LauraTX

I saw these at sams club.... 2 pack for... 8 dollars I think.  Gonna have to go pick some up!

I have a friend who has difficulty sticking to things and being motivated, so she bought a fitbit to help with her weightloss goals and it sits on her dresser.  I would say that one of those may be worth it if you are already into activity, but if you tend to slack off on the exercise routine, it may just be an expensive paperweight.

I can't buy Jelly Belly's or I eat them all....I LOVE Jelly Belly's!!!!!

Amen to that!

Not to mention... Udi's pizza crusts are terrible!! I've been to pizza places where I trust their practices and they often used Against the Grain crusts (which are only for businesses... not individuals... to purchase). Those are awesome! Udi's... not so much.

You can buy against the grain crusts!!!  I have seen them at a few places... any Sprouts stores within reasonable distance to you?  Unless they have a version they only sell to restaurants... but I agree they are very good.  I am also not a fan of the Udi's crusts.  I think they'd be good for kids especially when you need to make them their own pizza.  But if I am going to get a pizza on a crappy Udi's crust and have to bake it myself... I am just going to buy the toppings myself and make it all at home.  I can see papa murphys being potentially do-able if you got them to do special treatment for you like getting everything out of containers in the back... but lots of places where it could go wrong.  I used to love that place pre-diagnosis.... /cry

Sorry to arrive to this thread late.  SMRI gave you some great info.  I have Celiac disease and also have Common Variable Immunodeficiency with IgG and IgA deficiencies and reduced vaccine response.  CVID and low immunoglobulin levels can cause false negatives in some Celiac blood tests, and false mild positives in biopsy samples for Celiac diagnosis.  You are very lucky to have a good doctor who checked the total immunoglobulin levels.  Get on in to the immunologist... as you have indicated an understanding of already, there are varying degrees of immune deficiency issues, so the immunologist will be able to determine what is going on, and then you can bring that information to the Celiac clinic so they know what they need to do to properly diagnose you.  Autoimmune disorders are prevalent in people with CVID.  Let us know what they say, I am always very interested in any other Celiac/CVID patient other than myself.

Jelly Belly jelly beans are gluten-free.  I periodically pick up some cherry ones as a treat for myself.  Looks like they are free of other stuff, too : Open Original Shared Link

Is there a definite answer out there for ceramic? 

For ceramic, I would say to just personally assess how porous it may be.  A nice intact glaze on it, you are probably okay.  Nooks and crannies or places where things can soak in and never get cleaned out well= toss.  

After I did my kitchen cleanout post-dx, I gave away all my nice stuff to friends, some older things to goodwill, and I still have a box of gluteny cookware in the garage somewhere... probably need to toss that.

Take some potatoes, slice them up thin, Oil them up and lay them out on a cookie sheet. Broil them for just a few minutes on each side. Kaboom french fries. If you are eating out and not getting sick, you may not be celiac. Eating out is a crap shoot at best. Save you french fry money and go to Las Vegas. At least you wont get sick. 

Without delving into the medical history of the OP, people can have Celiac disease with no symptoms with exposure to gluten.  The intestinal damage is still happening. I am one of them, and it is commonly referred to as a "Silent Celiac"... Open Original Shared Link.   That is why proper testing is so important to have when there are inconclusive symptoms.

The pizza crust is decent, makes a big pizza if you pat it out thin.  Not a neutral flavor to it, though... can't put my finger on what it is.  But if I am at the store trying to scrounge for dinner I will go for that sometimes.  Had the cookies once, but I like to make my own cookie dough... because I have an excuse to eat it...ROFL

CC at ice cream shops can be an issue, but as said above, if you are lucky enough to be able to talk them into washing a scooper for you and getting it from a new container, you will be better off.  Some ice cream places have soft serve and I usually get that at a local place I go to that is usually so busy there is no point in asking for special treatment.  Good luck!

It's funny, I just did a search for "tea" and it told me there were no results in the forums!  Go figure!

