Jump to content

kbtoyssni

Advanced Members
 View Profile  See their activity

  • Posts

    1,516

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by kbtoyssni

  1. kbtoyssni
    Good for you! I throw myself a party every year on my gluten-free anniversary. It's like a second birthday to me
  2. kbtoyssni
    I freeze all of my failed breadmaking attempts as well as yucky gluten-free bread I've purchased to use as bread crumbs for stuffing. It tastes fine once it's in stuffing form.
  3. kbtoyssni
    Many doctors see a positive biopsy as the "gold standard" diagnosis. So you doc may want you to get that test done. BUT you already have a positive diagnosis so it's not necessary to get a scope done. I would ask your doc if there's another reason to get a scope - sometimes a doc may want to look for other issues - but it's unlikely. Also, with being...
  4. kbtoyssni
    There's probably not a lot you can do. Which is so frustrating. It's hard to watch a family member harming themselves. The only things I can think of are to give her some information about how small amounts of CC can harm her and the long term help effects. At that point, she has all the info (from a neutral source, not from mom!) and can make her own...
  5. kbtoyssni
    I wouldn't cook anything with gluten. I understand that this might be upsetting to the family, but holidays should be able the people not about the food. Most of your old recipes can be made gluten-free. I substituted a gluten-free flour mix for the wheat flour and added 1/2 or 1 tsp xanthum gum to all my old recipes, and it's hard to tell the difference...
  6. kbtoyssni
    Why do you have to use a wheat flour mix? If it were me, I'd refuse. Practically anything can be made using gluten-free flours or wheat products can be store-bought already made or someone else can make the mix in their own kitchen (I do not allow wheat flour in my own kitchen). I can't think of a situation where it would be so important to use the wheat...
  7. kbtoyssni
    I'd look for a ROCK group in your area. The opportunity for him to hang out with other celiac kids would probably really help him realize that he's not the only one and that celiacs are still normal people. The school probably can't tell you if there are other food allergy kids around, but if they could even hanging out with a dairy allergy or peanut allergy...
  8. kbtoyssni
    It's pretty much pure gluten extracted from wheat. It's used a lot in vegetarian imitation meat to add protein. My first thought was "why is is getting all over the fridge?", but the fact it's not contained in anything would explain it. Try craigslist for a mini-fridge; you can probably get one on there for $20. And I do not think it's unreasonable...
  9. kbtoyssni
    I'm not familiar with that fair, but things that are usually ok are corn on the cob, baked potato not cut open, slushies, cotton candy. Not a lot I'm afraid. I bring my own food (with my doctors prescription saying I need to carry gluten-free food with me).
  10. kbtoyssni
    Thank you! For those who don't know, I was in full time grad school when I got very sick from celiac. I dropped out, figured out I had celiac and spent nine months living with my parents getting better. I then moved out, got a job, went back to grad school part time while working and finally finished my degree this past May. So it wasn't just about the...
  11. kbtoyssni
    Hmmm, not sure you can use it on a scholarship app. Might want to look into that one I see it more as my work/school/sporting events/etc have to provide reasonable accommodations for me to eat gluten-free food. Which means I need a little bit of time at lunch to prep my food - I can't just eat food that's brought in. I expect to be able to bring some...
  12. kbtoyssni
    Most Cadburys products in the UK are manufactured on the same equipment as wheat products so I don't eat them. Most in the USA are not, but I don't eat them because they taste different and for someone raised on english cadburys, I just can't eat them and therefore haven't done much research on the gluten content. Not sure about Australia.
  13. kbtoyssni
    I certainly cleaned my work desk at first. Once it's cleaned the first time, you're probably ok. If it were me, I'd bring my own food to mom's house to eat. Since you eat there at least once a week, I wouldn't want to take that risk.
  14. kbtoyssni
    I used to have this problem. I felt awful in the mornings, my stomach would always be upset, I'd throw up a lot. This lasted about a year and a half into me being gluten-free. And now I'm fine. Maybe it was just the healing process - I wasn't quite healed until a year and a half in. I would often get up, get ready, lie back down for 10-20 minutes, then...
  15. kbtoyssni
    I think the issue with cc in spoons and other kitchen items is that *some* people will react to those very low levels. Some will not, but I always recommend people replace those items because you never know if that's the 1 in 10 person who will get sick. It's not worth the risk to me. And a small amount of gluten from the pot and the spoon and the collender...
  16. kbtoyssni
    If you're just going for a cleaning it's not too hard. I ask about powderless gloves - most are these days. And I ask for plain pumice tooth cleaner rather than the stuff with flavour. I have no idea if the flavouring contains gluten, but plain pumice is certainly ok, and I like it better because I hated the flavours anyway. You could also check the brand...
  17. kbtoyssni

    ARCHIVED Very Scared

    kbtoyssni replied to Kylie's topic in Related Issues & Disorders

    Did he have a reason for telling you that you won't be able to get pregnant? Seems like he's just saying that because of past problems and not for an actual current reason.
  18. kbtoyssni

    ARCHIVED Poll

    kbtoyssni replied to Lux's topic in Coping with Celiac Disease

    About three weeks for me. One week of my stomach hurting, one week of joint/muscle pain, one week of being very tired and grumpy. Luckily none of these symptoms are very severe so I can still go about my normal life.
  19. kbtoyssni
    Almond Joys are definitely gluten-free. I eat them all the time. They are high in sugar, though, which sometimes makes me feel yucky. I think the other posters had some good ideas for other potential problem ingredients.
  20. kbtoyssni
    No, a colonoscopy won't show anything celiac-related. If you're itching for a diagnosis at this point, your best bet is probably the gene test. You won't have to go back on gluten for it. Of course, you may or may not have the known celiac genes. If you don't, I'm guessing you still won't start eating gluten so it's probably not worth it. EDIT: Actually...
  21. kbtoyssni
    Meat is much less renewable than veggies and grain. In our current factory farm system we must first grow grain and then feed the animals. About 10% of the energy the animals take in from grain is converted into edible meat. The other 90% is lost to bone, organ and hair growth. (Citation: The Omnivore's Dilemma) If humans ate veggies and grain directly...
  22. kbtoyssni
    I would at least do the blood test. It's pretty harmless, and with his family history I think it's a good idea. If he tests negative, I wouldn't make him go gluten-free (aside from him eating the already gluten-free family dinners). I'd just monitor his health. A blood test now could also serve as a baseline. If he gets tested again in a year and his...
  23. kbtoyssni
    I've never eaten at a restaurant up there. I go on a ski trip every year with 15-20 other people so we rent a house and do all our cooking there. I bring my own lunch to the ski hill. We do stop for dinner at the Perkins in Duluth, though. I also live in downtown Minneapolis. I've found that I've nearly stopped buying specialty gluten-free food and...
  24. kbtoyssni
    I wouldn't hang out in places with flour. Too risky! Seems like many people here have chemical sensitivities. We are a group of people with compromised immune systems who have been sick for years so maybe many of us have hit the point where we can no longer tolerate chemicals. As a group we're also more in-tune with our bodies and perhaps more aware...
  25. kbtoyssni
    Wanted to add that gluten is addictive to celiacs so the first few weeks of being gluten-free can be tough. But hang in there, it is worth it.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.