Jump to content

tarnalberry

Advanced Members
 View Profile  See their activity

  • Posts

    8,591

  • Joined

  • Last visited

  • Days Won

    13

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by tarnalberry

  1. tarnalberry
    There wasn't an option to choose for my answer, but I have second degree (or third) relatives with bi-polar. They haven't investigated celiac, and I'm not terribly close to them, so I've mentioned I've had it, and it's genetic, so they should be aware, but I'm not going to push the issue.
  2. tarnalberry
    The doc doesn't sound incompetant so far, but it sounds like there is a communication problem, and that may have nothing to do with the doctor. Please call the office back and ask them to send you the full results from the lab. They have to do that, and then you'll have the information you need. I'd hold on for the biopsy, since it's already scheduled...
  3. tarnalberry
    Have you tried telling him "Reliv will not change my genetic code. Hence, it will not sure celiac disease." Saying it's autoimmune may not be enough for him to make the connection on his own. Other than that, I think your approach of ignoring it is exactly the right way to go at this point.
  4. tarnalberry
    I also like the Clif Nectar bars. Quite tasty.
  5. tarnalberry
    I posted a bunch of recipes that I used last Thanksgiving and Christmas on the post "As Promised, A Few Recipes" in the Recipes section. (They should be on page 2 or page 3.) gluten-free for the holidays is easy and tasty.
  6. tarnalberry
    Here's the thing about "can't get celiac without the gene" - they haven't identified all the genes. As I recall, studies suggest about 2% of biopsy-confirmed cases of celiac occur in people who do not have any of the known celiac-inducing genes. So, it's likely true that you can't get celiac without any of the genes that cause it, but not all the genes...
  7. tarnalberry
    Their own brand. Just check the ingredients for which ones are safe.
  8. tarnalberry
    Only when I let myself be that way. Seriously, if I decide not to go to lunch with friends, or not to see family on some occasion, because of some food, then I feel lonely. And sometimes, it's the right choice. But since it has to be balanced against loneliness, it's not always. I'm not suggesting eating risky food; I'll either eat very boring, but safe...
  9. tarnalberry
    if you check the silly yak's restaurant guide, there are suggestions for gluten-free items at California Pizza Kitchen (such as the field greens salad, sauteed scallops, and steamed vegetables, but be careful of the dressings) and Cheesecake Factory (non-marinated meats and vegetables, and pancooked (not grilled) fish), besides the other options already mentioned...
  10. tarnalberry
    That sounds like it could be a tomato allergy. You may want to ask your doctor, or carefully do another test with *just* a tomato.
  11. tarnalberry
    Trader Joe's has one that is, as I recall, organic and gluten-free.
  12. tarnalberry
    Nope. It's a chemical reaction, so any gluten will cause the reaction in the intestines.
  13. tarnalberry

    ARCHIVED Restaurants

    tarnalberry replied to JoeB's topic in Gluten-Free Restaurants

    Yep - I haven't had any problems at the locations I've eaten at (three states or so), but we've had those on here who have. It can be hit or miss by location, and staff. Don't give up on it forever, but you do have to be verbose and vigilant.
  14. tarnalberry
    controlled studies have not found a link between celiac disease diagnosis and blood type. perhaps they've missed something, but it doesn't look like it. but it's not that surprising that the genes for determining blood surface proteins are different than the genes for digestive enzymes.
  15. tarnalberry
    The problem is that, without the structure to hold itself up, more air will only lead it to collapsing. The protein provides that structure.
  16. tarnalberry
    this topic came up on an online journaling site I use - someone who works at a mongolian restaurant was asked to cook something for someone with a wheat allergy. while this particular person's attitude was *complete* crap, in short, the answer was no. there's too much sharing of things, and "cleaning" is not the thorough sort of cleaning you'd need/want...
  17. tarnalberry
    Another option, that many doctors seem to overlook, is trying the diet as a test itself. That doesn't necessarily mean for three months - if you react on the first meal, you've got an answer. It could mean a few days or a few weeks, but it doesn't have to be three months. Honestly, with the conflicting information you have, I understand why you're trying...
  18. tarnalberry
    Well, if they don't believe the food in the stool thing, I suppose he could bring in a sample next time? ;-) I get that after getting glutened, and it lasts, in varying degrees, for a week or two.
  19. tarnalberry
    I believe the answer is primarily air. That becomes a problem when you pull out the egg, because the egg helps the bread keep its form after the baking process (the dispersed egg protein (along with other proteins in the dough) coagulate around the air bubbles yeast forms, and remain intact after the baking). Not quite sure what to do about it, myself....
  20. tarnalberry
    I think it's fairly common if you're light eyed (green or blue, particularly). So my optomologist has told me.
  21. tarnalberry
    What I learned was that, after a number of months or years not eating meat, your body stops producing the enzymes needed to break down the proteins. It will start producing them again if you start eating meat, but slowly. So if you continue eating a bite every day for a few days, and very gradually increase, your body *should* respond and begin producing...
  22. tarnalberry
    Rice pudding's pretty easy to make from scratch. Just make sure to use short grain rice, and cook much like risotto to get the creamyness. You can use just water for this, or coconut milk, or another milk substitute. Usually, you add sugar and spices as well. (I've made coconut mango, vanilla, and pumpkin flavors that are tasty. The coconut mango recipe...
  23. tarnalberry
    Well, according to those results (high for both antibodies, and positive for the genes), Enterolab would say that you should avoid gluten. (They won't dx "Celiac Disease" officially because the 'gold standard' for that is a biopsy, and that's not the test they ran.) If you're only eating a little bit of gluten, a biopsy to confirm the results wouldn't be...
  24. tarnalberry
    That's my primary type - silent, of the dizziness/nausea variety. (My first two were vision based... kinda like looking at a TV when there's just "snow" or "static" on the screen and you can't see anything. I had to keep my hand on the wall to walk between classes as it happened during senior year in high school!) It's not so much a real HEAD ache (though...
  25. tarnalberry
    I don't remember what it's called, but it's something that happens to people who don't have celiac disease as well - just an eye issue. But do see a doctor about it Monday, and if it's hurting as well right now, you might try to find a walk-in clinic today. As for getting tested for celiac, you have to be consuming gluten (at the rate of 2-3 pieces of...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.