 

My husband have a huge HUGE tea stash at our house, all kind of brands and flavors.  I haven't had tea since my diagnosis but winter is coming.  What should I look for on the labels?  Any brands I should be especially wary of?  Where is the hidden gluten in tea?

When you search, go to the main forum page and search from there.  It will auto default to search within the topic you are currently viewing, so it can make things come up goofy.

I am sure it is possible for the cantina bowl with its gluten-free ingredients, to be prepared safely if the time and care was put in to it.  But the ability to be prepared safely in a standard taco bell kitchen... that is where the CC happens.  Same thing applies with the sausage thing.  While it is naturally gluten-free, they are probably using the utensils and their hands to make sausage biscuits and such, and because their kitchens are not set up to separate that ingredient to be gluten-free, CC happens.  There have been a lot of discussions here about safe eating when out of the house, feel free to use the search function and browse.  If you have any questions, feel free to ask.

Where are you going to put all of those.... down your hatch?  LOL

Open Original Shared Link

Firstly, overall, taco bell is not going to be the kind of place where a Celiac can safely eat and avoid CC.  I would avoid eating there.

Nachos on that list are shown as prepared in common equipment.  It may be the chips are fried in the same oil as their gluten containing items, which would make them definitely not gluten free.  Any items are going to be prepared on their small, busy prep line.  I am not aware of any information that the cantina bowls were made especially for those on a gluten free diet, let alone Celiacs.  They would have to make a lot of changes in the restaurants to make that happen safely.  

I have seen this as well.  I never could find anything on it, but I didn't try very hard since I had other options.  I know a few store brands, including Kroger, that say gluten-free on them.  Technically chicken broth should just be chicken+water, but I would rather be safe than sorry.  Have you emailed the companies yet? 

For frozen chicken breasts, I really like the ones that are individually wrapped and frozen, they usually come in a smaller box in the frozen aisle.  Seems to be the same size box for many store brands, and since they are wrapped they don't need an ice coating to protect them.  You may be able to find those if you keep an eye out.

Welcome to the forum!
 

I made your reply into a new post, so you can get more personalized conversation.  What brand of noodles did you eat?  It can take a long time for things to calm down after going gluten-free, so just stick to it and things should continue to improve overall.  Feel free to post any questions you need help with!

Hopefully the narrow list is just because they want to be certain, for now.  I saw their booth in one of the pics on a facebook post, and it had me wondering.  Perhaps they will get some more info out and the list will be larger, soon!

If you had mild symptoms from some possible CC... I predict Anal Armageddon if you go for that cake.... LOL.  (That is how we say "D" in our house...haha)  On the flip side, if you like rich chocolate cake, pick up a King Arthur Flour gluten-free cake mix, bake it, and top it with some home made chocolate ganache. (Just chocolate melted into cream, two ingredients, super easy and OMG delicious).  I have fed that cake to gluten eaters more than once and fooled them all.  Muahahahahahahhh!

I have never cheated.  I think it is natural to think about that cake or donut sometimes.  Humans are wired to always have the "grass is greener" thoughts, in a way.  For a while at the start I thought that maybe someday I would just go crazy eventually and eat the donut shop out of business, but now that I have really settled into the reality of life as a Celiac, the second I start salivating over something, I think about what would go bad.  I also think that if I ate that real pizza, all gluten-free pizza would taste even more like crap to me after I got that taste back into my mouth.  So, I don't want to ruin myself.

But yes, I do dream about gluteny donuts... 

As a person with multiple disabilities that can fall under the ADA, it is just easier to sometimes tell people what is going on and ask for their courtesy.   Then if that does not produce results, you can go up the chain, but usually at that point you are going to need to do official documentation and such, and that is a giant pain.

