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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Thanks for keeping us posted and I hope everything goes well!
  2. cyclinglady
    No charcoal. It is given for poisoning and drug overdoes depending on what was ingested. it is not going to stop the autoimmune process though.
  3. cyclinglady
    Colleen is right about the other possibilities. Like Rosaea, they really do not know the cause. You could ask your doctor for Nystatin (anti-fungal). You need a prescription for it though, it is very safe to I jest. It is typically used for thrush. OTC? It is a long shot, but what about garlic? A few smears may even keep vampires at bay!
  4. cyclinglady
    I have always kept flour in the freezer. It can last for years and years. Not sure about all the gluten free flours for the exact freezer life, but I am assuming it is the same or similar to wheat flour. I love glass to store, but I keep my flours in plastic sealed bins in my garage freezer. That freezer (on my third one) is invaluable!
  5. cyclinglady
    Start slowly, adding one vitamin at a time. You are still new and I bet your intestines are not healed completely yet. My old retired doc often advised slowly building the amounts of supplements or meds that I needed. Think about when you add food back in after the stomach flu or abdominal surgery. You chose foods that are easy to digest and work...
  6. cyclinglady
    How long have you been gluten free? I eat TJ's canned salmon all the time (breakfast) and have never been glutened. It is packed in the USA. Maybe you have an intolerance to fish or a histamine issue. Dried plums have natural sulfites and many folks have an intolerance to those. When healing it is best to consume fresh or frozen whole foods until...
  7. cyclinglady
    Have you read our Newbie 101 thread on coping? Here is a direct link: https://www.celiac.com/forums/topic/91878-newbie-info-101/ I am sorry that your daughter is not feeling well. She will improve but it takes time. For a younger person, perhaps a few months, but it has taken me almost two years to feel well and I am old. I would eliminate all...
  8. cyclinglady
    I think you will be okay!
  9. cyclinglady
    What kind of vitamin B complex are you taking? Is it already methylated? From what I read, some folks are not good at this process. For example, the best Vitamin B-12 is methycobalamin instead of the more common colbalamin that is found in vitamins and added to processed foods.
  10. cyclinglady
    I had many intolerances and allergies identified long before my celiac disease dx. I did find that I reacted to Xanthan Gum after my dx though. And I finally began to feel great when I went on a low carb high fat diet for diabetes. I am completely grain free (I eat to my meter). You might just consider eating fresh fish, meat, poultry, veggies grown above...
  11. cyclinglady
    Autoimmune disorders do seem to run together. If you do have celiac disease, it can take up to three years to resolve symptoms. A few weeks, normally does not make a huge difference in symptom reduction. The choice is yours, but going gluten free for those with celiac disease or Non-celiac Gluten Intolerance is a lifelong commitment. Without biopsy...
  12. cyclinglady
    Sorry that you are unwell! But until all testing is complete, you should continue to consume gluten! Here is a link to the University of Chicago's celiac website regarding testing (and so you are not just getting information from a layperson on a forum....): Open Original Shared Link The blood test you had was only part of the celiac blood panel. ...
  13. cyclinglady
    Well, she did not get a complete celiac panel, so celiac disease can not be ruled out. I tested negative to those two tests and if my GI had not ordered the complete celiac panel, I would have remained undiagnosed. Here are testing requirements per the University's of Chicago's celiac website (a leading celiac disease research facility): Open Original...
  14. cyclinglady
    I brought Lara bars in my luggage and other food that we picked up in the UK before our departure. No one bothered us. I would not take on produce -- just packaged items in your checked luggage. Eat a big breakfast on port days (no room service and note their scrambled eggs have gluten in them, so ask for fresh scrambled). Check out local port grocery...
  15. cyclinglady
    I cruised RC this past summer (Baltic Sea). Hubby and I took our own food, supplemented with fruit from the cruise ship on port days. Even with the gluten-free language cards, we were not able to dine at restaurants. Just our luck maybe. We ate when we got back to the ship. Our headwaiter made sure we had gluten-free foods to eat at the coffee shop when...
  16. cyclinglady
    Well, do not freak out about the nodules. Mine were discovered about 20 years ago and have not increased in size. Thanks for the update!
  17. cyclinglady
    Karen did welcome you to the club....but we are not doctors here. Just folks who have been there and done that! Genetic testing in my opinion is not important at this point. Get in to see a GI doctor and one that has had celiac patients! Once all testing is complete, then you can go gluten free. We are here to help! No need to be alarmed. The good...
  18. cyclinglady
    The next step is usually an endoscopy to obtain intestinal biopsies. The rule is that you should be eating gluten until all testing is complete. You should not need another blood test so soon. Sounds like your doctor is not knowledgeable. You may need to have another six months later to see if you are diet compliant. Here is a link regarding celiac...
  19. cyclinglady
    I say elope and go for the house! That is what we are telling our daughter. Besides, I am the fourth generation only daughter to be married by the Justice of the Peace! My daughter would be the fifth! Just our parents and siblings attended the wedding. We had lunch afterwards. After our Honeymoon to the East Coast for Fall Foliage (funded by frequent...
  20. cyclinglady
    How nice that you went gluten free for Christmas to support your adult children! My Mom does not go to that extent, but all meals are served gluten free. I keep a box of cooking things in a bin at her house. We mange to stay at my parent's home for six to eight weeks a year safely. It was tough learning curve for us at the beginning and my extended family...
  21. cyclinglady
    I agree! But I brought half the food to both Christmas events. I set up the buffet, separated the gluten free items and never left the kitchen. Then the celiacs always go first and we NEVER go back for seconds. I do keep some extra food in our ice chest to snack on if we failed to take enough. Most of the time I host all parties so it was nice not...
  22. cyclinglady
    So sorry that you were glutened. It happened to my cousin while we were visiting. Both she and her mom are gluten free (like hubby and me) but my Aunt bought some salad dressing that was not gluten free but looked like the previous bottle she had purchased. My poor cousin got pretty sick. Luckily she was the only one to try that flavor. Always check...
  23. cyclinglady
    Merry Christmas!
  24. cyclinglady
    I did read them and I completely understand your frustration. We are self-employed and pay $24,000 per year for our health insurance premium and that does not include co-pays, etc! But I am thankful to even have insurance! Just know that it takes time to heal. A lot of time. There is a huge learning curve, but it can be done. You can get well...
  25. cyclinglady
    You have done the research. Print everything off and present it to him in a nice way......
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