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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by deb-rn
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ARCHIVED anxiety, celiac, problems, doctors, i'm lost
deb-rn replied to Jm34's topic in Coping with Celiac Disease
Have you done a true eliminaton diet for 3-4 wks? You probably have more than just gluten affecting you. We did that and found several things that irritated my husband that he never realized! Tomatoes was a shocker! It's after you stop ALL the inflammatory foods, then add them back 1 at a time, that you really feel which ones are bothering you. He... -
ARCHIVED In so much pain
deb-rn replied to Lyndsey80's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Today I ordered a TENS unit to treat the pain below my waist. It's just getting terrible! I'll let you all know how it goes! I went to GYN hoping it was possibly something with the mesh... but he said no. Sitting, standing, lying... it all hurts! It wakes me up at night. I can tell there is some spasming at times. Maybe I'll increase my magnesium a... -
ARCHIVED In so much pain
deb-rn replied to Lyndsey80's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My anxiety decreased after going gluten free 3 yrs ago and has almost disappeared as we gave up grains, potatoes and most other carbs recently. Carbs trigger so many things! I did a bunch of medical research on it the past couple months. Sjogren's Disease can cause some of your symptoms too. I was diagnosed with it years ago... when you have 1 autoimmune... -
ARCHIVED A Christmas Story about GLUTEN
deb-rn replied to gluten-free girl 67's topic in Coping with Celiac Disease
I never eat at someone's house. I always bring my own food. If I decide to take a dish to pass, which I rarely do anymore, I can't bring it home anyway as it's been contaminated by a bunch of fingers or using the same spoon from another dish... etc. Learning all the code words for gluten such maltodextrin, modified food starch, etc is not something I can... -
ARCHIVED How quickly can you feel "glutened" \ all in the mind?
deb-rn replied to egs1707's topic in Coping with Celiac Disease
Explain the Frankincense please! Debbie -
ARCHIVED Someone trying to help
deb-rn replied to Justine123's topic in Introduce Yourself / Share Stuff
I was not fully tested, by choice, and don't know if I'm Celiac, nevertheless, I have no intention of eating gluten. I know I felt better immediately when I stopped eating it! My husband, out of necessity, went gluten free as well and found out he didn't tolerate it when overindulging at a restaurant some months later! Gluten is directly linked to 55 diseases... -
ARCHIVED So what's the dealio with dairy and gluten?
deb-rn replied to DrummerGirl231's topic in Food Intolerance & Leaky Gut
To have a negative effect from a food or anything really, you don't technically have to be "allergic" to it, just sensitive to it in a particular way. That sensitivity can manifest in different ways in different people. My husband had IBS for 55+ years. Going gluten-free with me helped, but until he went AIP, it was never really ended. Leaky Gut causes...- 25 replies
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- dairy sensitivity
- gluten in milk?
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Diagnosis has triggered health anxiety and I'm struggling
deb-rn replied to Fbmb's topic in Coping with Celiac Disease
My anxiety/depression has decreased greatly in recent years. I am over 3 yrs gluten-free now (I'm 59yrs old). I'm off all my medication. I never had the panic over health issues, though. I'm a recently retired nurse, so I have lots of stuff running around in my head too! Recently we have done the AIP lifestyle and found many things that triggered both... -
ARCHIVED Really fed up, and need some help
deb-rn replied to poorlypup87's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My initial blood test was negative, but I gave up gluten and felt better. The more I research, the more I learn. Gluten damages everyones gut.... always. Some people just don't trigger the horrible physical responses that some of us do. You probably have a few autoimmune diseases going on at once. You'll need to peel them away. Check out the AIP diet... -
ARCHIVED anxiety, celiac, problems, doctors, i'm lost
deb-rn replied to Jm34's topic in Coping with Celiac Disease
I just thought of another thing... MOLD. Mold toxins can mess up just about every system in the body, especially when you may have other autoimmunity problems! Mold can cause you to overract to other things and cause antibodies to overcome your system. Have you been diagnosed with Sjogren's? That was my first diagnosis. The Eye Dr. did the paper test... -
ARCHIVED Should I replace my barely-used tupperware?
deb-rn replied to DrummerGirl231's topic in Gluten-Free Recipes & Cooking Tips
I've been switching over to glass whenever possible for the past few years due to plastic breaking down and leaching chemicals in food... even BPA-free plastics. Anything acidic, like tomato products, vinegar bases, fruit juices etc, accelerate the breakdown. I still have to use plastic in the freezer for some things, but I try to avoid it and never, never...- 5 replies
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- de-gluten
- de-gluten kitchen
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ARCHIVED Gluten Stuffed Turkey. Is It Ok To Eat?
deb-rn replied to a topic in Coping with Celiac Disease
Since people may find this old post.... I wouldn't eat the turkey, personally. If I haven't specifically instructed the person cooking what I need, then I just bring my own food. After all, it's about the gathering of family and friends, right? Plus... you would need to know what brand the turkey was anyway, some are injected with gluten containing... -
ARCHIVED Dealing with Acne at 15 years.
