your daughter. Enjoy every second of her toddlerhood. Mine is 13 now....
  3. cyclinglady
    I use a roaster and they cook fast. If I recall, our 20 pound turkey took about two hours to cook. So, use a thermometer is my best advice. Cut to fit. I love my roaster! I use it on my back patio or in the garage . It frees up my oven for other foods on Thanksgiving. It is my summer oven. I use it to bake small batches of cookies or brownies...
  4. cyclinglady
    I think that enzymes can be necessary for some celiac patients -- and they work. My doctor recommended them but unfortunately for me, I am intolerant to papaya and pineapple (sources of many of the enzymes) so I can not take them. They make me sicker!
  5. cyclinglady
    The gold standard includes biopsies of the intestinal wall. However, some doctors will give a diagnosis based on the blood test and improvement on the gluten free diet. Others can not do the endoscopy due to financial reasons. A blood test alone with a first degree relative with a celiac disease diagnosis would be enough to convince a doctor to make a...
  6. cyclinglady
    Wow! I remember you! Your little one is still suffering? I would find another doctor ASAP and get a second opinion. Your daughter is growing and the first five years are critical to her development. Based on the blood tests alone (take in copies of all lab reports etc.) another doctor might give a diagnosis on just the blood test along. She has symptoms...
  7. cyclinglady
    Here is a link to the University of Chicago's celiac website. They are one of the leading celiac disease researchers. They state that you must continue to consume gluten until all testing is complete. Usually, an endoscopy is ordered (several biopsies taken) to confirm diagnosis. Open Original Shared Link Perhaps you can print and share with your...
  8. cyclinglady
    Congratulations! It appears that your body is no longer attacking your intestines but chances are your intestines need more time to heal. I am coming up to my two year anniversary and I am still struggling with some issues. But my anemia has resolved and my fractures have healed. I am eating some foods that I was not able to tolerate two years ago...
  9. cyclinglady
    It is often best to get the complete celiac panel (listed by NVSMOM) from a medical doctor. The tests you took are not recognized (to my knowledge) by the medical community. To verify testing requirements, visit the University of Chicago's celiac website (one of the leading authorities on celiac disease): Open Original Shared Link I wish you well!
  10. cyclinglady
    You think you have been gluten free, but really? Here is Newbie 101, a link to thread in this forum. It offers tips and discuses cross contamination. You may be getting gluten, but not enough to raise antibodies to show on a blood test (assuming you took the complete celiac blood panel). https://www.celiac.com/forums/topic/91878-newbie-info-101/ My...
  11. cyclinglady
    Comparable article, different author (Jefferson Adams) same original source as published on Celiac.com on 4/3/2014 https://www.celiac.com/articles/23606/1/Is-Roundup-by-Monsanto-Behind-Skyrocketing-Celiac-Disease/Page1.html
  12. cyclinglady
    It is the mother's responsibility to provide safe (gluten free) food for her child. But....think how overwhelmed she must be, especially if the diagnosis is new. Eating gluten free is doable, but giving up the freedom to eat whenever and wherever is very hard. No more quick fast food stops or easy ordering at your favorite restaurant. It is exhausting...
  13. cyclinglady
    A celiac friend posted this on Facebook yesterday. But did you read the attached/linked studies?
  14. cyclinglady
    I am glad that you are seeking help. It would be nice if your MD could check your nutritional levels before prescribing medication though as we all know that celiac disease can affect the brain. Hope you are feeling better soon.
  15. cyclinglady
    First, can you get your antibodies re-checked for antibodies -- just to rule out cross contamination? Then ask to have B-12 or folate levels checked. Those deficiencies are very common in celiacs and have been linked to depression, etc.
  16. cyclinglady
    Ha, Ha! Those were the pots my SIL had.....did I say had?
  17. cyclinglady
    My SIL had a set back in the 90's and they cooked horribly! It may be one reason you do not find them around anymore. But in a pinch, you can use them if they have been passed on to you. Clean them well. Enjoy your soup!
  18. cyclinglady
    I would return it. Get a cast iron, porcelain one. I have a Lodge. They have been making cast iron pans in TN forever! You can find them at Marshall's (or similar store). Can go right into the oven. Cheaper than a Le Creuset Dutch oven. It will last you a lifetime.
  19. cyclinglady
    You just might have celiac disease. Only one way to know for sure is to get tested. Here are the tests to ask for: Complete Celiac Blood Panel tTG IgA and tTG IgG DGP IgA and DGP IgG EMA IgA total serum IgA - a control test AGA IgA and AGA IgG - less reliable older tests endoscopic biopsy - make sure at least 6 samples are taken Good luck! Keep...
  20. cyclinglady
    If the results are positive, there is no need to do the genetic test.
  21. cyclinglady
    The only way to know for sure if you have celiac disease is to get tested. There is no way to guess if you have celiac disease as there are over 300 symptoms that overlap with many other diseases. Complete Celiac Blood Panel tTG IgA and tTG IgG DGP IgA and DGP IgG EMA IgA total serum IgA - a control test AGA IgA and AGA IgG - less reliable older...
  22. cyclinglady
    When we had one celiac in the house (hubby), we allowed gluten but I controlled EVERYTHING in the kitchen. When I was diagnosed (and my gluten-consuming kid became old enough to cook), we went completely gluten free. She takes gluten items to school (mini packs of cookies, croissants that I bag,etc.). She can not consume them in the house. She washes...
  23. cyclinglady
    you know that saying, "if mamma ain't happy, ain't nobody happy?" Ha! Ha! Frieze.....and so true!
  24. cyclinglady
    What about sublingual vitamins (dissolve under the tongue)? I take Vitamin b-12 that way.
  25. cyclinglady
    I keep one stashed in the car at all times. They were great on our vacation too.
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