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sweetsailing

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by sweetsailing

  1. sweetsailing
    Definitely a change, but not as quick as you. I now can deadlift and squat 85 lbs and overhead lifting 35lbs. Still working to see what I am capable of. But 1.5 years ago when I went gluten free, I thought a 5 lb hand weight was heavy...
  2. sweetsailing
    I live in a major city and my non-health food grocery store also carries gluten free flours and items. However, there is no way I would buy my gluten free flour there. Their shelves are a mess and there is regular flour just above the gluten-free flours dripping it's gluten all over...I am happy they carry gluten free flour but they really need to change...
  3. sweetsailing
    Yes, I absolutely have had the same issues. 2 - 3 years of stuff breaking down. Severely torn glute, elbow tendonitis, knee tendonitis, neck and back issues, torn scalene muscle in my shoulder, torn calf muscle, torn proximal hamstring, etc...the list goes on and on. Most of these injuries were from very little cause or effort (i.e. 10 minutes on treadmill...
  4. sweetsailing
    I have never, like never, been a morning person by any stretch of the imagination. Now I have never had trouble sleeping, in fact, one could argue that I sleep too much! Since being gluten free for over a year now, I am suddenly becoming a morning person. I wake up spontaneously with the sun (no alarm clock) and I am refreshed and ready for the day. Literally...
  5. sweetsailing
    I had a very unusual blot clot in my right ovarian vein that was likely associated with celiac disease. First, it is very rare to get a blood clot in this location and those that do have either recently delivered a baby, or had a recent hysterectomy. I had neither. I was tested for every imagineable clotting disorder there is and nothing was found. There...
  6. sweetsailing
    I travel frequently for work and just got back from San Fransisco. Northern california is a gluten free haven. Many resturants are gluten free or have gluten free menus. Great food in the area. As far as airports and hotels, I have had luck finding stapes such as hard boiled eggs, fresh fruit (bananas, apples, etc), almonds, kind bars, and I have...
  7. sweetsailing
    For me, diarrhea (up to 9 times a day at the worse point), abdominal pain, bloating, lots of gas, stomach rumbling, light colored, foul, fatty and floating stools, elevated liver enzymes, osteopenia, weight loss, severe muscle and joint pain, nausea, fatigue, Low Vit D, multiple miscarriages, early menopause, numbness and tingling. And the weirdest symptoms...
  8. sweetsailing
    I agree with blessedmommy, if it doesn't make you feel good, don't eat it. I will likely never know definitively whether or not I have celiac disease however, I live as though I do, as there are enough factors for me that lean in that direction that it's rather unthinkable to eat gluten. I do have 2 copies of the DQ 2 gene (homozygous DQ2), which puts...
  9. sweetsailing
    Iceland girl - As far as I have been able to research and determine it sounds like most celiacs have leaky gut issues caused by the celiac disease. Others without celiac disease can get leaky gut too, like small instestine bacterial overgrowth. When you have a leaky gut, large molecules are able to pass through the gut that ordinarily would not be able...
  10. sweetsailing
    Ugghh...I am right there with you. I thought I was going to be good with gluten free and at first I felt great eating gluten free and then at about 6 - 7 months of being gluten free, I seem to have triggered multiple food allergies. I don't know that I have figured them all out yet. However, I know I am reacting to bananas (can't eat raw or cooked), tomatoes...
  11. sweetsailing
    I like a more natural approach, so rather than anti-inflammatories. A cup of organic turmeric ginger tea from "The Republic of Tea" with a bit of honey added. Works as good, if not better than 2 advil. Also, I am no stranger to neck pain. I herniated a disc in my neck a couple of years ago (horrible) and my neck has never been quite the same since...
  12. sweetsailing
    At Mayo clinic, I have been there, Dr Joseph Murray is the head of the celiac department there. I did not seem his specifically when I was there since I was there for another issue (blood clot) and then saw another GI to get tested for celiac.
  13. sweetsailing
    My husband came home from work one day and told me all about a nutritionist who have given a talk a seminar that he attended at work that day. We both work for a health and wellness company who sponsored the seminar. He told me that the nutritionist clearly stated that M & M's contained gluten. At first I was in a bit of a panic. Had I read the label...
  14. sweetsailing
    Given the uncertainess with your tests and eating very little gluten at the time of testing. I would make sure that you get genetic testing done. While it can't conclude that you absolutely have celiac. It can rule in or out the possibility and provide one more piece of the puzzle that would help support a diagnosis.
  15. sweetsailing
    So grateful that I feel better and want to do more and have the energy to do it. Grateful for the feeling I have after a great weekly workout (haven't been able to exercise for at least 3 - 4 years). Grateful for the satisfaction that I get from cooking a great tasting and nutritious meal Grateful for this unspoken bond that I now seem to have...
  16. sweetsailing
    Don't wait for an appointment. Call the office and explain what you want and would like a referral to the GI. They may just provide a referral based on a phone call. Can't hurt to try.
  17. sweetsailing
    Mamaw - It's The Republic of Tea - Organic Turmeric Ginger Comes in a round can
  18. sweetsailing
    I have heard of that...how do you make it from scratch?
  19. sweetsailing
    I have had significant issues with muscle and joint pain as symptoms of celiac. It is definately getting better but not yet where I want to be. I recently discovered something that is of great benefit for me and thought I would share with others. I really don't like taking anti-inflammatories such as advil, etc, seems counterintuitive when one...
  20. sweetsailing
    I do think that small exposures over time result in a tipping point and a larger reaction. I find that if I eat out at resturants too often, even eating gluten free, that the more I eat out over time the worse the reaction. So, if I eat out once, I might not have any reaction at all, except perhaps one extra BM that day, but still normal. If I eat out...
  21. sweetsailing
    Irishheart is right about the blood disorders being connnected with celiac. I too had a blood related issue that is connected with celiac disease. Prior to my celiac diagnosis, I had a blood clot in my ovarian vein. Very unusual spot to have a blood clot and typically only occurs in post-partum women, post-hysterectomy or in those with a clotting disorder...
  22. sweetsailing
    Hi icelandgirl, I agree you might want to change doctors, however I wanted to provide this link for you. It is from Mayo Clinic and it's their protocol for follow up post celiac diagnosis. It confirms what others are telling you here that you should have your antibodies re-tested. You could share this with your physician. Open Original Shared Link
  23. sweetsailing
    We just attended a wedding this last weekend and I was debating this same topic. I ended up calling the venue and was able to speak directly to the chef a couple of days prior to attending. I told him of my dietary restrictions/issues, mentioned that I have celiac disease, etc. They were very accomodating and had a meal especially prepared for me. ...
  24. sweetsailing
    Hi peach, Attached is Mayo Clinic's testing algorithym for celiac disease testing. In this you can see what positive test results they are looking for to proceed with a biopsy. Open Original Shared Link
  25. sweetsailing
    Thanks for all the help and advice. StephanieL, I think you might be on to something with the OAS. NatureChick, my B12 level came back just fine, so that is off the table. LauraTX, I was looking into the latex allergy as well. I don't know that I am allergic to latex but I don't know that I have recently been exposed to latex either. I am a nurse and...
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