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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    Hi Carla I got a notification to say that posterboy linked my thread with yours. Sorry for the delay - sometimes things don't end up in my email in tray. How are you doing? I do commiserate, having anything that affects one's breathing/swallowing is distressing and rather depressing. An update... To cut a long story short I took...
  2. cristiana
    Hi mnburis... just checking if you are still looking at these posts as I'd be interested if there have been any developments in your own circumstances? My own update on this thread is my ferritin is still low (9) but haemoglobin 15.5. I was caught between two doctors and one wanted me to supplement ferritin, the other didn't, and now I'm at 15.5 I've taken...
  3. cristiana
    Thank you so much for this. I've not heard about that plan so will look it up. I do need to try to eat better myself, and my TTG hasn't been so good since a holiday in France where there was a lot of cc. As I don't feel like eating vast amounts I think this will help immensely.
  4. cristiana
    Trents... that's such an interesting thought. In fact the theory about the irritation being near the epiglottis and mimicking the "I've to got cough this up" sensation makes so much sense. When I first coughed and spluttered over dry toast, strawberry juice and tomato ketchup, it was in that region of the upper throat, suggesting that's where the irritation...
  5. cristiana
    Trents, thanks so much for coming back to me. I'm panicking a bit over this so it's good to have someone to talk to! I agree, I think an endoscopy is important. I can't see my gastroenterologist until third week of November but hopefully having one by the end of the month will be OK. I saw something really worrying on a website about a tickle in the throat...
  6. cristiana
    This is so strange. I didn't have a bad day cough wise, until my meal just now. I'm only on day two of my Nexium trial so I guess it's early days yet. So I sat down to eat. Three or four mouthfuls in there was this terrible internal itch behind my sternum. It's like the tickle keeps moving south, I'm sure it started a bit further up when I first...
  7. cristiana
    H Thank you GFinDC. I must admit I don't take it but I am finding it a bit stressful not knowing exactly what is going on, so I can't think what it could be doing to my BP. I do wonder if globus hystericus is perhaps an issue as I find when I don't focus on it too much it's not as bad. Interesting I don't cough when I sleep.
  8. cristiana
    Hi Posterboy Thank you for this advice. I shall follow it through... that's very helpful. It's so interesting that the article says: "It is thought that it takes approximately 3 months for true GERD-related cough to improve because the nerves involved in the cough reflex take time to return to normal function." I feel that my nerves...
  9. cristiana
    I don't take this but I do wonder if a hot lemon drink, which you can buy here in the UK - brand name Lemsip, but I'm having the supermarket's own brand - can dry the mucus in the throat and make the cough worse, as it happens to contain a decongestant. I like the idea of taking zinc, esp. as you haven't had more than a sniffle since 2004. Thanks for...
  10. cristiana
    Hi Trents I get heartburn when I'm having a bad coeliac flare (cc) but that's always when my tum feels like it has battery acid in it, too. I haven't felt that bad for a while, thankfully. I've had two scopes, the last 18 months ago said it the esophagus and stomach were all normal but I guess there may have been damage since then. If this PPI trick...
  11. cristiana
    That's so interesting. Yes, I'd been drinking a lot of coffee (I don't normally) before it happened. I do hope you are right about catching it early. And yes... I'm sure there is a coughing urge that needs to be suppressed - almost like the nerves become over sensitive, and to top it all the brain is also there looking for trouble! Hyper vigilance strikes...
  12. cristiana
    Hi everyone A couple of weeks ago, two weeks on from a bad cold, I was eating toast with a dry mouth and it irritated my throat and it triggered off a coughing fit. Since then tomato ketchup and strawberry juice have had the same effect on two separate occasions. Since then I notice that I end up coughing during and after meals and I don't look...
  13. cristiana
    Just to add to this... I had a holiday in France this year. There certainly are some gluten free products available with the crossed grain symbol on them in the larger supermarkets, and even in the smaller supermarkets. However, I did not find the range as comprehensive as the range we have in the UK. I did not eat out while we were away - I rarely do...
  14. cristiana
    You are very welcome! I'm just sorry when Easter ends because it means I can't eat Dairy Milk for another year ... I just wish Cadburys would make all their Dairy Milk chocolate gluten-free, not just their eggs!
  15. cristiana
    I second oats. Pure oats still cause issues for me, six years on. I had my blood tested a couple of years ago and despite what I thought were my best efforts, I found my ttg was at 87. So I met with a nutritionalist who encouraged me to stop eating out. Also, I redoubled my efforts in only choosing food that appears in the Gluten Free directory that...
  16. cristiana
    Thanks for this cyclinglady. I'd forgotten that. I wonder how many coeliacs are beating themselves up about cc when in fact it has nothing to do with it. I've always had a suspicion that I'm not fighting just the one autoimmune issue.
  17. cristiana
    Have any of our lady members experienced this? I'd like to know more. A non-coeliac friend of mine has been experiencing this but I'm wondering how common it is. For myself, I do feel nauseous from time to time and wonder if actually it's hormonal rather than cc. It's too easy to blame everything on gluten! (Note: It's not actually being sick, just feeling...
  18. cristiana
    Although I was diagnosed in 2013, for some reason I fell through the system and my TTG levels were only tested again in November 2017. (At diagnosis they were higher than 100 but I never knew by how much). When I was tested again, my TTG levels were in the late 80s in November 2017. I was referred to a nutritionalist, made some changes at home and...
  19. cristiana
    A very good point of Whitepaw's. I meant to add this myself. I notice that when I have too much iron it affects this area and I too have pain that goes around to the back. Once I took too much iron in the morning and, seriously, the pressure around this area was immense. I thought I'd collapse with it!
  20. cristiana
    Hello again Deezer I do have varying levels of discomfort in the LUQ. I can go days and barely notice it. Other times when badly glutened it is burning, and at its very worse there is nausea and a bit of heartburn. Other times it is an ache, and a feeling of fullness. If it is getting bad I do resort to taking a minimum dose of rantidine OTC...
  21. cristiana
    Hi deezer I took a very short course of OTC Nexium Control 20mg. I was desperate - I felt as if my stomach was on fire with battery acid! I then tapered off with a course of a few Ranitidine tabs. I know there are a lot of warnings out there about such reflux meds but in my own case, I find that if I use them for a short while and taper them off very...
  22. cristiana
    Sorry cyclinglady - I realise your last question is not directed at me, but I should say to deezer that in April last year while I was still experiencing LUQ pain - epigastric area and ribs - I had biopsies of the stomach and duodenum and mine were clear.
  23. cristiana
    Hi! Yes, I get this when glutened. I didn't see the connection at first. Sometimes it feels almost like rib pain, a painful pressure on the underside of the left ribs. Other times it is there as well as just under my sternum. If you google epigastric pain that's kind of the area. It can be an ache or a burning sensation. Sometimes it goes to...
  24. cristiana
    It might also be worth looking at any medication that you are taking. I don't make regular use of it but sometimes I have to take reflux medication now and again after gluten exposure or when taking certain medication. I notice I get incredibly vivid dreams that are fairly disturbing if I take a ppi and go straight back to sleep. There is no effect...
  25. cristiana
    Hi! I have an umbilical hernia which feels similar to what you describe - always worse when I am bloated/have put on too much weight! I found cutting out dairy in the early days (apart from hard cheese, that didn't upset me) really cut down on the bloating. Hope you feel better soon. Cristiana
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