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Ursa Major

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Everything posted by Ursa Major

  1. Ursa Major
    In reality, any doctor who knows anything about celiac disease will diagnose you with it if your villi are flattened. You may not see any improvement on the diet because in order to heal you also need to eliminate dairy and soy. False negatives on the blood tests are common and will absolutely not rule out celiac disease. Neither does a negative biopsy, by...
  2. Ursa Major
    They sound great, I think I will try them.
  3. Ursa Major
    Even though it would be nice if they listened, there is no guarantee that they will. Some people just prefer not to know so they can keep on eating gluten, even if it will kill them in the end. When I can afford it, I will have the gene test done too, for the same reason you had it done. But it may not do any good. But at least you can try. Just be sure...
  4. Ursa Major
    Your daughter is already 11 and will soon not be a child any longer. I never had a pediatrician for any of my five kids, just saw my family doc with them. It sounds like that would be your best bet with her. Who needs doctors like that arrogant, ignorant ped doc she saw! Many people with dermatitis herpetiformis (caused by celiac disease only) are...
  5. Ursa Major
    I think you're right. And of course, just having one celiac disease gene is bad enough, but having the gluten sensitive one as well will likely make it worse. But you have been gluten-free already, right? If it makes you feel better, that is confirmation that you are doing the right thing.
  6. Ursa Major
    The doctor didn't order all the labs, which is bad. Her IGA is elevated, which could be pointing towards celiac disease. Plus, the blood work is not very reliable anyway and misses many people with celiac disease, and many more with non-celiac gluten intolerance (which is just as bad). Her TSH is elevated. Your lab uses outdated ranges, anything above...
  7. Ursa Major
    I agree with the previous poster. Most people have never heard of cc, and therefore won't take the necessary precautions when preparing food. You can try to explain it, and ask that the person preparing your food put on new gloves and prepares your food on a surface cleaned right before doing it. You can also ask for your dish to be rewashed. If they are...
  8. Ursa Major
    It could be a combination. You should definitely eliminate all dairy for a few months, because, yes, dairy can stop your intestines from healing, as can soy. You can use almond or rice milk (not Rice Dream, it has barley malt) for your cereal, it tastes fine. The reason you have anemia and osteoporosis is, that your intestines can't absorb vital nutrients...
  9. Ursa Major
    Jason, I understand your dilemma. But think about how much you would enjoy your new job if you get sicker and sicker and lose all energy! You would start hating it very soon, and not soon after you would not be able to do it any more and will have to quit. Right now, while you are trying to figure out your health issues is unfortunately NOT the time to...
  10. Ursa Major
    Well, now that she actually had the biopsy, what is stopping you from just putting her on the gluten-free diet right now? Because, no matter if the biopsy turns out to be positive or negative, you ought to give the diet a try anyway. Both blood work and biopsy are highly unreliable in young children under six, and negative results can NOT rule out celiac...
  11. Ursa Major
    I don't think that is advisable. The way they are made is very well thought out so they actually work without restricting blood flow. Plus, they come with detailed instructions on exactly where to apply the bead for pressure. If you don't have it in the right spot, it won't work.
  12. Ursa Major
    I got the Himalayan salt from Dr. Mercola's website. Before that I used sea salt (unprocessed) for years, which is also good. Just avoid table salt like the plague it is! And you should not limit your salt intake when using natural salt. Use as much as you feel you need to make your food taste right. Your body knows how much is needed. If it tastes too...
  13. Ursa Major
    Ali, those recommendations about water have been proven to be untrue. You can actually drink too much and thin out your electrolytes as a result, which can cause death due to swelling of the brain. Open Original Shared Link Open Original Shared Link Open Original Shared Link Open Original Shared Link Incidentally, my sodium level was measured...
  14. Ursa Major
    Your daughter sounds like one of my grandsons. He is a twin, and both of them weighed over seven pounds when born (their combined weight was exactly 15 lb). But at four years of age he was so skinny you could count his ribs. He NEVER had a solid bowel movement in his life until until he went gluten-free. He was extremely emotional and moody. If he got...
  15. Ursa Major
    Scotty, you're right, you will have to experiment. As Krispin in the Lectin site says, you may be able to eat some lectins after a year off them. You need to test that. I find I can tolerate limited amounts of rice now. But everything else is still no good. The same goes for the salicylates. You can be sure that Aspirin is a no-no. Oranges are bad, but...
  16. Ursa Major
    Yes, you understand correctly. You wear those bracelets the whole time you are actually moving. But if you don't take them off soon after you stop moving, they will make you sick, strangely. They aren't cheap (I've seen price tags from $14.95 to $19.95, which really is outrageous), but ultimately worth it. You find them in pharmacies, and they sell them...
  17. Ursa Major
    I was told when pregnant with my first child (29 years ago) to lay off salt because of extremely swollen ankles. Now I believe that it wasn't the salt at all that was the problem. If you don't get enough salt your body can't function properly, as it is essential to life. Now, TABLE salt is NOT healthy, and that is of course what is in processed foods....
  18. Ursa Major
    Wow, what an amazing little girl! You certainly have a reason to be proud of her. How disappointing that they had ice cream in honor of her, and she couldn't have it herself! That is very insensitive of her PE teacher. Good thing her regular teacher is there to help her out.
  19. Ursa Major
    You would do better to decide to become a 'sit down person' for all meals and skipping the buffet. The chances of cc are too great with buffets. What I did is first of all send them an e-mail for starters a month ahead of the cruise, making them aware of my issues. Then, soon after boarding, I talked to the maitre'd. He made sure that every night after...
  20. Ursa Major
    I get incredibly sick with motion sickness sometimes, but I have NEVER thrown up because of it (sometimes I wished I would, to feel better). It is much better when driving. But if it is a drive that is more than three hours, I will still arrive feeling groggy and feel that way for up to two days. As a passenger (always in the front seat, I need to be able...
  21. Ursa Major
    As Stacie already said, both blood tests and biopsies are extremely unreliable in young children under six and yield many false negatives. Your daughter has the classical celiac disease symptoms for toddlers. With your family history you might want to put your whole family on the gluten-free diet to see what happens. Most doctors, including GIs (who are...
  22. Ursa Major
    Just be aware that the Codex Alimentarius allows food with up to 200 parts per million of gluten to still be declared gluten-free. When of course in fact, they really aren't 100% gluten-free, and some people who are extremely gluten intolerant will react to those foods. They declare wheat starch and wheat germ oil to be gluten-free, but those make many...
  23. Ursa Major
    You are right, every single symptom your son has could be caused by gluten. Including the mood swings, depression and tooth discolouration. Let him know that if indeed he has undiagnosed celiac disease, he will eventually end up with worse problems than he already has, including intestinal cancer, if he will keep eating gluten. And that on a gluten...
  24. Ursa Major
    Well, you know, being 'diagnosed' with IBS really means that your doctor doesn't have a clue what your problem is, and is too lazy and/or ignorant to find out. Your bowels are irritated by SOMETHING, and that is a symptom, and not an illness in itself! A great many of the people here were so-called diagnosed with IBS for years before finally either being...
  25. Ursa Major
    Well, Patti, since you asked, I just changed my avatar to a picture of my bowl. I am asking my husband for the tools to do more mosaic for my birthday (in May), so I can keep up this new hobby. The only issue I have with the bowl is, that I wasn't thinking when I started. I had no clue how you do mosaic before going to the course, and didn't have a plan...
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