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Latest Celiac Disease News & Research:
Everything posted by icelandgirl
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ARCHIVED Hormones, Hashi's And Celiac- How Does This All Work Together?
icelandgirl replied to icelandgirl's topic in Related Issues & Disorders
Hey again... I'm continuing to struggle with my thyroid. Sigh...I've been on the compounded med for a few weeks now and I've had a headache every day. It's so frustrating. After crying about it last night I went in this morning to get labs done...A week earlier than planned. I need to see if anything is off with the numbers. Otherwise, either my body...- 144 replies
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- hashimotos
- hormones
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ARCHIVED How Long Did It Take You To Really Feel Great?
icelandgirl replied to icelandgirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi blueshades...it's great to hear that you've had some times if feeling really well. Great motivator to stay completely gluten free right? I do think life tends to be too fast paced as well. -
The What's For Dinner Tonight Chat
icelandgirl replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
Shepherds Pie tonight...mmm...comfort food. -
ARCHIVED Am I Forgetting Anything?
icelandgirl replied to MycasMommy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Agreeing with Nicole. That IgA is so close to deficient. And with the D and iron being low too it makes me wonder. The IgG tests would be good to have done. It will be very interesting to see her thyroid stuff. From what I've read, low D and iron are fairly common in Hashis. I'm low in both and I have it. Let us know! -
ARCHIVED Celiacs And Cholesterol?
icelandgirl replied to C-Girl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
((Hugs)) It can be such a struggle! I've always had impressively low cholesterol! Lol! Probably because my body wasn't absorbing. Anyway, a few months after my celiac diagnosis I had a physical that included cholesterol. All of a sudden I had high cholesterol. What? My triglycerides were 155. Anyway...my Dr gave me a whole lecture and printout... -
ARCHIVED I Think I Might Have Hashimoto's - What Test Should I Ask For?
icelandgirl replied to HavaneseMom's topic in Related Issues & Disorders
Thanks havanesemom...totally agree on the frustration. I had a call in to my Dr about something and when the nurse called back it was quite obvious that something had been lost in the relaying of messages. Argh! I hope you have good luck getting your levels back up...any progress on getting off the ppi? -
ARCHIVED Am I Forgetting Anything?
icelandgirl replied to MycasMommy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Let us know how it goes! -
I hear you on that! I started my period a month before I turned 12 and they've always been awful...and are getting worse. I do think I'm in perimenopause and I do think that there is a hormonal component to my breakouts. Really interested to see what others say.
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I would like to know too as I get it there as well and don't like it.
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ARCHIVED Frustrated With Results
icelandgirl replied to Nessabobessa's topic in Coping with Celiac Disease
Thanks Nicole. Ugh...I've been using them to wipe the counters when my kids do have gluten. Ugh! What do you use instead? I liked it because I wasn't getting gluten on my sponge. Feel so dumb! -
ARCHIVED Frustrated With Results
icelandgirl replied to Nessabobessa's topic in Coping with Celiac Disease
That's really interesting. I hadn't thought of that. It makes me wonder...are Clorox wipes enough to clean off gluten? Or is soap and water and scrubbing needed? Thanks -
ARCHIVED Vertigo
icelandgirl replied to Steph1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It is almost gone and I'm so thankful. One thing that still seems to bring it on is large stores...done know if it's all the lights or what. I'm thinking it was something related to that cold...Some kind of swelling. Very uncomfortable. I'm so glad yours resolved! -
ARCHIVED I Think I Might Have Hashimoto's - What Test Should I Ask For?
icelandgirl replied to HavaneseMom's topic in Related Issues & Disorders
I would love to know what he recommends for the ferritin. And do keep us posted on your other thyroid stuff. Do PPIs keep you from absorbing nutrients? That stinks. I was on one for 6 weeks while treating h.Pylori. I was scared to come off because I kept hearing about a rebound effect. That didn't happen to me...but it is apparently fairly common... -
ARCHIVED I Think I Might Have Hashimoto's - What Test Should I Ask For?
