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beth01

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by beth01

  1. beth01
    Fibromyalgia it is. At least it's an answer.
  2. beth01
    Thank you Sweetsailing. When I looked on their website it didn't state that any of their GI docs had interests in celiac so I was wondering
  3. beth01
    SMRI, can I ask you who you see in Rochester? I have been up there to see some doctors but I was there for cardiothoracic surgery and pulmonology.
  4. beth01
    It's not uncommon to see increased inter-epithelial lymphocytes on an endoscopic biopsy, just ask all us celiacs who have had them listed on their pathology reports. But they're also seen in other processes too.
  5. beth01
    My bad, it's lactose free. Had to go look at the container. Sorry to get your hopes up
  6. beth01
    Breyer's makes a good dairy free ice cream so I haven't had a problem with that, and I have been substituting almond milk in anything that calls for milk without a problem. It's the cheese that gets me (anyone can chime in with a good cheese substitute ). I am going to put my medical file under my pillow tonight and hope the diagnosis fairy visits me...
  7. beth01
    Thanks Jebby. I am around the Lacrosse area and am seen at the Mayo here but not by someone at the Rochester clinic. I am going to do some research about their GI docs and see if I can't go to Rochester if they have someone that specializes in celiac. Otherwise I am going to go to Chicago.
  8. beth01
    What Ruth and Nicole said ^^^. If you have a doctor that insists on getting an endo and biopsy with results like yours, get a different doctor. We know you have celiac, you now know you have celiac, another couple thousand dollar test isn't going to change any of it. Read the newbie thread under the "coping" section and learn about cross contamination...
  9. beth01
    Some of the frozen dinners are in oven safe pans
  10. beth01
    Thank you Stephanie.
  11. beth01
    I have never seen that in the stores around here Ruth, I will have to do some more hunting. There are three grocery stores in this area and a Food Co-op, I will probably have better luck with co-op. Thank you.
  12. beth01
    Bekka - you pretty much have to go in and give them a list of exactly what tests need to be run. I am not sure where you are in Wisconsin, but the doctors in my area are all pretty much clueless about Celiac or so it seems to me. I have been thinking about making an appointment at the Chicago Celiac Center to see what they think is going on with me besides...
  13. beth01
    I know how it goes with the insurance, I am still paying deductibles from years ago that I had to put on a credit card or be turned to collections for, I could never get one year paid before the next year started. I love how they make you pay 10% and nothing less is good enough. My ex-husband made me take all that debt when we divorced too "they aren't...
  14. beth01
    You would need a Trasgluminase IgG (tTg testing), the endomysial (EMA) IgA, and I am not sure just which DGP (Gliadin) they ran, either the IgA or the IgG but you would need the one they didn't run, you didn't have any AGA testing done. Without eating gluten though the tests are worthless as would an EGD with biopsy.
  15. beth01
    If I find that damn button I will share it with the world lol! The last two and half weeks have been very hard on me. I have left the house only twice and barely made it home from the store last night without some rather embarrassing results. I feel good today but I haven't eaten in two days. I looked for some shakes to try and maybe supplement the lack...
  16. beth01
    Nicole listed the tests above, I would ask for those that are missing. Are you still eating gluten or where you eating gluten when the testing was done? You need to be eating gluten for up to 12 weeks before blood testing and endoscopy. Also find out exactly what gene testing was done.
  17. beth01
    Hopefully you are on the road to recovery and won't have to deal with this again. I myself am looking for the damn reset button on my body and can't find it. If you find yours will you let me know where it is located at?
  18. beth01
    The MCHC, MCV and MCH are all calculations based on your hemoglobin and hematocrit results. They are more of an indication of the size, shape and color of the red cells when looked at under a microscope. Like SMRI said, a 0.1 under the normal is nothing to bat an eye at.
  19. beth01
    The symptoms sound a lot like celiac, but with the gene testing being negative it is highly unlikely. I don't know if that is all the gene testing that is available, I don't know much about them but I am sure that someone else does on here and hopefully they comment. Maybe it's NCGI. With what seems to be a bunch of food intolerances I would maybe start...
  20. beth01
    Maybe try frozen or contained dinners, lunches or breakfast meals. Use plastic spoons and forks, and they almost always are covered in plastic for microwaving. That way everything can be thrown away and is mostly contained. Not very healthy for those eating them but a lot safer for you. I have been letting my BF have noodle bowls like that and I haven...
  21. beth01
    I am new to this whole celiac thing and my daughter was just diagnosed at the end of this last year. Can someone explain to me what 504 means and if I should worry about not having one and needing one? My daughter is going into 6th grade next year and we send all food from home for her. I guess I never thought much past that. She doesn't have any digestive...
  22. beth01
    Thank you, I will try that.
  23. beth01
    I am glad you guys caught that, this brain fog is killing me!
  24. beth01
    Sorry Karen, I would have posted the link but for some reason I can't quote or post links on here. Been really driving me nuts lol
  25. beth01
    This is what frustrates me most about this disease... unless you are seen by a specialist, someone who really knows celiac disease, you are a science experiment for the doctors. They really have no clue. If I have a problem now and need to seek professional care, I research my problem well first so I have some clue of what is going on and know I am not getting...
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