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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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It's been on the forum, and then I got an interesting email from giant microbes, and thought you all might get an inappropriate laugh out of this one: Open Original Shared Link
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ARCHIVED Is All Malt Barley?
tarnalberry replied to FeedIndy's topic in Gluten-Free Foods, Products, Shopping & Medications
No, not all malt is from barley, it can be from corn or rice or other grains, but it's usually barley if not otherwise specified on an ingredient list. You can always call the company, of course, to try to verify. Mainstream cereals, however, outside of, I think, fruity pebbles and one other thing, are out. Some of the specialty cereals are easier to find... -
ARCHIVED Quaker Rice Cakes Anyone?
tarnalberry replied to grace-inspired's topic in Gluten-Free Foods, Products, Shopping & Medications
Quaker themselves say that they can't guarantee that there isn't contamination - moreover, they say to assume that there is contamination in all of their products. But there are other rice cakes out there! I recommend Lundberg Farms. -
It's a reminder that you have to read the ingredient label EACH TIME, EVERY TIME. You can't make any assummptions about ingredients. I know, it's hard to get used to, since it's so very different from how things used to be, but you'll get there.
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ARCHIVED The Political Climate Surrounding Lyme Disease
tarnalberry replied to Lymetoo's topic in Introduce Yourself / Share Stuff
In the US, yes, a person will have the option (medically, if not financially) to pay for antibiotics out of pocket, as the doctor can still prescribe them without the insurance ever knowing they've been prescribed, if no claim is filed. That is one of the good things about private health systems, really, though it's only a benefit to those who can afford... -
ARCHIVED Starch - Does It Mean Wheat?
tarnalberry replied to super-sally888's topic in Gluten-Free Foods, Products, Shopping & Medications
starch does not always mean wheat. it could come from corn, or tapioca, or potatoes, or rice, or a number of other starchy items. it *can* mean wheat, but US labeling laws these days would require them to list if it were wheat (though not barley, rye, or oats). as for how you're feeling - you're eating out a lot, and it wouldn't surprise me in the least... -
difficulty getting pregnant or maintaining a pregnancy has been connected to untreated celiac disease (likely due to a nutritional deficiency). sticking to the diet will hopefully help. good luck!
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ARCHIVED Do I Understand This Correctly ?
tarnalberry replied to Mamato2boys's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Because the genes need to be triggered for the gene expression to start occuring? Happens in a lot of different things. (I don't think the full reason is understood, but that's my understanding.) -
ARCHIVED What If I Already Have Permanent Damadge?
tarnalberry replied to Electra's topic in Coping with Celiac Disease
I could be misreading your post, but I'm getting quite a sense of panic from what you've written. Big deep breath! You're stuck in a negative 'what if' loop. But you don't know that it's likely to go that way. Heck, you could find yourself in a positive what if loop (what if you get tested on monday and get the results back in three days? what if... -
If you can handle dairy, then I'd say leave in the Ensure, but if you can't deal with dairy, or know that it's bothering your stomach, leave it out. It's pretty individual what will settle our stomachs... Heck, it varies for each of us from time to time too. Good luck figuring out what works for you. (Rice and chicken broth works for me fairly often....
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ARCHIVED Please Tell Me This Will Be Ok?
tarnalberry replied to Electra's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I would, if you can do this with your insurance, or if you're willing to pay for it out of pocket, suggest taking your daughter in - without waiting for the other doctor - to a dermatologist who can biopsy the rash looking for dermatitis herpetformis. You don't have to do this in a particular order, relative to blood tests, so if you can get her in sooner... -
One thing to consider - and I only say this because you note that you don't think you could have realistically gotten anything that has gluten in it as you cooked a likely safe dinner in a likely safe location - is that it's psychosomatic. That does *not* make it any less real - the mind/body connection is *very* real. It doesn't mean that it's "in your...
