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Jmg

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Jmg

  1. Jmg
    Welcome It will doubtless be a big shock for your niece and family, but the good thing about celiac is that once gluten is eliminated from the diet recovery can be dramatic. I hope she's soon feeling better and the hospital visits become a thing of the past. The best book I've read following a recommendation here is: Real life with celiac disease...
  2. Jmg
    Thanks for the explanation I think you were ill served by that diagnosis. You may find this interesting: Open Original Shared Link I think in regard to giving up gluten that indulging now and then actually makes it harder, a bit like the smoker who has the occasional one. Not so much because it renews the addiction but because you're thinking about...
  3. Jmg
    One of the strangest things I found after going gluten free was that hangovers were a breeze! I used to have horrendous hangovers but could pour cider down all night and the next day was a walk in the park! Cyrex labs in the States were offering testing, you may be able to get a referral if you're willing to pay? It was something I considered when...
  4. Jmg
    Sorry you're feeling so bad. I know coming off anti depressants can be unpleasant. Can you take any steps to ease the process? Maybe surround yourself with some safe food that will settle any sudden hunger pangs? Also think about things to distract you, some good movies, tv or books perhaps? Remember it will pass
  5. Jmg
    Hi! I confess I don't understand this passage: Were you actually diagnosed with Celiac? If so, why does your GI doubt his own diagnosis? If you have celiac you should've been made aware of the consequences of occasional gluten exposure: “Death was most significantly affected by diagnostic delay, pattern of presentation, and adherence to the G...
  6. Jmg
    I will never knowingly ingest one particle of gluten from this point on till I shuffle off this mortal coil. I know that NCGS does not come with the intestinal issues that many here suffer and I'm consequently reluctant to say too much, because others here have it worse, but I wouldn't want you to underestimate just how serious it can be. All of those...
  7. Jmg
    Ms O, in addition to the good advice above, try writing down your symptoms and any observations on reactions to food etc in bullet point form prior to seeing your doctor. It's easy to forget things when you're in there and even more so if you've got any brain fog issues Stay on gluten, don't be afraid to be assertive in asking the doctor to commission...
  8. Jmg
    The following is purely anecdotal MrsP and note I tested negative for celiac, but I had an appendectomy at 11 following severe right sided stomach pain in the area where the appendix is located. The surgeon visited me next morning with a hearty laugh - here's the boy who had a perfectly healthy appendix'. He told me the pain had probably been a 'swollen...
  9. Jmg
    Most people on this forum have celiac disease. This is an immune mediated disorder: Open Original Shared Link Please note lifelong and strict adherence and the absence of the word optional Some people, such as myself, have what's currently termed 'Non celiac gluten sensitivity' - this is less well understood and is to some extent a diagnosis...
  10. Jmg
    I think you have celiac and your doctor rather than the specialist is right. The combination of the blood test, DH and the positive reaction to the diet would be enough corroboration for many doctors without a further challenge and biopsy. On this point: The biopsy shouldn't require surgery. It's done as part of the endoscopy. The endoscope...
  11. Jmg
    As someone who tested negative for celiac but reacts to microscopic quantities of gluten I would never knowingly ingest any gluten but you're by no means the only person who feels this way. I know a diagnosed celiac for example who drinks lager because 'my stomach has healed now'. If you're celiac of course then the science is very much against you and him...
  12. Jmg
    There isn't really a formal diagnosis, because there's not yet a test for it, although that may soon change, there's some Open Original Shared Link It's yet to reach the mainstream medical community however. Of course that won't stop Open Original Shared Link. Your test at present would be to go through celiac testing process. If that's negative but...
  13. Jmg
    Hi Tony and welcome You may find some of this helpful: Especially the part about the different ways celiac can manifest. Some of which has some parallels with your experience as above, but others which may indicate maybe other issues. As it says there, no-one here can diagnose you and the best advice is probably to get to a dr and request...
  14. Jmg

    ARCHIVED Defeated

    Jmg replied to Galixie's topic in Coping with Celiac Disease

    I feel your pain. Nothing more annoying than seeing wheat having made its way into something which should be a safe bet. At least you spotted it in time. I understand that you may not have time for cooking day to day but I'll second the suggestion above about cooking a large amount and freezing individual portions. A slow cooker is also a great idea...
  15. Jmg
    Hi Ricardo and welcome to the forum The good news is that there's a lot of gluten free food available in UK and I think there may be even more in Dublin as there's a lot of celiacs in Ireland. Every major supermarket - Asda, Sainsburys, Tesco and Morrison have a 'Free From' section where you can find gluten free bread, biscuits, crackers etc. In...
  16. Jmg
    There's some evidence that smoking may prevent or delay the onset of celiac: https://www.celiac.com/articles/815/1/Cigarette-Exposure-Protects-Against-Adult-Celiac-Disease/Page1.html I've read a few accounts on here of people who worsened after they kicked the smoking habit. Why that is appears to be a mystery.
  17. Jmg
    Did you see the thread elsewhere on pie crust Ennis? I think someone was after the definitive gluten-free recipe?
  18. Jmg
    Only certain areas still do this and I think the practice will soon be at an end nationally: Open Original Shared Link
  19. Jmg
    I think this is an excellent idea. I would wait until the result of the fresh bloods are in, just in case they prompt the doctors to resume the diagnostic process. If not, you have nothing to lose, and potentially a great deal to gain from giving the gluten free diet a proper go. I have a lot in common with you, both in symptoms, experiences within...
  20. Jmg

    ARCHIVED Dh and diagnosis

    Jmg replied to Shollie's topic in Dermatitis Herpetiformis

    Hi Shollie and welcome I can't give you any specific answers on DH, there are others here with more experience and I'm sure they'll answer soon. I guess the more specific you can be about the rash the better, eg was it symettrical? The other thing which occurred to me when I read your post was shingles, that started for me with the sore...
  21. Jmg

    ARCHIVED New Doctor - Austin Texas

    Jmg replied to TexasJen's topic in Doctors

    You may already have seen this: but if not there's lots of good advice in there. Best of luck with your recovery!
  22. Jmg
    When on desktop highlight the text and within a second or so the quote this button above, lot easier. Mobile is a bit fiddlier granted. However your point is moot, it's the choice of passage I was referring to and maybe it was subconscious but my point remains. You didn't address the positive in your own comments afterwards either. Ok: As...
  23. Jmg

    ARCHIVED New Doctor - Austin Texas

    Jmg replied to TexasJen's topic in Doctors

    Are you quite sure you need one Jen? Your doctor already sounds better than the majority I've encountered. He knew enough about you to detect celiac from anemia for one thing. I don't think there's a great deal of a role for a doctor as you start the gluten-free diet. Checking levels after a year to see how your going is pretty standard. Maybe a referral...
  24. Jmg
    There's apps for travelling with celiac which will help in some countries. A bit of pre trip research should throw up some options in cities, maybe small towns may be a little trickier. Most supermarkets in Western Europe should have an option. If you're travelling you could print out / save on your phone some of these in case you need to explain the...
  25. Jmg
    Everyone differs will probably be the common theme in answers to this. It took about 3 days for me to notice a big difference in my mood when I first excluded gluten from my diet. I kept a food diary which allowed me to track changes and that may be something you want to try? Other changes were more gradual and many months later I was noticing things which...
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