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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED New Doctor - Allergy Testing
tarnalberry replied to super-sally888's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
lol - I'm on the other side of the fence - I have strong lung function, and my regular breath tests don't make me look asthmatic at all, but inhalers did help. (My case is complicated by my mother getting steroids for my lungs being underdeveloped in her last month of pregnancy.) So I'm kinda glad they explored that path, because too many doctors rule it... -
ARCHIVED How Likely Is It?
tarnalberry replied to Guhlia's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It sounds like he should be tested. I'd flat out ask him, "Why the heck are you SOOO adimantly opposed to being tested? There's no need to get b%$@#y about me talking about the subject, so let's have a productive situation on something that I see as a serious problem." -
ARCHIVED Ibs Or Really A Gluten Problem?
tarnalberry replied to CAS221's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The main difference between a wheat intolerance and celiac disease is that the former causes some antibody response against wheat, the latter causes an autoimmune antibody response against wheat, barley, rye, and (in some) oats that damages your intestines. The only way to find out if it will help you is to try it - and stick with it - for a month or two... -
ARCHIVED Cant Stop Eating Gluten
tarnalberry replied to TiffTiff's topic in Coping with Celiac Disease
If you're eating it on purpose, not from contamination, but you really want to stop, perhaps you want to talk to a psychologist about this? I mean, you seem to be describing an inability to control your actions despite a desire to do so, which first makes me think of OCD. Of course, you may not have meant to word it that strongly, but there's still the... -
ARCHIVED Eye Aches Related To Gluten?
tarnalberry replied to CMCM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
For me, they don't correlate with glutening, and I haven't seen it listed specifically as such. But pain that I would *call* eye-located is related to my migraines, which can be celiac related. I take it that his doctors haven't been able to discover anything via blood tests, MRI's/CT's, optometry exams, etc.? -
ARCHIVED Mozart And The Whale
tarnalberry replied to 2kids4me's topic in Introduce Yourself / Share Stuff
Very interesting. Heck, I feel the same way about noise some days (just the general noise of the office can be nerve-wracking), but not others... :/ Thanks for sharing that. I may have to pick that up soon. -
ARCHIVED What Do You Think?
tarnalberry replied to janelyb's topic in Parents, Friends and Loved Ones of Celiacs
IBS is one of the most common mis-diagnoses of celiac. -
ARCHIVED What Do You Think?
tarnalberry replied to janelyb's topic in Parents, Friends and Loved Ones of Celiacs
Perhaps it's time to say "I've given all the advice I can give. I understand that you are looking for a different answer, but I don't have a different answer to give, so please stop asking." (or time to just stop giving advise even when asked...) There's only so much you can do. -
ARCHIVED One Of The Top 10 Hated Responses From
tarnalberry replied to debmidge's topic in Gluten-Free Foods, Products, Shopping & Medications
I think it helps to be clear with the company in what you're looking for - really, it's production details - and clear about what is reasonable (your doctor's review of their production process isn't). And, at the end of the day, they have every right to 'refuse us service', annoying as it may be. Gotta love what lawsuits have brought us to. -
ARCHIVED Cheddar Or Yellow Cheese
tarnalberry replied to debmidge's topic in Gluten-Free Foods, Products, Shopping & Medications
yep, I've yet to hear of a whole cheese (with the exception of blue cheese where the molds are grown on bread) that was not gluten free. -
I got glasses for my astigmatism when I was 17 - while I still had better than perfect vision otherwise. So all that was corrected was that. (It's a distortion that makes the cornea or lens (depending on type of astigmatism) oblong, rather than round, which causes the image focal points to get "split" as they converge towards the retina - This Open Original...
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ARCHIVED Results Tomorrow
tarnalberry replied to Robiond19's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Good luck tomorrow! It could be celiac, it could be something else that you eat. But getting tested is a good route to start on. I know it's tough to wait, but hang in there. It will get better! -
ARCHIVED Pitfalls Of Self-diagnosis
tarnalberry replied to JerryK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
But all choices have consequencies, even lifestyle choices. Change or choice... the term is similar in this context. Vegetarianism/veganism is a lifestyle choice because it is a decision amongst options that is repeated over the course of your life in many settings. Choices aren't necessarily 'light and fluffy'. Choosing to treat or not treat brain... -
I like the historic political discussion. Gotta love how that hides behind so much in our country. Capitalism indeed...
