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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED Birthday Present From The Coworkers
tarnalberry replied to tarnalberry's topic in Coping with Celiac Disease
The tea party was quite nice. A pot each of silver needle white, a guryoku green, and a honeybush vanilla herbal, and three flavors of biscotti, orange walnut, almond, and cinnamon toast. There was some chatting about the ingredients, and lots of people checked out what was in it, but mostly we chatted about lots of random stuff. Quite a fun little fifteen... -
ARCHIVED Birthday Present From The Coworkers
tarnalberry posted a topic in Coping with Celiac Disease
My friends/coworkers don't always know exactly what I can and can't have (I'll get a "can you have X?" sort of question), but they remember the main premise, and when they bring stuff in (like cakes) they write down the ingredients from the recipe so I can figure out if I could have it. Generally just ... Yay! And today, when I got in, they had gotten... -
ARCHIVED Is Corn Gluten Safe?
tarnalberry replied to ptkds's topic in Gluten-Free Foods, Products, Shopping & Medications
Corn gluten is safe. Quaker doesn't recommend any of their products to celiacs due to contamination. (Gluten is *technically* a generic term for a wide range of grain proteins. We generally use the term as being unique only to the grains that we, as celiacs, can't have, however. In cases like this, it gets confusing. ) -
ARCHIVED Questions?!
tarnalberry replied to lax87's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
yep, gluten can cause neuro sypmtoms, and mood issues. you definitely need to get all gluten out of your diet, and hopefully your parents will start cooperating more on that. -
ARCHIVED Cnn Special On Celiac Tomorrow ?
tarnalberry replied to Judyin Philly's topic in Publications & Publicity
When you hit 'reply', you'll see a few icons above the edit window where you enter your response. There's the button for "bold", "italics", "underscore", "strikeout", "font color", and then "hyperlink". The macro for hyperlink pops up a user window, when you click on it, that asks you to enter the address, or URL, then the text you want to have that link... -
I'm sorry that you're having trouble with this one. If you think it would do any good to try to work out the root causes with your mom, then try doing so. If you don't think so, then bring whatever turkey you already planned, and just make the best stuffing you have. Let your food do the talking for you. She may be very worried about not having a...
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ARCHIVED Where To Stay/eat On The West Coast Area
tarnalberry replied to Sweetfudge's topic in Traveling with Celiac Disease
Depends on what you're looking for. I grew up in Northern California, and am partial to the Montery area. I lived in Southern California for nine years, and am partial to Pasadena (for central-ness). I'm in Seattle now, and am still exploring, but there area lot of options in the area as well. All areas have plenty of options for eating (I'm thinking... -
ARCHIVED Quick! What Brands Of Canned Sweet Potatoes Are gluten-free?
tarnalberry replied to emcmaster's topic in Gluten-Free Foods, Products, Shopping & Medications
I don't know, but I *highly* encourage the use of real sweet potatoes - much better tasting! -
ARCHIVED Cnn Special On Celiac Tomorrow ?
tarnalberry replied to Judyin Philly's topic in Publications & Publicity
Kudos for learning to stand up for yourself - it can be a hard task, and often unappreciated in our world. And I appreciate your point about it seeming a relevant divergence. But, in the interest of not hijaking the thread, which you note you were not trying to do, the idea of posting a new topic on the subject is quite relevant. To address your concern... -
ARCHIVED 1 Week Into Being Gluten Free And...
tarnalberry replied to Curious121's topic in Coping with Celiac Disease
this is the best advice. it sounds exteme, but it's accurate. -
ARCHIVED So, On The Cnn Special- Oats Was Listed As A Good Grain
tarnalberry replied to breann6's topic in Publications & Publicity
There are two issues with oats: 1) The vast majority of commercial oats are contaminated with gluten. McCanns, CountryPride, and Quaker were specifically tested as *ALL* being over the 200ppm CODEX standard used in Europe, which is 10 times higher than the Canadian standard. There are two or three manufacturers (American and Canadian) of 'gluten free... -
ARCHIVED Stressed About Thanksgiving
tarnalberry replied to MWD's topic in Coping with Celiac Disease
You could easily bring something with you, and only eat the plate of food you brought. Remember that you do not have to defend your diet to anyone - there is nothing to defend. You choose to keep yourself healthy, and that's fabulous! But if you're not up to it, a polite "no, thank you" is all that's needed. -
ARCHIVED Should I Get Other Dd's Tested?
