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Latest Celiac Disease News & Research:
Everything posted by gabby
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Going gluten-free is not fun. It is not happy. It is not even enjoyable. So don't beat yourself up for not loving this part of your journey. But know that once you are completely gluten-free and your body has healed up, you will feel stronger, healthier and happier. It is hard to believe right now while the 'old-gluteny' foods are so close in your...
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I hope you're feeling better by now....it could be that you are having a combination of being glutened AND either food poisoning or a stomach bug. Food poisoning can be really dangerous and it wouldn't hurt to visit your doctor if at all possible. As for relieving symptoms....try to drink clear liquids, stay hydrated, rest, stay warm, and come back to...
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ARCHIVED Itchy Ears
gabby replied to happygirl38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My left ear itches like there's a tiny butterfly fluttering around in there. NOTHING eases the itching! i haven't scratched until it bled, but I have thought about putting a fork down there to see if it helps. It took me eons to figure it out....but it turns out when I eat popcorn, I get the flutter. Not corn. Popcorn. plain, homemade in canola oil... -
ARCHIVED Gross Allergy/intolerance Stories From Waiters/waitresses?
gabby replied to gabby's topic in Coping with Celiac Disease
Now that you mention it...more and more people are telling me their health problems too (so maybe it just isn't waiters/waitresses). Hmmm, yet another mystery on this road called Celiac Avenue. -
ARCHIVED Gross Allergy/intolerance Stories From Waiters/waitresses?
gabby posted a topic in Coping with Celiac Disease
I'm wondering if anyone has encountered this situation, and how they deal with it in a nice but effective manner. this is happening to me more and more and I am at wit's end! I will go to a restaurant and do my little preamble about what I can and can't eat, and how I need my food prepared, etc. Quite often, the waitperson will ask probing questions... -
There's a great food market called Longo's on the SE corner of Woodbine and Hwy 7 (which is about a 4 minute drive just east of the hotel). It is a big grocery store that has a nice salad bar for your wife with lots of fresh fruits, veggies, boiled eggs. etc. They also carry organic yogurts, rice cakes, bulk nuts, and lots of fresh cheeses. They are not...
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ARCHIVED Advise Please? Warning - Long!
gabby replied to qwertyui's topic in Coping with Celiac Disease
I went through this last Thanksgiving. I originally was just not going to show up for the big family dinner. But instead, I decided to just bring my own food. I didn't even tell anyone I was going to do it. The day before, I roasted my own turkey pieces (I only like the leg and wings....so that's all I made!). I pre-washed and chopped a lovely plain... -
ARCHIVED I May Possibly Have Celiac Disease
gabby replied to Aquina1300's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Don't think you have to give up baking bread for a living if you test positive. You just will have to avoid baking bread with wheat/barley/rye/oat flours. But there are many other flours out there....and there are soooo many people looking for good non-gluten bread. You could end up being somebody who comes up with a few great Gluten-free bread recipes... -
ARCHIVED How Strict Do We Need To Be?
gabby replied to radman's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Are you really a medical doctor? Or are you just someone masquerading as George Clooney? -
Last time I checked, patient information was confidential...so go ahead and get your testing done. Keep the actual testing and the results to yourself...and only disclose this information if you want to. It is okay to just tell people you have a health condition and that you have a restricted diet. You do not have to answer any other questions. Just...
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I got my(malabsorption) quantitative microscopic fecal fat score back: normal is under 300 units, my score was 976. I make all my own food, and adhere to a strict gluten-free diet, so this can't be caused by gluten ingestion. The literature says this score could also be caused by consuming casein (anti-casein antibody test came out positive.)...
