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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED Lotions
tarnalberry replied to ILOVEOMC's topic in Gluten-Free Foods, Products, Shopping & Medications
Most of their products are gluten free. A few may not be, but I don't recall which. I use their green tea and aloe facial moisturizer (I usually hate facial moisturizers en masse) and the body butters (both papaya mango and kukui nut). I haven't tried many of their regular line, but the ingredients will list wheat fairly plainly if it's in there. As I... -
ARCHIVED Substitute For Wheat Berries In Kutya Recipe...
tarnalberry replied to Agee's topic in Gluten-Free Recipes & Cooking Tips
kasha (roasted buckwheat) is an alternative, but I'd go millet over quinoa since quinoa is very small. you might even try short grain brown rice. -
If you're not getting enough protein and fat to keep your blood sugar levels normal (and this is more protein than you just need for minimum amounts), you'll keep feeling hungry. Try to make sure to get more protein (either egg or dairy if you're not vegan, or lentils, nutritional yeast) and fat (oils, avocado, nuts, etc.)
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ARCHIVED Testosteron Levels And Fatigue
tarnalberry replied to Jenn2005's topic in Coping with Celiac Disease
Even the women should have this checked. Doctors don't like to believe that women (particularly younger ones) can have low testosterone, but my gyn specialist was willing to test me and found that I had next to none in my bloodstream. Supplementing (while it will be continuous for me (until pregnancy)) has definitely made a small, but important, change... -
ARCHIVED I Am Putting The "oats Are Okay" Theory To The Test
tarnalberry replied to Canadian Karen's topic in Gluten-Free Foods, Products, Shopping & Medications
If that doesn't work, if you haven't tried it yet, you might try ShiKai's Dry Skin Therapy. Very effective. -
ARCHIVED I Don't Get It....
tarnalberry replied to CMCM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The stool tests (in the US only available through Enterolab) are not accepted by most mainstream doctors because the methodology has not been peer reviewed, published, and independently verified. The person who created and is marketing the test says it's almost 100% conclusive, but other doctors have been unable to verify his claim. He may be right, but... -
It's in human nature to grieve a loss - any loss, regardless of whether it's "less of a loss" than some other kind of loss. It's even in human nature to grieve a loss that actually benefits us, because it's simply a loss, and a change. If the change in diet is the biggest loss in our life, then it's the one we're going to grieve most. It's not trite...
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ARCHIVED Lotions
tarnalberry replied to ILOVEOMC's topic in Gluten-Free Foods, Products, Shopping & Medications
ShiKai makes a "Dry Skin Therapy" lotion that's marketed towards diabetics and those with eczema. Moving from a nice, 70-80% humidity southern california where I never use heating to a 35-40% humidity because you're always using heating seattle has done a number on my skin, but this stuff is great. It's gluten-free, fragrance free, and absorbs well with... -
ARCHIVED Need Some Reassurance...
tarnalberry replied to covsooze's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you're lucky, there will be a correlation between your tTg scores and your biopsies. Chances are, there will be. (It happens more than half the time. ;-) ) But there's no guarantee. Particularly if you don't have significant damage (and the lab reader wants to see significant damage before diagnosing you) or if they don't take enough samples from damaged... -
ARCHIVED Glutenyzme Plus
tarnalberry replied to Guhlia's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Make your stuffing w/ gluten-free bread or rice and enjoy it without risking damage. The problem with enzymes like that is 1) the gluten peptide is VERY hard to break down, 2) they need to break the peptide in the right place, as it's only a small portion of the protein that we react to, 3) you don't know which glutens it's talking about - which plant... -
As long as you maintain a strictly gluten free diet, your chances of having a happy and healthy pregnancy will go back to that of the normal population. If you continue to cheat, however, your body will continue to not get the minerals and vitamins (and energy) it needs due to the damage you're causing your intestines, and may not have all the resources...
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ARCHIVED Tests Are Back...and I Am Confused..
tarnalberry replied to cherie012's topic in Parents, Friends and Loved Ones of Celiacs
Some doctors mistakenly think that the gluten-free diet is horribly difficult and a nasty life-sentence to give their patients. Of course, this isn't true, but it's what they think. I would, given the rapore you've described with this doctor, consider scheduling a consultation with him to discuss the options at greater length, letting him know that you... -
I'm sorry you're having that problem. It can be tough, when people think they should know about it if there's something wrong, and if they don't know about it, it doesn't exist. Be strong, and mostly be CONFIDENT in your diet. Just take is a matter of fact for you, period. No uncertainty, no wishwashyness, no explanations needed. It's part of who you...
