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par18

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Everything posted by par18

  1. par18
    Hi, What is the "nhs"? Tom
  2. par18
    For me in the beginning there were two issues keeping me from sleeping much at all. One was I was so malnourished I could not get enough exercise to get tired. I was eating a lot of food each day with no appetite. The other more important issue was just plain "anxiety". I could not convince myself in the beginning I would recover. I would lay awake in the...
  3. par18
    Peta, I understand and good luck on your diagnosis. Tom
  4. par18
    Peta, Are your sister and nephew on the gluten free diet? When you say no one in your family will take it seriously who are you talking about (husband, parents?) Why in the world with a sister and nephew both diagnosed would you not put your son on the diet right now to see if you can give him some relief? You have already admitted that you do not need...
  5. par18
    You say you were gluten free years ago? Was there a history of Celiac/gluten intolerance in your family somewhere? If so this would have been a good reason to have put your daughter on the diet before testing to see if she responded. If she did respond in a positive way then you would not have had to say anything to the insurance company. I'm not second guessing...
  6. par18
    Happy Birthday! Tom
  7. par18
    I don't know quite how to answer a question like that. Yes they "can" tell with specific results. Whether or not you get those results is something else. If you do test positive or negative then of course you could get more tests, and more tests and more tests. Believe me if you have the money and the the time they have all the tests you want. Or like I...
  8. par18
    For me it was pretty much right away (couple of days). Bloating, gas, D and reflux cleared up pretty much together. Maybe the fact that the gut, stomach and esophagus are all connected together has something to do with it. Tom
  9. par18
    No apology necessary. Actually anyone can answer. I myself found it by searching my symptoms shortly before my diagnosis last year. I just did not find it soon enough. Tom
  10. par18
    Just curious how you found this site. Also did recent publicity on CBS, USA and CNN have anything to do with searching for it? Also welcome aboard! Tom
  11. par18
    Are you at least convinced that "something" you are eating is causing your problems? If you are then you have a couple of choices concerning your next step. The only way you are going to increase your risk of things associated with Celiac is to continue to eat gluten while trying to determine what is wrong. If excluding gluten (or somethng else) from your...
  12. par18
    Cramping is a symptom. When you say you mentioned it to her do you mean Celiac? What do you mean when you say "she said the only symptom is reflux"? Is she talking about you or the symptom reflux as pertains to Celiac. I'm sort of confused. That said I still agree with your father. Try the diet to see if it helps. If it does then maybe bowel movements will...
  13. par18
    I take it you mean your father was diagnosed with Celiac? If so I think it would be ok to mention it to your doctor but if it were me I would just try the diet to see if it improves your reflux. I had reflux along with other symptoms and it disappeared along with the other symptoms. Unless it is for piece of mind an official diagnosis would only cost you...
  14. par18
    For me it was the day after the first full day gluten free. No one told me it "could" be this fast. The most common timeframe I was given was 6 months to 2 years. Now that was depressing! As a result I kept thinking I would experience reoccurance of my symptoms from time to time in the beginning. Because I was so diligent and careful I never did. The longer...
  15. par18
    I have found that in most cases it is not whether or not they get it more than they just don't care. The fact that I look and feel healthy causes them no alarm. When I tell them I'm on this diet they start to feel sorry for me like it is the worst possible thing that could have happened. I have a laugh inside at their expense. As far as people like you MIL...
  16. par18
    I really don't see a difference between the two. I had a positive biopsy but if I could turn back the clock I would have done the diet long before I ever got sick. The positive diagnosis to me means only one thing and that is I had to get sick as hell to find out what was wrong. The main reason I joined a support group was to try to help someone new avoid...
  17. par18
    Elaine, I meant get back on the diet not "gluten". I think you started proving it when you said you had positive response before. Try going gluten free for an extended period of time. Don't make yourself any more sick than necessary. Then if it works you will have a pretty good idea this is what is wrong. Sorry about the misunderstanding. Tom
  18. par18
    I can only tell you what my primary care doctor told me when we found out that my problems were related to Celiac. He told me of all the things that it could have been this was the "best" possible diagnosis because of the fact that no medicine or surgery is required and there was an execellent chance I would completely recover (which I did ). I feel the same...
  19. par18
    Absolutely it is possible to have such a rapid response. Your body is saying thank you, thank you , thank you. Keep it up and keep us updated. I took a stomach/reflux medicine for the first couple of weeks on the diet but didn't need it after that as the diet took care of everything. Good luck. Tom
  20. par18
    Elaine, I hear exactly what you are saying. I had a rumbling gut, contstant reflux/indigestion, bloating , chronic diarrhea etc,etc,etc. Was 30+ lbs underweight. All I reapeat all cleared up on the diet. The fact you said you went gluten free for a few days with improvement is "really important". In order to prove it you have to get back on it and stay...
  21. par18
    I take it you have not started on the gluten-free diet. If you are not going to get a biopsy done I would suggest trying the diet right away. I mean like today. I stopped my chronic diarrhea the second day on the diet. If you have Celiac (and it sounds like you do) then the quickest way to tell is see what response you get with the diet. It is my understanding...
  22. par18
    Actually it has been a pretty good last couple of months. CBS, USA, CNN all had informative segments. I have had numerous people tell me about seeing them who I did not think knew that much about Celiac before. Tom
  23. par18
    Actually when I saw the small video I am reminded of the diagnosing rate for the illness (about 2-5%). Since it appears that about 95% of the video is missing then it makes perfect sense. I did however enjoy the audio! Tom
  24. par18
    Hi, I think starting the diet would be an excellent idea but only if you are willing to be 100% compliant. If this is your problem then I would expect you to see positive results soon. Good luck. Tom
  25. par18
    Hi, When I read a post like yours in which you are taking control of your health I am really encouraged about the future. I think it will be the "preventive medicine" approach that will ultimately make the biggest impact to getting more and more people to try the diet first. I applaud you for not being afraid to go forth without getting an "official" diagnosis...
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