tarnalberry replied to ptkds's topic in Parents, Friends and Loved Ones of Celiacs
a blood test really isn't that awful. I'd do a blood test, and after that, do the dietary challenge (take them gluten-free for a month). this, of course, is predicated on the assumption that you wouldn't bother with an endoscopy. if you would, then blood test, endoscopy if results warranted, or dietary challenge if tests didn't warrant the endoscopy. ... -
ARCHIVED The Severe Glutening Incidents Are Scaring The Daylights Out Of Me
tarnalberry replied to elaine33's topic in Coping with Celiac Disease
I was never horribly symptomatic, and I don't get massive symptoms when I get glutened - sometimes I'm not even quite sure if my stomach is being bothered by gluten or something else (dairy, especially). There are others on the board who aren't highly sensitive either, but we know it still does damage internally even if we don't feel awful. -
ARCHIVED Asthma + Winter = More Attacks?
tarnalberry replied to num1habsfan's topic in Related Issues & Disorders
Well, the maintenance med that I used to use, and may end up on again come Jan-April if I find I'm getting sick often again, is Advair. I used Singulair in the past, but it didn't seem to make a big difference. (It appears to only work on about 1/3 of asthmatics.) When my asthma was worse, my asthma doctor would increase my daily maintenance dose during... -
ARCHIVED I'm Confused, Have Questions
tarnalberry replied to mom-to-claire's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
BTW, there's no debate over gluten in breastmilk. If you take a look at the studies (I use pubmed), you'll find that it's pretty definitive that gluten is passed through human breastmilk. -
ARCHIVED Happy Tummy :) And I'm Happy.
tarnalberry replied to super-sally888's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'm glad you're feeling better! -
ARCHIVED Carrying On With Your Daily Life When You Feel Like Poo!
tarnalberry replied to allison's topic in Coping with Celiac Disease
On days when things are really bad (which isn't much of a problem for me, but it happens), I do 'give myself permission' to *not* get anything done. Life *can* be put on hold most of the time, almost all of it and it won't all come crumbling down. It happens often when I get sick - then life gets put on hold for, like, a week! -
ARCHIVED Cnn Special On Celiac Tomorrow ?
tarnalberry replied to Judyin Philly's topic in Publications & Publicity
I thought it was a pretty good segment. No, it wasn't perfect, but we're dealing with mainstream here, and there's some give that's going to happen. It's part of a start - a big start - to getting some wide attention on things. All in all, it's been a pretty good year for this stuff coming out. PS - I also sent an email in. -
ARCHIVED Fuming...mil Doesn't 'get It'!
tarnalberry replied to anerissara's topic in Coping with Celiac Disease
Above all else, I think it's important for YOU to tell her that you appreciate her sentiment, but you choose not to eat those items because they make you sick. If she makes her "it's worth it" comment, you tell her that "It's not worth it to me. It is not my choice." If she makes a "a little won't hurt you" comment, you say "I choose not to hurt myself... -
ARCHIVED Gluten For Bloodwork
tarnalberry replied to Clearbelle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
A month on a gluten-free diet is pretty likely to skew your results. You should be eating a gluten-free diet (of about 3 slices of bread a day) for about 3 months prior to testing to have reasonable confidence of not getting a false negative, though it's no guarnatee. Recovery of symptoms can take a number of months, once you get every last ounce of gluten... -
Mmm... pumpkin smoothie! Pumpkin puree, milk/milk-sub (even better is eggnog!), cinnamon, nutmeg, one banana, vanilla, a touch of honey, and ice. YUM!
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I'm sorry your husband is ... (hunts for something not too bad to say...) being uncooperative. It's horridly shocking how thoroughly self-absorbed people can be, at the expense of those they say they love. (waves at my similarly-minded father) I hope this falls into the "this too shall pass" category. Those do sound like some crazy pregnancy cravings...
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Besides all of the concern over gluten - and it is a real concern - it's safer from a food poisoning perspective, and quality of turkey perspective to cook the stuffing separately. Then, you need only cook the turkey until it is done, not get the inside of the turkey cavity high enough to kill any bacteria in there from the juices. Doing the later requires...
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And I can't really imagine right now how much that sucks. That constant pounding day after day without relief is absolutely horrible, and though books, and people, and things say "it'll be better soon", 'soon' doesn't quite cut it, does it? Times in life like that make me wish I was three again and could throw a tempertantrum. Not like that'd solve anything...