deb-rn replied to Rogelio's topic in Introduce Yourself / Share Stuff
I've been doing a lot of study of medical literature lately. It seems there is an extremely high corrolation between acne, at any age, and dairy. Adults that had significant acne in their teens will find they do much better, overall, on a dairy free diet. I didn't specifically see any dairy in your diet, but maybe it's hiding in places you don't realize... -
ARCHIVED Help! Celiac with major stomach issues unknown reason
deb-rn replied to rattler03's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It just doesn't seem fair when you see people around you eating so much worse than you do and getting away with it! With every dietary change, the body has to learn to go without something. I've been reading lately that the food antibodies running around our bodies actually cause us to crave that particular food... kind of like the army is ready and wants... -
ARCHIVED Fibromyalgia and IBS symptoms
deb-rn replied to Pegleg84's topic in Related Issues & Disorders
I have lots of pain... all over... and it moves around. I've been diagnosed with chronic fatigue syndrome, fibromyalgia... and some others I can't remember! Pain is caused by inflammation... always. We have to decrease the inflammation in order to reduce the pain. I took Ibuprofen several times a day for decades... plus some prescription meds off and... -
ARCHIVED Gluten-Free Cookie ExchangesGluten-Free Cookie Exchanges
deb-rn replied to Scott Adams's topic in Publications & Publicity
Oh My Gosh! You're speaking my language. I just did some exhaustive studying about the damage carbohydrates do to your body! I was so convinced by the decades of research I found, that we went from gluten free/ dairy free/soy free to low carb/high fat/mod protein... no need to worry about gluten when you aren't eating packaged food anymore! We are just... -
ARCHIVED coffee mug rims source of contamination
deb-rn replied to rumberg's topic in Gluten-Free Recipes & Cooking Tips
We try to use glass whenever possible for storing leftovers now, in part due to the leaching of chemicals out of plastics... even BPA free.... plus the plastic holds in more bacteria, etc. I still have to use it for freezing some things, but I try to use as much glass as humanly possible. You especially don't want to put acidic things in plastic as the...- 12 replies
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- coffee cups
- glass scratches
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ARCHIVED anxiety, celiac, problems, doctors, i'm lost
deb-rn replied to Jm34's topic in Coping with Celiac Disease
You have a heavy burden. You've definitely gotten some good advice already. I had a negative blood test for gluten sensitivity, but had gone mostly gluten-free and didn't want to go back as I felt so sick on gluten. Over the past 3 yrs, more symptoms have popped up and I've eliminated 1 food after another. I have weight to lose as well. I have lost some... -
ARCHIVED Help! Celiac with major stomach issues unknown reason
deb-rn replied to rattler03's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
How long have you been gluten free? There are probably some toxins working their way out of your system. Fruits are probably not your friend right now due to high carbs. Stick with more protein, say fish and chicken and coconut oil... it's very healing for the gut. Eat green salads with plenty of olive oil & vinegar to soothe your inflammed gut. ... -
ARCHIVED Ate Gluten no instant reaction?
deb-rn replied to Htxkid's topic in Food Intolerance & Leaky Gut
Well, severe reactions do not always occur right after ingestion for everyone. You could look at it this way... you don't get lung cancer after the first cigarette, but we know there is a high corrolation and if you want to avoid lung cancer, it's best to avoid cigarettes! Debbie -
ARCHIVED coffee mug rims source of contamination
deb-rn replied to rumberg's topic in Gluten-Free Recipes & Cooking Tips
I got rid of all wooden things in my kitchen, and wiped down all surfaces that used to hold flour, etc. I wiped down the toaster oven good initially. Yep... it's the nurse in us! Debbie RN- 12 replies
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- coffee cups
- glass scratches
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As I just posted on another thread.... I have had some issues with various systems in my body for years. Doctors could never figure it out. Finally I went gluten-free and got some improvement. Removing 1 irritant often opens the door for the others to rear their ugly heads! I did an AIP protocol for 3 weeks and have noticed much improvement of the inflammatory...
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ARCHIVED Suffering from Celiac since birth, 25 now, married
deb-rn replied to Aakanksha's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You sound just like ME! Only I'm 59 yrs old! I gave up gluten over 3 yrs ago. Had stomach issues... figured it out myself, then had the test. It was negative. Biopsy was offered, I declined. I had already figured it out, I didn't need convincing! I got better for a while. Then I started feeling like I did before. The bloat was visible AND uncomfortable... -
ARCHIVED Relief! And it isn't Dapsone!
deb-rn replied to squirmingitch's topic in Dermatitis Herpetiformis
I have been doing a lot of reading and seminar watching lately. When we are sensitive to gluten(my blood test was negative), remove it and feel better, we think we have it nailed. I felt so much better immediately and lost 20#. Yet, I still have these nagging health problems like intermittent abdominal pain, joint pain, brain fog, neuropathies that come...- 47 replies
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- dermatitis herpetiformis
- dh
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ARCHIVED 9 months on gluten free diet and NOT OK !
deb-rn replied to gfpuddin's topic in Coping with Celiac Disease
I think when people "cheat" and say they don't have symptoms of "a little gluten" exposure, they are missing the larger picture. As we age, our bodies naturally work less efficiently than they used to. Now add in a gluten sensitivity which decreases our ability to process ALL food due to the damaged lining of the gut, and you have a gateway for all sorts...- 24 replies