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par18

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Everything posted by par18

  1. par18
    Hi, I am really impressed that you were able to find out on your own. Also that you feel confident that the diet is your answer. Just keep listening to your body. Having a spouse willing to support you makes all the difference. I feel 100% that you will continue to progress. My wife supported my diet and our home is gluten free. Good luck and welcome....
  2. par18
    Nancy, This post sums up my feelings exactly. I would like to have more dining/gluten-free product choices. I don't know how effective or cheap anything the drug companies could come up with that would be any better than the diet. I would like to see research more in the development of a grain or product like bread that has the same properites as the...
  3. par18
    Hi, Enjoyed your post. The first part 2000-2005 when you were told to quit eating what made you sick and you could not possibly have Celiac, did the doctor tell you this or did you first hear about Celiac from some other source? This type of self-diagnosis through diet elimination to me is the best way to determine what you can and can't tolerate. The...
  4. par18
    Hi, Have you actually gone gluten free at all and if so did you have apositive response? Tom
  5. par18
    Getting your blood tested like every 6 months or once a year is the only follow-up I was told to do if I felt fine on the gluten-free diet. I got this from Dr. Alessio Fasano from the Celiac Research Center in Baltimore. Dr. Fasano gave a talk I attended back in July 06. Basically the blood test is looking for elevated anti-body levels which would be present...
  6. par18
    Is taking a medical leave of absence an option? Staying so busy has to have some effect on your recovery. A couple of weeks or a month off might make all the difference. Tom
  7. par18
    Kim, First off even if you ask the GI questions do you think you would get any answers? I guess some might listen but who knows. As far as tests go if you think you may have Celiac symptoms then there is a panel of blood tests that can be run to check anti-body levels and also a gene test to see if you could ever develop it. The anti-body test results...
  8. par18
    Wow this brings back memories. Before my Dx I did not worry about crumbs in the butter. The thing that always upset me was that I either wanted butter on toast or jelly on toast but not butter "and" jelly on the same piece of toast. My pet peeve was to see butter in the jelly jar or jelly in the stick of butter. Yuk! Tom
  9. par18
    I have eaten Bumble Bee and Starkist with no problems but if I were you I would call them to make sure all varieties are safe. Tom
  10. par18
    Just curious as I see you say you are Celiac. How did you get diagnosed? To answer your question about testing I had family doctor draw blood and send to a lab with the specific Celiac panel of tests including the gene test. Even if you are not genetically related your daughter could still have the gene. Tom
  11. par18

    ARCHIVED Ragu?

    par18 replied to a topic in Coping with Celiac Disease

    I have also used Ragu and also Newman's Own with no problems. I take every opportunity to use a mainstream brand when I can. Tom
  12. par18
    I for one don't think being somewhat obsessive about this is a bad thing at all. In the beginning I was really obsessed with not getting any gluten in my diet. Guess what happened? I did not get any gluten in my diet. Not only that I have kept the gluten out of my diet since starting. The same thing that sometimes keeps us from relaxing and just letting whatever...
  13. par18
    Tameka, Try getting the Triumph Dining Cards for eating out. Go to www.triumphdining.com/ Tom
  14. par18
    This was me exactly. Never able to put on weight until starting this diet last year. I am at what is listed as a healthy weight for my height and can remain there even being active because the body is working correctly now. Tom
  15. par18

    ARCHIVED What If...

    par18 replied to Nancym's topic in Related Issues & Disorders

    I also heard the 50% complaince rate in the US at a seminar. In my case it was pretty cut and dried as I had a positive Dx in a short time of treatment for my symptoms. Whether or not I adhere to the diet was strictly up to me. Someone correct me if I am wrong but did I not hear or read that 97% of those persons with Celiac Disease have not been diagnosed...
  16. par18
    Hi Sara, Basically I had three symptoms before I had my main development of Celiac Disease. They were bloating, gas, and D. I had these symptoms for almost 10 years. Because I never felt sick I never sought treatment for these symptoms. I thought everyone got D like this. I found out after I started losing weight because of intestine damage and malabsorption...
  17. par18
    Laura, I had tests run after a year on the diet. My levels were all in the normal range and this range varied with each test. (0-3, 0-4, 0-9, 0-5) My value in each test was the same number. It was a "1". I did not worry about the fact it was not a "0" because it was normal and I feel fine. I think the reason for a retest every now and then is to see how...
  18. par18
    I actually ate cheddar cheese within a few days of starting the diet in May 05. This was after a positive Dx through biopsy. I waited a couple of weeks and drank a glass of milk. No problem with that either. I have had dairy for the last 15 months without the first problem. I don't know if I was ever lactose intolerant. There was a time before my Dx when...
  19. par18
    I think your doctor may be right when she says the bowel problems are connected to the depression. The only problem is I think she has the connection backwards. The depression is not the source of the bowel problems, it is the "result" of the bowel problems. I had never been depressed in my life until I started having gastrointestinal issues. Family members...
  20. par18
    A common complaint I notice from time to time is the lack of a bread you can buy which comes close to the same flavor/texture as traditional bread. Recently my wife brought home some bread by "Glutino". It is made in Quebec, Canada. The reason I don't think we bought it before was because of the name on the package. It said Corn Bread. The only thing in it...
  21. par18
    Becky, I went to a seminar two months ago and this situation was mentioned. The person was sure they had not eaten any gluten. The doctor asked if this person paid the bills. The response was yes. He asked if the envelopes were licked and the answer was yes. That was the source of this person's problem. The only time I accidentally ingested gluten was...
  22. par18
    It sounds like you could be on the correct path. Looking back on my own symptoms I think the one thing that stands out is when you say you occasionally have formed stools is that you could have accidentally avoided gluten without even knowing what it was. This was my case. I wasn't even seeking treatment in the beginning because the diarrhea would come and...
  23. par18
    I actually got my mother to get a blood test for the gene. She is 82 and is in pretty good health. She has one of the genes. I think she was a little surprised but insists she has had no problems. As far a brothers and sisters go I really don't have an answer. The fact that they know it exists in the family is probably enough because if symptoms ever do arise...
  24. par18
    How did your daughter find out she had Celiac Disease? Tom
  25. par18
    For what it's worth. Last year right after my biopsy and Celiac Dx I started on the gluten-free diet. I also had some inflammation in my stomach and had eaten my share of Gaviscon over the years. I wish to tell you that after eliminating gluten and gluten only I have not had a single instance of reflux since starting the diet. I eat everything but gluten...
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