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skullgrl

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by skullgrl

  1. skullgrl
    Hey everyone, thanks for all the info. I know rice isn't usually contaminated I have just found that after eliminating just about everything that wasn't just butchered or pulled out of the ground, I've been recovering. Its awesome especially after a year of not really getting anywhere. I was having a lot of issues with Open Original Shared Link apart from...
  2. skullgrl
    I was wondering if any of you awesome people could help me to find some rice I can eat. I've found myself to be super-sensitive and can't eat most if not all p remade gluten-free products. 20PPM is just to much but I've had success with adding in foods (in moderation) that are certified gluten-free by one or another of the groups who test to 10PPM or less...
  3. skullgrl
    I've been having some problems like this after going gluten-free. It was driving me insane, I had plateaued and was still feeling terrible while my anemia was still there a bit but otherwise it seemed I was recovering. I then read about gluten ataxia in a gluten-free magazine (Living Without I believe) and realized it described me to a T. Among the other...
  4. skullgrl
    Thanks for the heads up! I just bought the book, should get here on Monday, I'm excited.
  5. skullgrl

    ARCHIVED Crps

    skullgrl replied to Adalaide's topic in Related Issues & Disorders

    I had RND (the child version of CRPS) and I can sympathize with the pain you must be feeling and the doctor stuff. I found water therapy to be very helpful and pretty relaxing. If you can't find someone who is covered by your insurance then perhaps there is a community pool nearby that you could use. After not being able to move too much, the weightlessness...
  6. skullgrl
    If you were taking your Adderall for AD/HD and you are now no longer taking it, this can adversely effect your will power/impulsiveness as well as remembering what you can eat. I have ADD and take Concerta for it. I know I am a complete air-head with out it and would probably accidentally gluten myself consistently. If ADD or ADHD is the reason for taking...
  7. skullgrl
    Thanks for all the replies everyone! The community here is so amazing. I don’t think I was as clear yesterday with my post as I could have been so I will attempt to clarify. (Brain fog is no fun) I probably should have waited until my mind cleared a bit before posting but I was really angry and needed to vent. I should first say that while my kitchen is g...
  8. skullgrl
    All our food is gluten-free (and I don't buy anything that has a chance of CC) except for the occasional pizza the rest of the family orders when I'm not around. After which they clean the table. The problem is we don't have any of those things in our house.
  9. skullgrl
    I was diagnosed 7 months ago roughly and I've been gluten-free ever since. Our household has been pretty much gluten-free since then (obviously the beginning was rocky). The only time there is gluten in the household is once in awhile my non-celiac family members will have something gluten-y and then promptly clean the area where they consumed it. Nothing...
  10. skullgrl
    Definitely start taking those fiber supplements - make sure they are gluten free and from a reputable source. Supplements can sometimes but iffy on their gluten-free status. When you start the gluten-free diet a lot changes in the core of what you eat and that can throw off your digestive tract. If you've ever had a dog or cat and switched their food suddenly...
  11. skullgrl
    Hey, I'm from Ontario as well and have suffered from some Celiac induced psoriasis myself. My Mom's psoriasis also turned into psoriatic arthritis recently. If you need any help finding places to shop feel free to message me, I've only been doing this about 6 months but I've learned a thing or two. If you live near one of Organic Garage's three locations...
  12. skullgrl
    Hey, I think you should still consider trying to force yourself to get tested. I know its hard! I had a very bad experience with my wisdom tooth removal but I can tell you the biopsy was nothing compared to it. If you were eating gluten-free at the time of the test that could have caused the negative. If you do have Celiac disease then you will be able to...
  13. skullgrl
    I'm not sure if it's available to you but Why not try asking for a Rectal Challenge (I can not say that without giggling like little kid)? That way you don't have to ingest any, they just place a little where you're sensitive and see if anything happens. Obviously, it's still a bit damaging but not as much so.
  14. skullgrl
    I tried Matzoh balls right before I had to go gluten free after my diagnosis (my Boyfriend is Jewish) and I found an amazing recipe in Open Original Shared Link for quinoa flake matzoh balls. I call them my Faux Matzoh. They aren't an exact taste match but I think they are pretty awesome. I've been considering grinding the quinoa flakes to make a finer ball...
  15. skullgrl
    It is not safe unless they specifically say they are made in a dedicated facility. That kind of product generally caters to fad dieters rather than celiacs. To give you an example of how bad it is, if I touched a surface that I ate cookies on over 9 months ago (before I was diagnosed) and touch my mouth then I will get sick. This actually recently happened...
  16. skullgrl
    I give myself weekly B12 injections, they just changed what the lowest normal level is. I used to give myself monthly but I knew I wasn't crazy when it would only help for a little bit! They help me quite a lot. My doctor said that for 2ish months try once a week, then go to every two weeks and then once a month. You need to build up your stores again. ...
  17. skullgrl
    Hi, Judging by the time line of my health problems, my celiac disease showed up around your daughter's age unlike her I wasn't diagnosed until this year (6ish months ago) mainly because mine was largely asymptomatic. Or I didn't have the standard symptoms that people/Dr,'s associate with Celiac disease. (I wasn't pooping myself/wasting away etc.) I even...
  18. skullgrl
    One thing the muscle weakness and pain could be; my lovely rheumatologist told me they JUST raised the acceptable level of B12 from 190 to 700. How do they get it that wrong? Pernicious Anemia could be the cause (low b12 causing low iron).
  19. skullgrl
    My favourite response so far was at an Barmitzvah party for my Boyfriend's cousin (nice kid). One of his relatives, a girl, around my age asked about what I was eating/did I bring my own food. I said, yes and that's because I recently got diagnosed with Celiac Disease. After explaining the basics of it (no wheat etc.) she said, "I wish I HAD THAT! That way...
  20. skullgrl
    My grandma would always pop popcorn on the stove for me when I was little so that's what I've gone back to. When I'm too lazy to do that or want something like movie popcorn (movie popcorn used to be one of my fav. things, glad I can still have it!) to take to a movie with me I buy Popcorn Indiana. Their stuff is so ridiculously tasty. The aged white cheddar...
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