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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED Is My Doctor Right?
tarnalberry replied to Peta's topic in Parents, Friends and Loved Ones of Celiacs
I presume you mean "both DQ2 and DQ8" - as those are alleles of the singluar HLA gene that is tested for, and unless there is a chromosomal abnormality, then you only have two alleles. You are correct that having the genes (either both of either allele, one of either and one non-celiac contributing allele, or one of each) does not mean that he is celiac... -
I *absolutely* think it's a grieving process. And something that isn't talked about the grieving process enough is that it is a cyclic process, that can go on - in some lesser form or another - indefinitely, because the loss is never regained. So just because you get through the 'seven stages' doesn't mean you'll never grieve again.
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ARCHIVED I Feel Great!
tarnalberry replied to JerryK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Time will get you to knowing what else you can eat. As for soy sauce, La Choy is an option (I think it sucks), San-J wheat-free tamari is an option (I like the low-sodium version), and Braggs amino acids are an option (all have soy). As for peanut sauce, there are lots of recipes out there. And there are lots of other ways to flavor stir fries. (I... -
ARCHIVED How Do You Do Restaurants Without Making A Fuss....
tarnalberry replied to kbabe1968's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
To minimize "attention", you can talk to the manager in a more secluded location off by yourself - as has been mentioned - to find out what is gluten free. In order to stay safe, you NEED to make your needs clear, but you don't have to be loud or b%$@#y about it, of course. Everyone will find their own approach, but you may find that you can't try being... -
ARCHIVED Is Sushi Rice Gluten Free?
tarnalberry replied to Anonymousgurl's topic in Gluten-Free Restaurants
I have heard of *fried* rice using broth cooked rice before - to add more flavor. Definitely different, and you wouldn't use the two interchangeably - well, no self-respecting sushi chef would. -
ARCHIVED Help With What To Eat For Lunches
tarnalberry replied to runnerjen's topic in Coping with Celiac Disease
btw, you note that you don't like meat for leftovers - my husband doesn't like meat, whole, for leftovers, but finds that in a stir fry or soup, it's fine. as a whole cut (like leftover steak), he thinks it's rather icky, however. you might find that different preparations of different foods are differently acceptable. -
ARCHIVED Should I See A Doctor?
tarnalberry replied to GlutenWrangler's topic in Coping with Celiac Disease
The body adapts to how much water it needs - people who drink that much regularly find that they need that much, but people who drink 1/10th that (less than 5 cups a day) may not be dehydrated either. You *may* find that you can slowly wean yourself off that much water (if you're not doing activities that cause you to sweat out lots of water or have a condition... -
ARCHIVED Health Care Products
tarnalberry replied to glutenfreenew's topic in Introduce Yourself / Share Stuff
have you tried the crystal deoderants? they're ammonium alum salt crystals, and while they are not an antiperspirant at all, they work by forming a layer of ammonium alum on the skin that bacteria (the ones that cause the odor) can't grow on. it may look more expensive in the store, but those sticks last for years! I have found them to be effective deoderants... -
ARCHIVED One Year gluten-free Anniversary Today
tarnalberry replied to a topic in Coping with Celiac Disease
Congrats!! -
So "I'm sorry, I won't be attending. I'm not quite prepared to deal with my family emotionally abandoning me like that right now," isn't a response you're likely to give? I agree - expect nothing. Some people are selfish, some people don't understand. This Christmas, my inlaws and all of us kids were invited to an old family friends place. The hostess...
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ARCHIVED Help With What To Eat For Lunches
tarnalberry replied to runnerjen's topic in Coping with Celiac Disease
leftovers really are my favorite way of doing a healthy lunch - when combined with fruit and raw veggies, in particular. I will cook my dinners with lunch leftovers in mind, so you might consider, for a couple meals, having something without meat that you can take with you for lunch - like a quinoa pilaf, soup, or veggie chili, or the like. another thing... -
ARCHIVED gluten-free Teriyaki Sauce
tarnalberry replied to angel42's topic in Gluten-Free Foods, Products, Shopping & Medications
I've heard there are one or two - like the one richard mentions - but I've never seen them. So I make my own. Very simple, takes all of 10 minutes, and the ingredients (aside from ginger) can be stored for long periods of time. As an added bonus, I get to make mine the way I like, which is with ginger and pineapple juice. Yum! -
ARCHIVED Day 7
tarnalberry replied to JerryK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Heh. And people wonder why there's a small contingent of us who's anal retentive about the "eat whole, naturally gluten-free, unprocessed foods" approach. Glad things are going so well for you, and that your wife is such a wonderful help! -
ARCHIVED How Do You Do Restaurants Without Making A Fuss....
