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tarnalberry

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Everything posted by tarnalberry

  1. tarnalberry
    lol my husband usually likes apples (sweet and crunchy), but only certain varieties. if it helps at all, what we've done to expand my husband's diet, slowly, is to both try to better understand what it is that bothers him. i can even predict a few things that will bother him now! it's a looong process, because it requires thinking about foods in...
  2. tarnalberry
    I don't know if anyone mentioned this, but if he's a super taster, the "try what's offered" approach may not work. Just like we don't all see colors the same way (some people are color blind, visual artists can usually resolve significantly more colors, etc.), we don't taste the same foods the same way. Through a number of years (about a decade) my husband...
  3. tarnalberry
    I concur with the advice to drop the job like a hot potato. It's not a good fit for you anymore. And do try dairy free, regardless of the allergy tests. I am casein intolerant, but it's an IgG intolerance, and those don't show up on allergy tests. If Mexico sounds like it's the right idea for you, give it a go. Three months out of your life to recollect...
  4. tarnalberry
    welcome to the group. I'm sorry it was so tough to get to your dx, but glad you finally know what it is!
  5. tarnalberry
    I believe regular Chapstick is gluten free, as is Blistex. I generally use Bert's Bees Peppermint lip balm, myself.
  6. tarnalberry

    ARCHIVED Black Toes

    tarnalberry replied to taz sharratt's topic in Sports and Fitness

    good luck finding shoes with a better fit, to hopefully avoid the problem. and hopefully you'll heal fast too
  7. tarnalberry
    If you've been very good about staying gluten free, and free of your other intolerances, then it may be something unrelated to celiac. While we are prone to other intolerances, we can have totally unrelated problems. Does your doc have any leads for testing beyond this?
  8. tarnalberry
    Celiac is genetic, but just having the genes doesn't mean you'll absolutely have celiac; it needs an environmental trigger as well. So, what those results are most likely telling you, in my opinion, and I'm not a doctor, is that he has the genetics that predispose him to celiac disease, but his blood tests don't show antibodies yet - either because he's...
  9. tarnalberry
    Yeah, this one: "Besides wheat, barley, and rye, I strongly believe or know via testing that I react to other foods, but neither oats (avenin) or dairy (casein)." was supposed to be "Besides wheat, barley, and rye, I strongly believe or know via testing that I react to other foods, including both oats (avenin) and dairy (casein)." Otherwise, this question...
  10. tarnalberry
    I am undecided, as I may try to use the recipes in a book of my own at some point (self-published). But it's a good idea, and I'd probably contribute no matter what I do myself. Self-publishing could be an inexpensive way to do it, but I hear that it can be *very* difficult to get books in stores that way, and you could only sell online.
  11. tarnalberry
    well, there's one test out of the way. result: highly positive for gluten intolerance! good for you for doing what's right! hope he's feeling better soon.
  12. tarnalberry
    defintely need to know the reference ranges before you can say what the numbers mean. additionally, the genetics there puts him in a higher risk category than if he had both DQ2's, one DQ2/one-non-celiac-DQ, or no celiac-DQ variants.
  13. tarnalberry
    I believe most of them are, but I've used Dagoba in the past, or just plain cocoa powder, with agave nectar or honey to sweeten, as I can't have dairy.
  14. tarnalberry
    That is really awesome of them! I'm glad you were able to make it to the wedding.
  15. tarnalberry
    Iodine is an important component of the reaction that causes DH, so it is advised to significantly reduce iodine consumption (not just salt, but other iodine containing foods as well) until the DH fully heals after you've switched to being gluten free.
  16. tarnalberry
    hehe... pardon the list, but it's a logic diagram, and me... a bad combination... I think the flow is incorrect. You can say "I'm sick", then "Research on the internet", then "Try the gluten-free diet", then say "I'm still sick", then "Look into other medical issues", then "Yes, I feel better", and yet you still say that the result is to follow a gluten...
  17. tarnalberry
    ditto what richard said. I generally get a Diestel turkey, as I prefer supporting their business practices over most of the conventional farms that I've seen, and because that's the brand I went with the first year I went gluten-free (I made the dietary change very shortly before thanksgiving, and hadn't found many resources on identifying gluten or not...
  18. tarnalberry
    some people do have a latex allergy, though I have never heard anything about there being a connection with celiac disease. if so, latex condoms wouldn't be a good choice, but they make polyurethane ones that are safe for those with latex allergies. do be aware, however, that most condoms are lubricated (you don't want them breaking!), and some lubricants...
  19. tarnalberry
    So how do you edit a poll? Because one of the options was specifically for that, only I worded it totally wrong.
  20. tarnalberry
    Open Original Shared Link is also a good, free site for food journally. It will also do exercise tracking as well. Congrats on how well things are going!
  21. tarnalberry
    A large minority of all who are celiac (1 in 133 in the general population) are likely to be underweight or thinner, but it's such an amorphous disease, symptomatically, that "usually" doesn't mean much.
  22. tarnalberry

    ARCHIVED Meals

    tarnalberry replied to ducati's topic in Coping with Celiac Disease

    I'm not a fan of white fish. Grilled or broiled salmon is the best way to go, if you don't want to take the time to make sauces and do all the rest of that. Ahi's good too, but easy to dry out and expensive if you don't live in HI. White fish just doesn't have a lot of it's own taste - even halibut is 'eh' without taking some time - and all of them are...
  23. tarnalberry
    The thread on Open Original Shared Link and one of the posts that Carriefaith left got me thinking about the idea of 'specifc' and 'non-specific' celiac disease. Where the instigating chemicals in the intestinal reaction are either highly specific for gliadin, secalin, and horedin, or are not so specific and can react to things that are similar. (Not just...
  24. tarnalberry
    While I haven't seen any specific studies noting the similarities between casein and gliandin, I've heard references to such. If it is true that they are similarly structured, I wonder if what we really have is two types of celiac - for lack of a better term, specific and non-specific. That is, in the first case, specific celiacs would *only* react...
  25. tarnalberry
    If you were gluten-free for longer than a week or two, you need at least three months on gluten (the equivalent of three slices of bread a day), to have good expectations that the tests will be at their most reliable. (Which, remember, is still not 100% - almost no medical test is that reliable.)
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