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ARCHIVED 2nd Month Gluten Free And Terribly Constipated
tarnalberry replied to Nancym's topic in Coping with Celiac Disease
I found that going gluten free made my issues with dairy more obvious - and one of the main symptoms I get from dairy is constipation. -
ARCHIVED Do You Ever Miss The Stupid Things?
tarnalberry replied to Lauren M's topic in Coping with Celiac Disease
I think it's because those are the things that are hardest to replace, but seem so ubiquitous. I know it's hard. :-( Go make yourself some cookies? :-) -
ARCHIVED Small Amounts Of Gluten Safe?
tarnalberry replied to DQ1Squared's topic in Related Issues & Disorders
That's not what I was saying... IgG and IgA are both different classes of antibodies. My point, in my correction, was that I would consider it important to consider what the antibody was *for*, regardless of the class of antibody. Anti-gliandin antibodies, be it of the IgA class or IgG, are antibodies against GLIANDIN, which is the wheat protein you consume... -
It's definitely not something that's been studied much at all. Even the dietary link with autism is considered speculative by many. And the "cause" of autism isn't known/understood either. But, in the studies of pregnancy outcomes among treated celiacs, there has not yet been seen a correlation to autism. I can't say if any of the researchers were actually...
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I thought I'd do some updating of my research on celiac disease, and am going to link and include abstracts for the recent, seemingly-meaningful abstracts that I'm picking up off pubmed (just Oct. 05 through Jan. 06, and not all of them). (This could be a loooong post. :-) ) (Don't forget, while reading this, that just because an author concludes something...
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ARCHIVED Small Amounts Of Gluten Safe?
tarnalberry replied to DQ1Squared's topic in Related Issues & Disorders
This is a *very* good point. I made an assumption in my post, when I said antibodies, that was referring to anti-gliandin antibodies. Those tell you that your immune system is reacting to the wheat protein. They don't say, themselves, anything definitive about celiac disease intestinal damage. tTg antibodies, on the other hand, *are* more directly involved... -
ARCHIVED Small Amounts Of Gluten Safe?
tarnalberry replied to DQ1Squared's topic in Related Issues & Disorders
Honestly, there is not enough research on gluten intolerance without a diagnosis of celiac disease to really say. Mostly, that's because there isn't a good understanding of "gluten intolerance without celiac disease". You may be seeing results that only indicate gluten intolerance without celiac disease because not enough damage has been done yet to show... -
ARCHIVED Spice
tarnalberry replied to Tammy Hanratty's topic in Gluten-Free Foods, Products, Shopping & Medications
Plain spices are almost always gluten free, though there is a rumor that some are mixed with wheat to prevent clumping. (I've yet to find an example of this in a pure spice, but it's better to be safe than sorry.) Seasonings (a mixture of spices) are more likely to have wheat in them, but it's not a given. You always have to check the ingredients. (I... -
ARCHIVED Weight Loss Supplement
tarnalberry replied to Canadian Karen's topic in Gluten-Free Foods, Products, Shopping & Medications
I would encourage you to get a lightbox to help with the SAD, and consider replacing your regular light bulbs with full spectrum compact flourescents. (Ok, the compact flourescents is an environmental consideration, as you can get incandescent full spectrums.) The science on full spectrums for SAD is... not complete, but I think it helps. The science behind... -
ARCHIVED Aaahhhhh ? Problems With Dairy
tarnalberry replied to Bonnie's topic in Coping with Celiac Disease
You might also try almond milk, which I prefer in hot beverages to rice milk. Trader Joe's has a rice-milk based milk chocolate that's not bad, but other than that, it's pretty much all dark chocolate. It can be an aquired taste if you don't like it already, but dark chocolate is dairy-free (and usually gluten-free, but you'll want to check both, of... -
ARCHIVED Front Page Of Wall Street Journal
tarnalberry replied to 4getgluten's topic in Publications & Publicity
I think that's a fabulous way to get the public to actually read the article - attracts the "theory conspiracy"-type curiosity in many people, not to mention nudging into the area of patriotism in the comparison of the US versus Europe. (Given the recent news stories, I won't even go there! ;-) ) Good to see it's getting out there! -
ARCHIVED Got My Test Results
tarnalberry replied to mightymorg's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I would encourage you to ask, not for the numbers, but for a copy of the test, via mail or fax. Say it's for the sake of complete medical records, if you have to. But be prepared that it really does just say "normal". I got that, and being the scientist I am, also thought, "wth? I want the numbers!" Well, after a long run around with the doctor's...