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ARCHIVED Bad Endoscopy Results :(
tarnalberry replied to Emme999's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
** hugs ** That is just so much to go through. I hope the next round of testing goes well. But more over, I hope they find something useful. (You're dairy free too, right? Casein can occasionally cause villi damage... Eh... You've gone through all thise before... *hugs*) -
ARCHIVED Ridiculously Bloated, "stopped Up", Etc
tarnalberry replied to DownWithGluten's topic in Coping with Celiac Disease
I would second the magnesium. There's less of it in the refined gluten-free flours. If you're not using the more complex gluten-free grains yet (quinoa, amaranth, buckwheat, etc.) I'd encourage looking into those. -
ARCHIVED Send Comments To Fda On New Labeling Guidelines
tarnalberry replied to sunshinen's topic in Gluten-Free Foods, Products, Shopping & Medications
Jaten, I think what you've pointed out ends up being a niggling little loophole. It could well be a valid concern. My reading of the rules led me to believe that #1 wouldn't be a problem, because the gluten would have to be added by an ingredient that wasn't the fruit that was being juiced. (In the case of Tropicana, I think it involved an additive... -
ARCHIVED Too Much Testing?
tarnalberry replied to jramfischer's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Celiac disease - the condition of having an immune system that reacts to wheat - does not go away. The damage and the symptoms and the manifestation of the disease go away as long as you treat it (stay on the gluten free diet). IANAL*, but I think you still need to declare it. Other conditions you have that are completely controlled (such as diabetes that... -
ARCHIVED Elizabeth Haselbeck Said She Has Celiac!
tarnalberry replied to TBOX's topic in Publications & Publicity
I think this is the crux of the matter. We've been forced - through trying to treat this condition and really get the best treatment possible and reach out to others - to come to grips with talking about this stuff. We have a biased sampling of "talkability" amongst even celiacs for this topic. This board doesn't include the 99.3+%* percent of US celiacs... -
ARCHIVED Wine Barrel Contamination?
tarnalberry replied to faegan's topic in Gluten-Free Foods, Products, Shopping & Medications
Wine barrels are reused for years (and by years, I mean decades, if they can get that). IIRC from the wine tours I've been on*, There is a active market for *old* barrels that are still in good condition. Old = good in wine, and wine barrels. They do get replaced for age eventually, and for damage more often, but they are used for a long time. ... -
Too bad for the poor ol' wheat. It's such a shame so many other fabulous gluten free crops grow (even better) in the same climate.
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that's *fabulous* you were able to get someone to work with you! I hope this means good things in your visual future!
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ARCHIVED Too Much Testing?
tarnalberry replied to jramfischer's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I can't speak from personal experience, as my coverage for both is through my workplace. We have had members here who have had issues with private health insurance companies denying them due to a celiac disease diagnosis (or charging much higher rates), though it really doesn't make any sense, of course. It may well stand to reason that life insurance would... -
ARCHIVED Cross Contamination Worries?
tarnalberry replied to suz101's topic in Gluten-Free Foods, Products, Shopping & Medications
I generally don't worry about shared facilities. I am much more cautious about shared lines, but there are strict guidelines about cleaning between runs, so I will consider items from companies who do this depending on the item. I think it's important to be aware of, but also to come to know what you use for food and how your body reacts to it. (I also... -
ARCHIVED Send Comments To Fda On New Labeling Guidelines
tarnalberry replied to sunshinen's topic in Gluten-Free Foods, Products, Shopping & Medications
Actually, if you read the text from the link left here, it's not at all clear that they would require this for anything other than things that are *INHERENTLY* gluten free. Single ingredient items that really can't have gluten in them, types of things. So things like jarred pasta sauce, with multiple ingredients, would not fall under this category at all...