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blmoreschi

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Everything posted by blmoreschi

  1. blmoreschi
    We are 2+ years post diagnosis, and I rarely go on this forum anymore because "we've got this". But I wanted to share that I noticed the articles about the non-responsiveness of kids with Celiac to the Hep B vaccine. I mentioned it to our doctor at Children's Hospital of Philadelphia, and he had never heard of it. I sent him links to the article and his response...
  2. blmoreschi
    We went to a Pret A Manger while visiting Chicago over the holidays. I had done my research for my daughter and THOUGHT I knew what to do. But nothing was labeled (unlike I had read it was) so I asked the manager for a list of their gluten free items. He told me that they don't provide it anymore, and have removed all gluten-free labeling from their products...
  3. blmoreschi
    I guess every kid is different. My daughter was diagnosed in April 2013 at age 11. We immediately went entirely gluten free - our entire household. Her initial TtG was 99 on the scale where <4 is normal. She was retested 6 months later and it was down to 6. We just got results yesterday from a bloodtest this week, and she's <1. (we were doing a blood...
  4. blmoreschi
    That's a tough one! My daughter is a year younger, so we're not there yet. So, I really don't have any advice except good luck. It's a tough age. My daughter also doesn't like to be singled out (won't eat her food we pack for her and chooses to go hungry instead in group situations ).
  5. blmoreschi
    I recommend getting one of the product guide books, such as Cecilia's Marketplace, to help you navigate the grocery store at the beginning. It helps you figure out which barbeque sauce is okay, etc. I referred to it constantly at first but haven't opened it in months now. I can't seem to put in the link, but you can just google it and order online.
  6. blmoreschi
    Prior to diagnosis, one of our best ways to get a somewhat decent breakfast into our daughter was a Carnation Instant Breakfast. In our search to find a replacement for that, I ordered a product from VitaCost.com called Spiru-Tein for kids only (not sure on that spelling). I thought it was a perfectly suitable replacement, but our Miss Particular didn't agree...
  7. blmoreschi
    Mellow Mushroom pizza! We ate there last summer as we passed through town and loved it. I don't know exactly where it is in relation to where you are staying, but it wasn't far from World of Coke. They have a disclaimer at the bottom of their menu, but do have a separate prep area, etc. We have eaten at another one and have had great luck.
  8. blmoreschi
    We went gluten-free last April due to my daughter's celiac diagnosis, and I, too, was very confused about the flour blends. It seems that every cookbook I bought or checked out of the library called for something different. My suggestion is to find a book you like and go with that blend to start - either a purchased one they recommend or one you blend yourself...
  9. blmoreschi
    My 11 year old lost 5 pounds in a month when she was healthy - not even a cold. And no noticeable change in appetite. That was Dec 2012, and she was diagnosed with Celiac in April 2013. I had 3 different doctors tell me the weight loss was no big deal, and they all had to do some major backtracking when it turned out she had Celiac. She didn't have any GI...
  10. blmoreschi

    ARCHIVED Chipotle's

    blmoreschi replied to StacyA's topic in Gluten-Free Restaurants

    Chipotle is our favorite now. We always ask them to get fresh lettuce and cheese bins out for my daughter's burrito bowl, which they do. All locations change their gloves, and we've been to one who changed spoons. I don't insist on the spoon change because I'm not sure it matters. At some restaurants we really have to watch them to make sure they don't hand...
  11. blmoreschi
    I thought the TtG was supposed to be under 20, not 4? No matter which is right, you must be doing a great job to get it down that much in 6 months! And I don't think the oats would affect that if they are gluten-free oats. I think some Celiacs just can't tolerate oats, but they do not have gluten in them and so therefore should not affect the tTG number...
  12. blmoreschi
    I've been reading the advice about dancing on pointe with great interest. My 11 year old celiac daughter with Osteoporosis (-3.4 in her spine, -2.8 in her hip, so pretty severe) is a dancer and all the doctors have said that dancing is the absolute best exercise for her to help build her bone density. She has been gluten-free 9 months now. She does take lots...
  13. blmoreschi
    My 11 year old has Osteoporosis from undiagnosed Celiac. She also has mild scoliosis, which is being watched very closely because of her low bone density. So in that sense, I think it is related. Her bones are very thin and the doctors seem to think that is reason to watch for the scoliosis more.
  14. blmoreschi
    Osteoporosis is also what led to my 11 year old daughter's Celiac diagnosis last April. After 6 months gluten-free, her TtG was down to 6 (previously 99) and we presume that her gut is healing well. I have, belatedly, decided to put her on probiotics, too, based on all my reading. Her bone density did not show any improvement in 6 months. Because she is pre...
  15. blmoreschi
    We were on the road New Year's Eve, traveling from Chicago back to home in Virginia. We were (successfully) outrunning the storm and just went as far as Indianapolis. We decided to get carry-out from PF Chang's and eat in our hotel room so the kids could watch all the Ryan Seacrest shows. I ordered online from my phone and we ordered all gluten-free items...
  16. blmoreschi
    I just want to share my enthusiasm about a new book called Gluten Free On A Shoestring Bakes Bread. The recipes are wonderful and the dough is like REAL dough!! It was so thrilling to me to have company for dinner today and share bread that no one would ever know was gluten-free (except, of course, I have to open my big mouth because I'm so proud of my loaf...
  17. blmoreschi
    Whine away! I'm with you. We're 9 months into our gluten-free life, and it is "mostly" easy now. But sometimes I get really sad thinking that my Celiac daughter (age 11) will have to cope with this for the rest of her life. I know, it's not leukemia, it's not something terminal......but it still sucks. This is the right place to whine - no one else will want...
  18. blmoreschi
    I'm not sure how old your daughter is, but that can certainly make a difference in your tactics! My 11 year old, who was losing weight before her diagnosis, has been steadily gaining ever since. She is very active physically (she's a dancer) and I really notice that makes a difference in her appetite. She still doesn't eat much on those rare days we're at...
  19. blmoreschi
    Wow, our 11 year old daughters sound very similar with their bone age delay! I definitely would encourage you to ask for a DEXA scan to check her bone density. We have been convinced by multiple doctors that it is very important to address her low bone density before she starts that big pre-pubertal growth spurt. I am also not at all upset by the delay in...
  20. blmoreschi
    My daughter was diagnosed at age 11 last April. I think it is kind of a hard age, because they know what they're missing (as opposed to being a toddler or baby). And it's also an increasingly social age, so that is a challenge, too. I found the clear it all out at once and go gluten-free right away approach to work best for us. We kept some gluteny cereal...
  21. blmoreschi
    I can't remember how many kids attended - maybe 75? I know they have room for more than they had. My daughter says that they were spread from ages 6 and 7 up to high school. There were multiple groups in the 10-11-12 age group but the rest were pretty evenly dispersed. They did lots of different activities. Off the top of my head, there was a climbing...
  22. blmoreschi
    I think I can give you some good perspective on this! My 11 year old was diagnosed in mid-April - about 2 weeks after we signed her up to go to the same church camp she had been to the two previous years, and this time her best friend was going with her. All of her tears when she was first diagnosed were about camp and whether she could still go. I called...
  23. blmoreschi
    I read somewhere to use frozen waffles, and we had one brand that my Celiac daughter didn't like at all that had just been taking up space in the freezer. So last week I put them in my mini food processor and voila! breadcrumbs. They were perfect and not sweet at all. Other than that, I do like others. I save the heels from Udi's or Canyon Bakehouse breads...
  24. blmoreschi
    Thanks - that's the simplified answer I was looking for!
  25. blmoreschi
    Thanks for that info. I'll check into it further!
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