Yeah, that would work...............I only just discovered Five Guys last year after 20 years in the USA.........its not like I  go there much. I really don't eat much bread or really anything with gluten anyway, so the burgers were the 1st thing I thought of......LOL. I feel bad for my son, he doesn't eat well to begin with and pretty much everything he has has gluten. Understand he has down syndrome, autism, primary immunodeficiency, asthma, hypothyroidism and now celiac disease. We're hoping that the gluten free will really help with all those, especially his behavior. But at this point the poor kid (developmentally 4-5) just knows we're taking away ALL his favorite foods..........although my wife has already found some awesome alternatives its still very early days, only a couple of weeks for him and 24hours for me.........

 

Felix

I bring my own buns into places.  I just wait until after I get my food and then bring it out and no one ever notices.  Some people have had issues when they are obvious about it/ask them to put the bun on there for them instead of doing it themselves.  

I have common variable immunodeficiency and lupus along with Celiac, and many other secondary conditions.  My immunologist will go on long lectures about how important it is to to take care of all three, or none will be under control.  Because I want to retain what health I have remaining, I am 100% compliant with treatments, including my gluten-free diet, medications, and IVIG therapy.

For the kiddo, there have been many discussions in the past that may be helpful... search and there will be a lot there for you.  Trying to get things kids will eat is difficult and many here have gone through that.  It will take some time to adapt recipes and such, but after some time once he gets used to the new versions of his foods, it should become smoother, and will very likely help out some of his health issues.  If you have any other biological children, it is a good idea to get them screened as well in case one has Celiac cropping up yet still undetected.

If you are looking to cut costs of the gluten-free replacement foods, check out the King Arthur Flour gluten-free line I linked you to before... if you make stuff with recipes using just the flour and not mixes, it saves a good bit.  But sometimes when you are buying for just one person, the savings over buying premade stuff may not be a whole lot.

Also, LCHF is low carb, high fat.

I'd like to take this opportunity to point out that however heavy that burden is, there are plenty of us here who would willingly shoulder it.

Yay!  Can you be the person who eats the rest of the cake when I really want just one slice of delicious cake, but don't want the calories of the whole cake, but pretty much end up eating the whole thing over the course of a few days anyways?  

If you have the gene, you should let them know and encourage them to go get screening done.  Check out the following links:

Open Original Shared Link

Open Original Shared Link

I would probably wait until all your results are back so you can give them a full set of info.

You're welcome.  Do note that the tinkyada pasta, most of them are 1 pound bags.  A lot of gluten-free pastas are 2/3 that size, so check the price per ounce and it may not be as bad as it looks.  Walmart sells it, too, I want to say I usually buy it at whatever store for 3 something per package.  I may be wrong, though, I tend to just throw the gluten-free stuff in the basket and ignore the shelf tag for my own sanity, LOL!  

Celiac disease is a little bit more cut and dry than a diet to control diabetes.  If you have Celiac disease, gluten=bad.  Please read through the links the previous posters have provided for you, they put a lot of thought into digging them up for you, and the sources put great effort into putting that information out there.  Click around and read all the great information on the cureceliac website (U of Chicago Celiac Disease Center) and it may help you get a better understanding.  However, if you do not have the drive to properly care for yourself, no one can change that but you.  I understand the many challenges of life, some have more challenges than others, but you do need to be around to care for your kiddos.  No one on this forum is going to give you a free pass to cheat.

Facing a diagnosis of a permanent disease that changes the way you live your life is a grieving process, in a way.  Acceptance may take a long time, and you can try to bargain with yourself all you want, but that will not change the reality of the situation.  If you are having a problem with the motivation to take care of yourself properly, you may want to go speak with a counselor about that, it can help tremendously when you have a lot on your plate in life.  There are a lot of great, helpful resources and people on this forum, but unfortunately none are going to support noncompliance with a gluten-free diet.  If you choose to do what is actually needed to take care of yourself and eat gluten-free, we will be here to help.  

As karen said, that can definitely just be a preggo thing.  Of course, it wouldn't hurt to double check everything that is going into your mouth, and if you are really bothered by it, go see the doctor.  Always want to be cautious with a gluten-free bun in the oven