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ARCHIVED Please Tell Me This Will Be Ok?
tarnalberry replied to Electra's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It is *highly* unlikely that another few weeks is going to be the difference between permanent damage or not. Refractory sprue is rare, even among people who go the average 11 years before diagnosis. That's not to say it isn't serious, but is to say that it is nothing like an anaphylactic allergy. -
ARCHIVED Please Tell Me This Will Be Ok?
tarnalberry replied to Electra's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you feel that you need a doctor's diagnosis to stick with a gluten free diet, then six more days in comparison to years of symptoms won't be too much more waiting. At that time, you can ask for a blood test (to include anti-gliadin IgA and IgG, tissue transglutamase IgA and IgG, and total IgA) and consider whether or not you want to go for a biopsy as... -
ARCHIVED Ever Have One Of Those Days?
tarnalberry replied to cowrdlyon's topic in Coping with Celiac Disease
I've had that happen at work, but then I go home, and make my GFCFSF regular meals, my GFCFSF big thanksgiving meal (and Gluten-free Casein-free leftover thanksgiving sushi ), and feel a little less deprived. It helps to remind myself that, out of all the stuff that I want and can't have, there's lots of stuff that I want and wouldn't have thought to have... -
ARCHIVED Oats-what's The Deal?
tarnalberry replied to clbevilacqua's topic in Gluten-Free Foods, Products, Shopping & Medications
There's a two-fold issue with oats: 1) no mainstream available-in-the-US brand of oats are free of contamination, or have contamination at levels regularly below the 200ppm CODEX standard. there are two companies in the US and one in Canada that grow, mill, and transport gluten-free oats that are not contaminated, but are much more expensive. 2) regardless... -
ARCHIVED How Long Do I Do A Trail Run Of Gluten-free Diet?
tarnalberry replied to DaCat's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
At least a month, three would be better. But you must be *strictly* gluten free during that time. -
ARCHIVED Baby, It's Cold Outside
tarnalberry replied to 2Boys4Me's topic in Introduce Yourself / Share Stuff
I ended up stopping by REI last night and getting a couple more pairs of silk underwear while it was on sale. That stuff is fabulous. (It's not low-rise, but it's not terribly high-rise either, and I'm low-waisted.) -
ARCHIVED Hate To Keep Asking, But
tarnalberry replied to kolka's topic in Gluten-Free Recipes & Cooking Tips
And my stuffing isn't bread-based at all. (I use a combination of rices, don't stuff the turkey, and free up that space in the oven by cooking it on the stove.) Everyone loves the stuffing, too. -
ARCHIVED How Quickly After And For How Long Do You Get Sick?
tarnalberry replied to azmom3's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This question gets asked a lot, and the answer seems to vary greatly person to person, as well as depending on how healthy the person has been eating, the particular gluten they get (varies from person to person what causes the worst reaction), how long that person has been gluten free, and what other allergies they have. For me, I can tell if I've been... -
ARCHIVED What Are Your Favorites?
tarnalberry replied to Amanda L's topic in Gluten-Free Foods, Products, Shopping & Medications
Always into my basket? Baby carrots, definitely. Regular canned beans if I'm low. Chicken, of some variety - breast or thigh or whole. Dagoba or Tropical Source chocolate if I want a big treat. -
ARCHIVED Drinking Tea
tarnalberry replied to maribeth's topic in Gluten-Free Foods, Products, Shopping & Medications
The gluten-to-seal-tea-bags is an urban legend - there has never been any solid evidence of this practice, and tea companies have repeatedly said that it makes no sense, the gluten would dissolve in water. (Tea bags that aren't held together with a fold and a staple are pressed together to form a pressure weave.) However, you need to read the ingredients... -
ARCHIVED Modified Wheat Starch
tarnalberry replied to zachsmom's topic in Gluten-Free Foods, Products, Shopping & Medications
For clarification for those in the US or traveling to the US from the UK, my understanding is that the UK, and most of Europe, uses a different wheat starch than that which is commerically available in the US. So Ursula's response about the wheat starch being manufactured to fall under the 200ppm CODEX standard for gluten free applies ONLY IN THE UK/EUROPE... -
ARCHIVED Ferrous Gluconate
tarnalberry replied to lightningfoot speakin words's topic in Gluten-Free Foods, Products, Shopping & Medications
Yes. It's a type of iron. (Iron as a salt of gluconic acid, a derivative of glucose.) Nothing at all related to wheat. Of course, it's important to call the manufacturer if you suspect other fillers in the product. -
ARCHIVED My First Shopping Fiasco (questions)
tarnalberry replied to alveraz's topic in Gluten-Free Foods, Products, Shopping & Medications
Ah... vinegar. Vinegar, when listed as "vinegar" on a label, must be derived from apples. (Code of Federal Regulations [CFR] Title 21, Sec. 525.825, revised March 1995) When listed as distilled vinegar, it *can* come from wheat, but distillation - according to all studies done on the subject and all chemical experts who have looked into the issue - removes...