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ARCHIVED Pelletized Garden Seeds Or Cheetos?
gabby replied to ravenwoodglass's topic in Coping with Celiac Disease
Hmmm, Cheetos contain artificial flavor. I wonder if that could be the culprit. As for the seeds...can't find anywhere what they coat them with. Another mystery to solve! -
ARCHIVED Why Go Through Endoscopy?
gabby replied to radman's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'll go against the grain here and say that if you have access to the testing, go ahead and get it done. It can rule out other problems that may be going on. Even if the testing comes up inconclusive or not very helpful in the celiac department, the testing will give you a nice set of baseline numbers that might come in handy down the road. -
ARCHIVED Am I Being Glutened?
gabby replied to jtangema's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
If you're not sure if you are being gluten-free, post one day's food menu here, complete with brand name of product and ask if these products are safe. Two heads are better than one! Also, be sure that you are not letting gluten-containing foods touch your foods. Are you using your own special toaster? Do you have your own butter that nobody else touches... -
ARCHIVED How Do U Know U Have An Intolerance?
gabby replied to Moongirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Here's an easy way: keep a food diary for a week. Write down everything you eat, and break it down into its food components. For example, instead of writing down chicken soup, write the ingredients: chicken, celery, onion, salt, pepper, etc. Then write down how you feel after you eat. Also, at the top of the page, write down how you felt upon waking... -
ARCHIVED Pelletized Garden Seeds Or Cheetos?
gabby replied to ravenwoodglass's topic in Coping with Celiac Disease
What are pelletizing seeds? -
ARCHIVED Enforcement Of Labelling Laws
gabby replied to kari's topic in Gluten-Free Foods, Products, Shopping & Medications
Just a note on getting answers when you phone/e-mail a company (and I mean ANY type of company) If you don't get anywhere with the customer service people, then try this: find out the contact information for someone in the Media Relations department. And then e-mail them about the not-very-nice responses you've been getting from customer service. And... -
ARCHIVED Really Need A Supoort System
gabby replied to bigapplekathleen's topic in Coping with Celiac Disease
Maybe this is a way of looking at things that might help. My oldest sister is 48, and for the past five years, she can't eat garlic. If she so much as eats a whiff of garlic, she immediately gets a bloated stomach, terrible cramps, a bad headache, and then the D starts. She looks and feels horrible for a good 24-36 hours. She is not allergic to garlic... -
Don't know if this is worth a shot...is there any way you could go out of province? They could probably take you right away. I don't know exactly how it works, but if your doctor says you need to be seen fast, and they can't give you a quick appointment in your hometown, then I'm pretty sure they have to pay for you to see someone out of town/out of province...
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ARCHIVED Ingredient Deciphering
gabby replied to kari's topic in Gluten-Free Foods, Products, Shopping & Medications
the lo-fat cocoa could also be suspect. Since it has been modified, it is worth checking out. -
Are your rice crackers and rice cakes labelled as gluten-free? If not, maybe call up the company to make sure. Also, if they are flavored...they might have gluten in them.
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ARCHIVED Weird Answer From Tetley Canada
gabby replied to gabby's topic in Gluten-Free Foods, Products, Shopping & Medications
If the sodium is coming from a flavouring compound, then there is a chance that it could contain gluten. -
ARCHIVED Anyone Have Problem With Salmon, Other Fatty Fish?
gabby replied to luceydiana's topic in Coping with Celiac Disease
Many brands of canned fish that feature vegetable broth do not list the ingredients of the broth. Some of these vegetable broths can contain wheat starch in the flavouring (at least they can up here in Canada). Anyways, I think it is always worth a simple phone call. -
ARCHIVED Weird Answer From Tetley Canada
gabby replied to gabby's topic in Gluten-Free Foods, Products, Shopping & Medications
I don't get headaches from drinking other brands of camomile (like Celestial Seasonings! yum) I am not an expert in labelling, nor in food ingredients. So I sent my question (and Tetley's bizarre answer) to the Canadian Food Inspection Agency. They were VERY interested in this situation. -
ARCHIVED Anyone Have Problem With Salmon, Other Fatty Fish?
gabby replied to luceydiana's topic in Coping with Celiac Disease
Are you reacting to fresh tuna and fresh salmon? Or are you eating the canned stuff. Most brands of canned tuna and salmon (and other canned fish) are not gluten-free...be sure to check with the manufacturer on the brand you are eating. I had to learn this the hard way.