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beth01

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Everything posted by beth01

  1. beth01
    Not to sound pessimistic, but your first post here on the forum is to advertise products? Thanks for the Costco commercial.
  2. beth01
    Not all doctors know which tests to order, a lot of doctors in my area are only ordering the tTg IgA and total IgA. Don't assume that the doctors are going to order a whole celiac panel.
  3. beth01
    I have had neurological symptoms since I was 7. When I got older, my migraines got pretty severe. I have had about 4 "migraines" in my life that have lead to speech impairment and numbness on one side of my body, one episode lasting more than 12 hours of not being able to speak. I was never diagnosed as having TIA's but I am starting to wonder. The doctors...
  4. beth01
    It really varies from person to person. The first thing to start for me is the horrible pain followed by nausea/vomiting. For the pain I take hot baths or use a heating pad, I luvz me a good heating pad. I take Pepto to help with the burning feeling and a anti-nausea med for the obvious. With your vomiting issues you should be able to get a prescription...
  5. beth01
    I agree with what everyone has suggested, I am just going to elaborate a little for you. The dairy - if you had a biopsy with an endoscopy that showed any damage to the villi in your small intestine, hold off on the dairy for now. We secrete the enzyme to digest dairy on the tips of our villi. In celiac those villi can become blunted which in turn means...
  6. beth01
    Ok. I will start with the easiest, the platelet count. Your platelet count is low, but it's not that low. A number of factors could cause a platelet count of 124,000. One would be that they didn't properly mix the vial of blood causing improper mixing of the anticoagulant ( EDTA) in the tube which would cause the platelets to clump and cause an inaccurate...
  7. beth01
    I like you have more constipation than diarrhea. I have to take Miralax and a stool softener twice a day to stay regular now and before the gluten free diet it was impossible to stay regular. I thought pooping once a week was normal, the only normal I ever had and didn't know any different. They are developing new testing that would shorten a gluten...
  8. beth01
    Sorry for being nosy but I used to be a lab tech before I got really sick and the scientist in me is curious. I am not trying to freak you out, but what testing have they done since they found out that your B12 level is twice the normal limit? I noticed that they did a 24 hour urine for tumor markers, have they also done a bone marrow biopsy? A few...
  9. beth01
    Illnesses caused by Shiga toxin are acute not chronic, it wouldn't explain the year long not feeling well. This would be something you have picked up recently. Treatment for most is just secondary: hydration and anti-diarrheal meds. Watch out for bloody diarrhea or urine as that could be a symptoms of HUS ( hemolytic uremic syndrome). If you still aren...
  10. beth01
    Day 5 of feeling like poo here, my couch is my best friend. Debating if I want to actually brave going to the doctor or suck it up some more and see if it gets better on it's own. I am just worried I am heading to a bout of diverticulitis right now.
  11. beth01
    Or check out eosinophilic gastroenteritis, they thought that might be my problem but have since ruled it out.
  12. beth01
    The eosinophils seen in the biopsy would point towards an allergic response. You might want to look into allergy testing. I am assuming you had a CBC ( complete blood count) since you know your platelets are low, was your eosinophil count on your differential normal?
  13. beth01
    Some doctors won't diagnosis without the biopsy. If you don't need an "official" diagnosis, it isn't necessary. You don't need a prescription to eat gluten free if you think that is your problem. Some people need that report that gives them a definitive diagnosis in writing that states they have Celiac, it's a denial thing. Some need it for school reasons...
  14. beth01
    My celiac diagnosis at 37 led to my daughter being diagnosed at age 11 so she hopefully won't have to go through all the crap I have been through.
  15. beth01
    If you aren't going to go completely gluten free, you will need two of some things. A toaster is a big one, do not share them. Some people get different colored appliances to help keep them separate. You will need to get rid of wooden spoons and cutting boards. Some people get rid of their pots and pans, if they are unscratched that shouldn't matter,...
  16. beth01
    I had a mass the size of a orange in my mediastinum that I had removed in December of 2010. It was a mass of lymph cells, all benign. At the time the doctors really had no clue what caused it. After my celiac diagnosis my doctor and I were talking and he said it might of had to do with the fact that the lymphatic system releases lymph cells to counter...
  17. beth01
    Hospitals in general don't know a damn thing about Celiac. When I had my appendix out it was a Friday evening and I got back to my room at 7:30 p.m. starving, I hadn't eaten in two days. The place to order food from was closed so I asked a nurse if they had anything for me to eat. They have cans of soup and sandwiches, neither of which I could eat. The...
  18. beth01

    ARCHIVED Extra Skin

    beth01 replied to beth01's topic in Related Issues & Disorders

    I wonder what "certain circumstances" are? I have already had a breast reduction so I technically have a plastic surgeon. Thank you.
  19. beth01
    I am not trying to gain weight ( I just lost a ton ), just trying to quit losing it so damn fast. It has slowed in the last few weeks, not nearly as drastic as it was but I just bought a pair of size 8 jeans two weeks ago and they are already loose on me. I know, I know, I should be happy I lost weight when some people try their hardest to lose it and my...
  20. beth01

    ARCHIVED Extra Skin

    beth01 posted a topic in Related Issues & Disorders

    I was wondering if anyone else has lost massive amounts of weight ( I have lost >150 pounds) pre-diagnosis and wondering how you deal with all the extra flabby skin? I know weight lifting will help with my arms, but my legs and belly have some hanging skin and stretch marks. Any help would be appreciated. Thanks
  21. beth01
    I have noticed since my diagnosis ( three months ago today) that is seems like every food bothers me at some point in time. I can eat corn today and feel fine but I eat corn tomorrow and get sick. Right now our bellies are so sore and inflamed from all the gluten damage, it's going to take time. I was all worried that I have a ton of food intolerances...
  22. beth01
    I would also suggest eating only whole foods for a while. If your BF hasn't had an endoscopy and doesn't know if his intestines are damaged, they take a while to heal and complex foods can cause some stomach discomfort. I have noticed that if I eat a wide variety of foods in a day, I feel sick. I have been trying to limit myself to three ingredients a...
  23. beth01
    Look up information on doing an elimination diet. Basically you start a diet with a "safe" food list, basic bland foods that aren't bothersome and eat them for three days and nothing else. Then you add one new food every three days, eating said food three days in a row ( the rawest form if possible), keeping a journal of all foods and drink and any symptoms...
  24. beth01
    Sorry to hear that your BF is so sick. I would check to make sure he isn't some how getting cross contamination from some where. Gluten is everywhere even where you don't expect it. It can be in hair products, toothpaste, mouth wash, makeup, pet food. Like Colleen said, read the newbie thread and learn about cross contamination. Your boyfriend...
  25. beth01
    I am going to buy two of the today, thank you so very much for sharing that. If I could kiss you I would
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