tarnalberry replied to kbabe1968's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Well, I guess "a fuss" is relative. But, having talked to waitstaff from many places, if you are polite and descriptive about your needs, they won't see you as terribly high maintenance. High maintenance are the customers who demand instant service, regardless of how busy the place is. Or customers who argue about whether or not the food is cooked properly... -
ARCHIVED 3 People Close To Me Are All Dying Of Cancer!
tarnalberry replied to Electra's topic in Introduce Yourself / Share Stuff
I'm very sorry. It is going to be a very rough year. Please do take care of yourself. When you have the energy, brainstorm (either at home, on here, or at the store) things you would like to snack on, and have that list available for all the times you don't have the energy to think about it. (Conservation of thinking! ) *hugs* -
ARCHIVED Think Good Thoughts For Jereseyangel (patti)
tarnalberry replied to Mtndog's topic in Introduce Yourself / Share Stuff
Hope it all goes well, and the recovery is speedy! -
ARCHIVED "this Product Was Processed In A Facility That Processes Wheat"
tarnalberry replied to AliceW's topic in Gluten-Free Foods, Products, Shopping & Medications
I think it's a good faith CYA. It gives people information with which to make their own decisions, but also provides cover. It's unrealistic to expect dedicated lines for all potentially gluten-free foods - manufacturing lines are expensive. But it's also very difficult to trace down contamination when we know we're getting sick, but have no insight into... -
ARCHIVED Need Mayonnaise Recipe!
tarnalberry replied to Marg E's topic in Gluten-Free Recipes & Cooking Tips
Ditto mamma goose - many many mayo's are safe. Almost all vinegars are safe as well. Even grain vinegars are safe, as they are distilled. And most grain vinegars are not even wheat (Heinz white vinegar, for instance, is corn.) And, on top of that, in ingredient labels, there's a little law that requires anything listed as just "vinegar" to be cider... -
ARCHIVED Apple Cider Vinegar
tarnalberry replied to sfm's topic in Gluten-Free Foods, Products, Shopping & Medications
I don't know whether or not the food labeling laws extend to drugs - I don't know that they do. I would recommend calling the drug manufacturer on that starch (though there's no guarantee it's wheat, it could be). The apple cider vinegar, however, is safe, especially if it's pure cider vinegar as it's just made from apples. -
Congrats! That's fabulous news! Maybe we'll get a picture sometime.
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One thing that may help is to avoid iodine until it clears up, and if you ever get contaminated. Iodine is part of the IgA deposits under the skin that cause DH, and iodine in the diet (or in skin products) will exacerbate and prolong DH.
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ARCHIVED Should Celiacs Get Flu Shots?
tarnalberry replied to acousticmom's topic in Coping with Celiac Disease
THAT is the whole point of the flu shot. That the population, as a whole, may come down with other viruses, but the incident rate of severe cases of the flu - and hence, severe complications from the flu - will be dramatically reduced. -
ARCHIVED Is Sushi Rice Gluten Free?
tarnalberry replied to Anonymousgurl's topic in Gluten-Free Restaurants
I really am intensely curious about this broth in the sushi rice thing... It just makes no sense. I wonder if it's a regional thing? I've *never* seen a real sushi rice recipe with it. I do believe you guys that they said this and they do this, but I remain boggled that they would! I don't know why any vinegar used in sushi rice would have gluten... -
Yep - those particular bars (and many like them) have malt, and the labeling laws don't require any further disclosure than what you see in the ingredients, as malt is usually barley derived, and barley is not one of the eight major allergens. As for regular whole oats: 1) The Contamination Issue There is a major cross contamination issue with oats....
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ARCHIVED Should Celiacs Get Flu Shots?
tarnalberry replied to acousticmom's topic in Coping with Celiac Disease
Actually, it wasn't last year they got the wrong strain, it was the year before. And they use some decent estimating, looking at what's popping up on other sides of the earth and in climates that support the flu at the time of estimating to try to predict what will get to the US for our season - but you're right; it's a guestimate. I'm not sure why it shocks...