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kbtoyssni

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Everything posted by kbtoyssni

  1. kbtoyssni
    I also live in downtown Minneapolis. Welcome! A recent thread about doctors: https://www.celiac.com/gluten-free/index.php?showtopic=55010 I ended up seeing a different doc at the same place as Dr Torkelson's - Dr Jamie Feldman - and she was very good. No problems with my self-dx, and did lots of good celiac-specific followup tests. Asked some questions...
  2. kbtoyssni
    Probably depends on what you think the company culture is, but I would probably ask where you're going to lunch because you have some food allergies and like to check the menu before going to a restaurant. It's a tough one, though.
  3. kbtoyssni
    My first thought was you're probably addicted so after getting you "fix" of gluten you felt better.
  4. kbtoyssni
    I don't use software, but I have a shopping suggestion. My parents have a list they made in xcel that has all the common stuff they buy (like milk, eggs, bananas, canned veggies, etc) with lots of spaces to fill in the things they don't buy frequently. They just circle the common stuff if they need it and write in other things. The list is organized in...
  5. kbtoyssni
    Interesting. Do you know why this happens? I can't think of a reason why off the top.
  6. kbtoyssni
    I love it! It always makes me laugh when people get concerned that I'm eating gluten. Like the time I told my friends I'd be making them fondue for dinner and one of them feels the need to tell me that "um, you do realize that you dip bread in fondue... won't that make you sick?" As if I didn't know that and would accidentally use wheat bread!
  7. kbtoyssni
    So Celiac disease is like an allergy except the response the body has? In an allergy there would be a histamine reaction and in Celiac the body attacks itself? Am I getting that right? -Celiac is actually an autoimmune disease not an allergy so the body starts attacking itself when it sees gluten. No histamine reaction. Many refer to celiac as an allergy...
  8. kbtoyssni
    Pretty much my strategy, too. I don't allow gluten in my house. If you don't like it, you can stay in a hotel. It's my life and my health, and I need to feel comfortable and safe in my own home. With the limited English, maybe your husband needs to talk to them before they come for you.
  9. kbtoyssni
    Some questions to ask yourself: 1. What would you do if you got a positive diagnosis? Would it change anything in your life? 2. What would you do if you got a negative diagnosis (because a negative is likely after 5 months gluten-free)? Would you go back to eating gluten or not? 3. Are the answers to questions 1 & 2 worth going back on gluten for...
  10. kbtoyssni
    My favorite gluten free restaurant (and the only exclusively gluten-free restaurant I go to) is gluten-free, vegan (with the exception of one trout dish), and uses fresh, seasonal ingredients so the menu rotates. This type of restaurant appeals to celiacs, dairy-free people, vegetarians and vegans, people who like organic, seasonal food, and environmentalists...
  11. kbtoyssni
    It could also be that he has other food intolerances that are just starting to bother him now that his body isn't so overwhelmed dealing with gluten. I started to feel sick again about nine months after going gluten-free, and I realized it was peanuts. A food diary was really helpful in figuring that out.
  12. kbtoyssni
    Mild symptoms began at age 15. Major symptoms began at age 22. Self diagnosed at age 23.
  13. kbtoyssni
    Thank you! She's really close to where I live. I'm going to try her. I'll let you know how she is
  14. kbtoyssni
    I think she means there was gluten in the glue that holds the cigarette together. Some brands do contain gluten.
  15. kbtoyssni
    Yup, I used to see Dr Ronda Stellar at Shoreview Medical Clinic. I think she just got married and changed her last name, though.
  16. kbtoyssni
    If you do see a dietitian, I would recommend asking a few questions about his/her knowledge of celiac before making an appointment. There are some good ones out there, but most don't have a clue about what you can and cannot eat.
  17. kbtoyssni

    ARCHIVED New Gp In Minnapolis Needed

    kbtoyssni posted a topic in Doctors

    I used to have a fantastic GP who was very knowledgeable about celiac. I changed jobs a few months ago, and now she's on the wrong side of the city, and I can't get up there easily. Does anyone know of a good GP in the downtown Minneapolis or southwest metro areas? I just need a doctor who won't give me the evil eye about my self-diagnosis of celiac and...
  18. kbtoyssni
    Thai Kitchen makes some "ramen" noodles that I think are free of all the foods you mentioned. You just add water and microwave for two minutes so it's good for a hot meal when you don't have time to cook.
  19. kbtoyssni
    A perspective change is what helped me. I see going out to eat as a social event, not a food event. I'm there to hang out with people, not necessarily to eat. So I eat before I go or bring my own food (to fast foodish type places) or order weird stuff like a banana and some milk. And I go out to bars and often don't drink or I order a soda. I do a lot...
  20. kbtoyssni
    Yikes I'd be concerned about this since you can't supervise the restaurants. What about something like Pei Wei or Big Bowl where they can order buffet-style for everyone else and a single-serving individually packaged gluten-free meal for you?
  21. kbtoyssni
    What about school? What's the lunch situation like? Maybe he's getting CC from the tables or other kids. Does he move to a classroom where kids have eaten on the desks? Art class?
  22. kbtoyssni
    You can't count on drugs or other cures. You have no idea if this drug will pass clinical trials or if it will be as effective as researchers are hoping. You have a cure available to you right now. You can stop eating gluten. I know it's not easy, but it's an amazing, side-effect-free solution. I'm sure you know the long-term consequences of continuing...
  23. kbtoyssni
    I would definitely just give your doctor a call. I see my doctor in person once a year; everything else I do by phone and fax.
  24. kbtoyssni
    I seem to remember someone on here posting that they'd done it without anesthesia. They said it was uncomfortable and they wouldn't recommend it, but it didn't seem to be too awful. I remember them saying if you gag easily it would be hard to do it without anesthesia.
  25. kbtoyssni
    I see nothing wrong with feeding your kid gluten-free at home and sending her to school with gluten-free lunches, regardless of a diagnosis. Everyone eats differently. My mum never sent me to school with things like fruit snacks or chips, but that doesn't mean she was a bad mother and was "depriving" me. If your daughter is eating healthy food that she...
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