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par18

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Latest Celiac Disease News & Research:

Everything posted by par18

  1. par18

    ARCHIVED Genetic Test

    par18 replied to jknnej's topic in Coping with Celiac Disease

    Hi, This is what happened to me. Last May 05 I had a positive Dx for Celiac Disease via biopsy. I did not have my blood tested at that time. 2 weeks ago (15 months into the gluten-free diet with no return of symptoms), I decided to do a follow-up blood test to see what the results would be. I got back the results last week. All anti-body type tests were...
  2. par18
    Just go on the diet and see what happens. If you don't like it or it does not help you can always stop. No cost either way. Tom
  3. par18
    That is a decent price. I got some in Charlotte NC and it was $10 a six. Won't be drinking too much at that price. The retailers in some places must have it confused with gasoline! Tom
  4. par18
    Why should they (CNN) get any more right about this than everything else they report! Tom
  5. par18
    Hopefully at a "reasonable price". Imports are cheaper than most gluten-free beers ,that is if you can even get the gluten-free beer. Tom
  6. par18
    Hi, How did you respond to the 2 months on gluten-free diet? Tom
  7. par18
    Hi, Did you notice some improvement on the gluten-free diet. Are you sure you were eating food that was completely gluten-free? My family doctor said I was only the second Celiac patient he has had in his career (25 + years). He said the other person tested positive for anemia. I did not test positive for anemia. Just a thought. The fact that your diarrhea...
  8. par18
    Hi, Just got back my blood test results today. I have been gluten-free for 15 months after positive biopsy. gliadin abs, iga 1 (0-4 neg, >4 pos) gliadin abs igg 1 (0-9 neg, > 9 pos) ttg iga 1 (0-3 neg, 4-10 weak pos, >10 pos) ttg igg 1 (0-5 neg, 6-9 weak pos, >9 pos) endomysial iga 266 (70-...
  9. par18
    Susie, I don't think I had anything like Italian sausage or taco meat for at least a couple on months into the gluten-free diet. I ate a lot of food early in the diet because I was so underweight. Most of it was naturally gluten free and only seasoned with salt and pepper. It would not really excite the taste buds but it was filling and I had no diarrhea...
  10. par18
    How did you respond to the gluten-free diet and what types of symptoms did you have? Tom
  11. par18
    Hi, I have had formed stools since the second day on the gluten-free diet 15 months ago. I keep thinking one day I may have diarrhea again but so far so good. I have been really careful on the diet so maybe that is the reason. Before my Dx I had constant diarrhea for at least 3 months so I know I must be doing something right. I think now that my stools...
  12. par18
    Susie, Did you try to get this test done on your own or were you referred to the lab by your doctor? I was Dx'd last May via biopsy and until a few days ago never had my blood tested for Celiac. My family doctor drew 2 samples and sent them to Labcor to analysis. He called me today and said the antibodies were ok but I did have one of the genetic markers...
  13. par18
    Hi, I use "Aristocrat" without any problems. Planning a batch of Margaritas? Tom
  14. par18
    Hi, That is pretty interesting. When I went to the cemetery cleanup in April of this year to the chuch where my father was buried the end of the meeting is a covered dish meal. When I told them I couldn't eat anything they had this sad puzzled look on their face. I think I could have talked the rest of the day to most of them and I don't think they still...
  15. par18
    Hi, I actually went there 2 yrs ago before I was Dx'd. My wife went to school close by (Western Carolina). While she was at a school function I went over to the casino with a couple of the other husbands otherwise known as "significant others". We did not come away millionaires but did mange not to lose our shirt. The two things I remember was there was...
  16. par18

    ARCHIVED Wendy's

    par18 replied to rachellek's topic in Gluten-Free Restaurants

    Ditto. I ate chili and a potato there last night with Country Crock. Also had large frosty. I probably eat these items once every couple of weeks with no issues. I would not eat the fries though. tom
  17. par18
    I do the same. I take every opportunity to get a price break with any mainstream brand I can find. Tom
  18. par18
    Hi Alex, I have not seen Dr. Green but I did have the good fortune to attend a talk given by Dr. Fasano from the University of Maryland. The talk was presented at the University of Virginia medical center about a month ago. Dr. Fasano talked about the background of Celiac Disease and how it came to be diagnosed during the grain shortages of WWII. He...
  19. par18
    Could not have said it any better. Tom
  20. par18
    Mandy, Sounds like you have not been sick long enough or bad enough. I guarantee if you ever really get sick and stay sick you will be more than willing to stay on the gluten-free diet. Good luck. Tom
  21. par18
    Hi Gabrielle, I just saw this post today and it brought back memories. When I was Dx'd with Celiac Disease about 14 months I all of the sudden had thoughts that I had never experienced before. I had a lot of anxiety about whether I would respond to the diet. This anxiety did not cause any of the physical symptoms I had before the Dx and as a matter of...
  22. par18
    Congrats. I'm in my 15th month. Getting to feel like an old-timer. Tom
  23. par18
    Rachel, You are not weird. I will tell you what weird is. I was not a fan of pizza or birthday cake. I thought pizza was always soggy dough with sauce on top and I used to scrape the icing off almost all the cake that was served to me. I don't care what people eat in front of me. The only thing that rubs me the wrong way is having to explain to the same...
  24. par18
    Hi, We do have insurance. I was Dx'd last year through a positive biopsy. After going on the diet and recovering I have not had any further medical costs. The difference between me and someone who took the gluten-free diet on their own and feels ok is that it cost one of us money for both of us to arrive at the same result. If I were you I would not worry...
  25. par18
    Hi Becky, I did not take an appetite stimulate when I first went on the gluten-free diet 14 months ago today. I was about 30 lbs underweight and I was pretty depressed so I did not have an appetite. To me it was a catch 22 situation. I did not feel as though I could exercise to stimulate my appetite because I did not want to lose any more weight than necessary...
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