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beth01

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by beth01

  1. beth01
    I would think that given the fact that the tTg IgA has a higher sensitivity and specificity that it would be the first to show a change if repeated cc's were occurring. Also, the half life of the gliadin antibodies is 120 days. So from 10/18 to 1/31 both gliadin levels went down by more then half in less than four months but eight months after that, they...
  2. beth01
    Maybe go shopping with your boyfriend's mother. Maybe if she saw the things that she normally buys that are gluten free, she wouldn't think you are trying to get her whole family on a "fad" diet. I have had a problem with this with my parents when my children go and stay there. My daughter has only gotten sick once, and my father was adamant that he...
  3. beth01
    I second what Karen said. I worked in a creamery and we made our recipe of yogurt and packaged it for other companies. Our product, their packaging. Happens all the time.
  4. beth01
    Another thing, if you are having problems keeping anything down and worry about losing the anti nausea meds. the do make phenegren suppositories. They work wonders.
  5. beth01
    Maybe you might want to look into get a few small things you can cook with in your room. Is there a mini fridge? I know they sell smaller skillets and grills, so maybe that will be an option. Bring your toaster from home. Just an Idea. It isn't bad to "assume" you have an autoimmune disease, you have one. If you feel better on the gluten free diet...
  6. beth01
    I don't mean any of what I'm to say to be mean, so please don't take it that way. For one, you aren't "imposing a life of limited options for your husband". This is a new way of life for you, the ONLY way of life for you. I don't have a shared household, my daughter and I are both celiacs, so I can't give you much advise as to that one, but my boyfriend...
  7. beth01
    No need to be sorry for the rant, sometimes this is the most frustrating disease ever. I don't make a habit of going out to eat, only been out twice in five months. If you are going to go out to eat, I would do a lot of research first. Call ahead to see if they can accommodate you. You are going to find a lot of people frustrating. They just don...
  8. beth01
    If you are trying to have a baby, go gluten free. Having been an undiagnosed celiac during both my pregnancies, I wish I could have.
  9. beth01
    The French fries themselves might be gluten free, but unless they are using dedicated fryers, you are getting glutened. You might have only ordered eggs, but did they use proper precautions to make sure they were cooking in a clean area? not using contaminated butter? One happens now is up to you. You can either do the gluten challenge, which sounds...
  10. beth01
    I would say you are at a higher risk for celiac being that you have a brother with it. Did you have a full celiac panel, or just the tTg IgA? If your doctor is giving you the run around, get a different doctor. I would especially since they didn't biopsy the small bowel where celiac is going to show up, which you are worried about. You could also just...
  11. beth01
    They will both help with the nausea after the fact. When my gallbladder was bothering me, it was inflamed and no stones. I had an ultrasound for that. They took out my gallbladder that day. It seems that most of us that have gallbladder issues are more due to inactivity or inflammation. I believe there is a scan (HIDA?) or something along those lines...
  12. beth01
    I wear my new size of clothing but I always keep comfy clothes with me. Comes in handy
  13. beth01
    Look up Quease Ease if you want to stay away from the meds, they work. I use pepto and it helps or if it is really bad I fall back on an anti nausea script. Dramamine also helps with nausea but it can make you sleepy, so be careful. I second cycling lady, get your gallbladder checked out. I also had a fecal impacted appendix that I carried around for...
  14. beth01
    Isn't it a breath test?
  15. beth01
    Well, it get's better. I received a phone call this morning from a nurse that explained to me that my doctor didn't want my dose changed. "while your TSH is elevated, your FT4 is normal and he doesn't want change your dose at this time. I LOST IT. Now mind you, I was a lab tech for 16 years and have had a thyroid issue for almost 12, so I know what I want...
  16. beth01
    The reason I haven't had to wait 3-5 business days for a refill is due to a written policy that any prescription or medical concern received before 4 p.m. is addressed that day, at least a phone call to the patient for reason as to why it hasn't been addressed. I don't expect it to be the norm anywhere else, but where I am seen. It's THEIR policy, something...
  17. beth01
    Thanks you guys. I finally did get my meds. I wouldn't be so upset but it seems like things like this keep happening. They let me walk around with chronic appendicitis for almost five months and I had to force an ER doc to admit me two days before I had the surgery. She was going to send me home. It's like since we don't fit the "normal" way disease processes...
  18. beth01
    I have never had to wait three to five days for a refill because it's supposed to be taken care of the same business day as long as it's received before 4, even says so on their voice mail message - " any prescription or health concerns will be addressed the same day as long as they are received before 4 pm, if this an emergency please dial 911". I'm seen...
  19. beth01
    I finally called and discussed my total lack of quality care with someone at the hospital and filed a complaint. I had my labs drawn Monday and looked at my TSH on Monday afternoon and noticed it was elevated, over the normal range. I called to ask about upping my dosage to 200 mcg from 150 and no one called me back. I was on the 200 but my TSH was...
  20. beth01
    way too many.
  21. beth01
    I am new to this but it seems that healing is different for everyone. Some heal faster than others do but some also had a lot more damage to begin with so they have a lot more healing to do. Some also get better for a bit and then backslide, kind of a "it gets worse before it gets better" thing. Are you getting proper follow up care? Are they checking...
  22. beth01
    I would assume that your antibody tests would have been positive had you been eating gluten. I would wait and see what the GI recommends. Maybe they will want the gluten challenge or maybe they will say you are a celiac and quit the gluten for good, cc and all. Good luck and welcome to the board.
  23. beth01
    I would give advise and go from there, whether it's taken or not is for another day lol
  24. beth01
    I had made some chicken and gravy last month and had some in the freezer and had it for dinner last night. There must have been soy in the concentrated stock I used since I didn't have enough of my own. I was making the kids lunch and fell asleep standing in my kitchen next to the stove. Damn food.
  25. beth01
    I was having insomnia really bad before but that has gotten so much better and I can sleep again. But now I am on the opposite extreme
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