icelandgirl replied to HavaneseMom's topic in Related Issues & Disorders
That's discouraging isn't it? (((Hugs))). The ferritin and D are definitely low. Did he give you an amount to take to supplement? As far as the thyroid stuff goes...The #s are within range. The free T4 is pretty low unless your reference range is really different from mine. Mine is usually around 1.35. But none of that means you do or don't have... -
ARCHIVED I Think I Might Have Hashimoto's - What Test Should I Ask For?
icelandgirl replied to HavaneseMom's topic in Related Issues & Disorders
The Dr that told me I should stop reading so much had no clue that having one AI increases your chances of getting another. He also had no idea about the connection between celiac and Hashis. He refused to fest me for Hashis. That was the day I quit. -
ARCHIVED I Think I Might Have Hashimoto's - What Test Should I Ask For?
icelandgirl replied to HavaneseMom's topic in Related Issues & Disorders
Oh I'm sorry... ((hugs)). I've had a Dr talk me out of testing before and then regretted it as soon as I walked out. Anyway...those tests will not tell you if you have Hashimotos, you need the antibody tests for that. You can even have those come back completely normal and still have Hashimotos. That happened to my mom. She finally insisted on the antibody... -
Been Glutened, And Jobless Too Long!
icelandgirl commented on MycasMommy's blog entry in Brynja's Grain Free Kitchen
Awww... (((hugs)))...hope you are feeling better. That stinks! -
ARCHIVED Favorite All Purpose Gluten Free Flour?
icelandgirl replied to icelandgirl's topic in Gluten-Free Recipes & Cooking Tips
Thanks all for your input! I decided to order Better Batter again. Creature of habit I guess. -
ARCHIVED Favorite All Purpose Gluten Free Flour?
icelandgirl posted a topic in Gluten-Free Recipes & Cooking Tips
I'm really low on flour right now and need to get some. I'm wondering what your favorite all purpose gluten free flour is. I've tried a few so far: Bob's- didn't like Pamelas- liked OK King Arthur- really liked for pancakes...cookies not as much Better Batter- my overall favorite so far I've been thinking about trying gfJules flour. Or I may just... -
ARCHIVED How Long Did It Take You To Really Feel Great?
icelandgirl replied to icelandgirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I know! I'm amazed when a Dr says it looks fine when 1 point down it would be too low. It's tough. I really hate going to Dr's. I have such a mistrust of them and going to an appointment is very anxiety producing for me. I have to do serious deep breathing in the waiting room preparing to go in. So when my Dr says your ferritin looks good...instead of... -
The What's For Dinner Tonight Chat
icelandgirl replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
Crockpot maple dijon chicken thighs and drumsticks, risotto and a veggie...not sure which veggie sounds good to go with yet. Hmmm... -
ARCHIVED Is It Time For Yet Another Gastroenterologist?
icelandgirl replied to C-Girl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
How very frustrating! I'm so sorry you are dealing with this (((hugs))). In my opinion you deserve a better level of care. A toilet bowl full of blood to me is quite concerning. Unfortunately, it does seem like a lot of Dr's don't care enough. -
ARCHIVED How Long Did It Take You To Really Feel Great?
icelandgirl replied to icelandgirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Oh my goodness the setbacks can be hard! For me, the emotional part is the worst. But I'm an emotional person so it is to be expected. How did you figure out your egg intolerance? I'm taking ferrous gluconate on the suggestion of another celiac friend. It's supposed to be easy on the GI system and so far have had no issues. I did put in a request... -
ARCHIVED Ronzoni gluten-free Pasta
icelandgirl replied to bartfull's topic in Gluten-Free Foods, Products, Shopping & Medications
I've been using this too. I like it. And the price is better than a lot of other ones too. -
ARCHIVED I Think I Might Have Hashimoto's - What Test Should I Ask For?
icelandgirl replied to HavaneseMom's topic in Related Issues & Disorders
You know more than most Dr's. Lol My Dr told me that same thing...that I needed to read less. I walked out of his office, sat in my car and cried and switched Dr's.