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debbiewil

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Everything posted by debbiewil

  1. debbiewil
    I have the book and I've read it. Actually, I don't think it told me anything I didn't know, it just confirmed things that I've thought for years. Like doctors don't believe patients tell the truth, if it doesn't seem to match with the diagnosis or idea that the doctor already has. So if you say, have liver disease, and the doctor thinks it's because you...
  2. debbiewil
    Ok, some good stories for balance. A friend of mine was working as a waitress a couple of nights a week. A gentleman came in who didn't speak really good English. He did explain that for religious reasons he couldn't have any pork. She suggested the prime rib special. He asked her to make sure it wasn't pork. She said it wasn't, but since he was so concerned...
  3. debbiewil
    Guhlia, Outback has a policy of rewarding employees when they get a positive customer letter/email about the employee. Write a letter or send an email to Outback corporate, and let them know how pleased you are with this employee and with having the beer available. It will give the employee a boost, which might make that employee and any others in that restaurant...
  4. debbiewil
    Bad Karen Ohhh, that shouldn't be hard at all. They have ice cream all the time with candies, cookies, etc. chopped up in them. Just a good basic ice cream, crush up the altoids or run them through the food processer, and mix them in. The question is - Do we tell people what's in them before serving or not? Debbie
  5. debbiewil
    Ohhh, that shouldn't be hard at all. They have ice cream all the time with candies, cookies, etc. chopped up in them. Just a good basic ice cream, crush up the altoids or run them through the food processer, and mix them in. Debbie
  6. debbiewil

    ARCHIVED Pf Changs

    debbiewil replied to Moongirl's topic in Gluten-Free Restaurants

    Actually, you could reach the one in Westbury by public transit also. You could take the Long Island Rail Road out to Westbury and either walk (longish) or take bus to the restaurant. I don't know exactly where on Old Country Road the restaurant is (I lived in Westbury a loooong time ago) but I used to live a block from the train station, and I'd walk down...
  7. debbiewil
    Actually, you may have had hypothyroid caused by gluten malabsorption. The main hormone that the thyroid makes is T4, but it needs to be converted to T3 in order to work properly in the cells. There are several nutrients needed to convert T4 to T3, like iron, some of the B vitamins, even cholesterol, etc. which are often lacking in gluten sensitive people...
  8. debbiewil

    ARCHIVED Apnea?

    debbiewil replied to jayhawkmom's topic in Related Issues & Disorders

    There are a number of other things that can cause fatigue - hypothyroidism, hypoadrenia, anemia. Your sleeping patternd doesn't sound like apnea. Debbie
  9. debbiewil
    HIPAA is a fedaral law (passed in 1996) which limits insurance companies abilities to deny coverage for pre-existing conditions in most circumstances. You should look into the law, and see if it applies to you. If so, then they can not deny you insurance. You can find more information about HIPAA here Open Original Shared Link The portability part is mostly...
  10. debbiewil
    It depends on the state. California has some specific legal requirements for ordering tests, and New York flatly forbids certain tests to be ordered without a physician, but it really depends on the state - not federal laws. Debbie
  11. debbiewil
    There's lots of good info at this website Open Original Shared Link Debbie
  12. debbiewil
    Depression and fatigue can both be signs of hypothyroidism, which is often associated with celiac. If you think that might be your problem, ask for the blood tests. You need Free T3, Free T4 and antibody tests, as hypothyroid can be an autoimmune disease (Hashimoto's hypothyroidism). The doctor my want to do TSH test, which may give false negatives, Total...
  13. debbiewil
    So glad to hear he's doing so well. I did know he had ear/hearing problems, so very glad that has been resolved. And keep those wonderful avatar pictures up to date. He's so precious! Debbie
  14. debbiewil
    Costco. There are a number of Costco brand (Kirkland) products that are gluten-free. Their rotisserie chicken and chicken wings (not the ribs) in the deli dept are gluten-free for a fast dinner or emergency pot luck. And their fresh produce is much better than the selection at Sam's. On the other hand, Sam's has better prices on some products, like frozen...
  15. debbiewil
    Rachelle, it is possible to order the tests yourself. Of course, then the insurance won't pay for it. But maybe if you had the tests, you could get the referral to the endo. I got my test myself from Open Original Shared Link It was a package that did the adrenal hormones cortisol and DHEA, thyroid TSH, Free T3, Free T4 and estrogen, progesterone and testosterone...
  16. debbiewil
    Before I went gluten free, the amount did affect me. And also, how much proportionally it was to the total amount I ate. For instance, I stopped eating pasta 10 years ago, because it always bothered me. Well, that was like a spaghetti dinner, where pasta (wheat) was 80-90 percent of the meal. The little bit of sauce or whatever didn't cut the amount of gluten...
  17. debbiewil
    Borders stores are changing their cafes - they will be run by Seattle's Best Coffee Co. Well, I love to read, and stop in at Borders every week or two, and a coffee while I'm there is a plus, so I called Seattle Coffee Co. Very nice Customer Service rep. who told me that all of their coffee was gluten free, but that they purchase the chocolate (mocha, chocolate...
  18. debbiewil
    Starbucks Mochas - They get the mocha powder from a third party vendor, who will not verify its gluten status. Therefore, Starbucks won't call it gluten free. Hope this helps. Debbie (I had mochas all the time before I learned this, and never had a reaction. So they are probably ok, but not verified gluten-free.)
  19. debbiewil
    Thyroid disease is frequently associated with celiac as well, and overweight is one of the first signs of hypothyroid. Adrenal insufficiency is another autoimmune disease that can be found with celiac, and overweight can be a symptom of that as well. So I think sometimes there are actually a couple of contributing factors, and it takes longer to diagnose...
  20. debbiewil
    It's thyroid. Don't believe the TSH tests. A couple of years ago, they changed the standards for the test and made the top TSH normal number 3.3, AND advised that some people need treatment if TSH is over 2. Most labs did not bother changing their normal range, which was 5.5. So many people are over the correct (3.3) number but the lab still says it's normal...
  21. debbiewil
    Just a suggestion for anyone who has panic/anxiety attacks - you might want to get your adrenals tested. Sometimes malfunctioning adrenals can react inappropriately to minor stress, and dump way more of the adrenal hormones in your system than needed, which will give you all the symptoms of a panic attack. Rarer, but also possible are thyroid hormones. And...
  22. debbiewil
    The health food store in town is moving to a new, larger location. They'll have a lot bigger selection of foods AND a cafe area where you can get sandwiches, salads, etc. The cafe is advertising gluten free bread for sandwiches. Now I have to go check them out and see if they understand the whole CC issue, or if I have to "educate" them (g) but it's a start...
  23. debbiewil
    I'm hypothyroid as well, and I hate to tell you, but most doctors are as ignorant of thyroid issues as they are of celiac/gluten issues. They can easily spend as many years or more missing thyroid problems as gluten problems. The problem is - doctors only look at blood tests. The latest research is showing that the blood tests only identify about 10% of people...
  24. debbiewil
    Here's the restaurant list from DC celiacs. You can check out their website at Open Original Shared Link for other information. I know that there is a great whole foods store in DC (been thre) and that a couple of the Smithsonian restaurants have gluten-free items on the menus. Hope this helps. Open Original Shared Link Debbie
  25. debbiewil
    I had one. The crust was kind of thick and I don't think very tasty. I only took a bite but then I've never really liked crust and didn't eat that part of the pie before gluten-free so could just be me. The filling was good. Debbie
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