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Jmg

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Jmg

  1. Welcome Betty Yes! I could pretty much have written your post myself. I know exactly how you feel and how little the thought of going back on gluten appeals now you're feeling so much better. You have a tough decision to take. There's a forum faq stickied above and I tried to collect some answers and useful links awhile ago in this thread: ...
  2. Hi Melinda and welcome It would be a good idea for you to repost this in a new thread, that will make it easier for people to see your post and also make it easier for Lakme to see responses to his post also. You could ask a moderator to move this post or just repost it and ask them to delete it. I won't reply further now except to say that from...
  3. I used to love the doughnuts filled with custard. Hey who am I kidding, I loved the ones with jam and the iced ones and the ones on their own too but yeah, I could manage a custard doughnut... Still given I polished off the gateau the other day and had a lovely pannacotta the day before its probably just as well that I can't get my hands on one!
  4. No and now I miss them too thanks for sharing Tesco used to: https://www.tesco.com/groceries/product/details/?id=290037330 but I dont remember seeing them.
  5. Good to hear this. Keep looking after yourself, eating well and get that last 30% or more back next!
  6. If you're anything like me you're probably stressing yourself out hyper analysing your current condition. Take a step back and try to relax. Accept that recovery won't be a straightforward upward curve, but that even when gluten free there will be good days and less good days. Drink plenty of water, that will help reduce snack urges. Also try and eat...
  7. Yeah the toblerone cake is nice too. Now, Fanfare.... https://www.tesco.com/groceries/product/details/?id=295327675 I was super excited to see this It tasted good too. Super indulgent and very nice to know there's another option for a frozen dessert to go alongside the cheesecake. Well done Tesco...
  8. Two fantastic cities, have loved my time in each. Sadly the hash brownies in Amsterdam are definitely gluten filled and I suppose the cones of chips with mayo are a risk depending on what else they fry in them so it'll have to be a night in the coffee shops Len I think Pudim flan should be gluten free, Portuguese caramel pudding. There are some fantastic...
  9. As a beer substitute Cider should be fine. You're ok with strongbow which is one of the most readily available. Magners is another option, that's typically in bottles. Kopparberg also ok. Be careful however that there are some products which look like cider but are actually a beer. Either find a mainstream brand you can stomach and stick to it or ask and...
  10. As I understood it they help break down gluten in the gut. We were discussing them here very recently I can't find the thread where it was discussed however. I wouldn't use them to actively eat something with gluten, but I think if I were travelling I'd like to pack something like this to try and reduce the chances of cross contamination. Even if they only...
  11. Yes I made it Welcome Lakme, you've found a great community and resource and I'm sure myself and Ennis won't be the only ones that recognise elements of our own experiences in your account. In addition to the links Ennis sent you above and the stickied forum faq, I tried putting down some info that may be useful to people just realising they may have...
  12. Funnily enough we were debating a new product recently called GliadinX which may be of interest: Open Original Shared Link I don't think as a diagnosed celiac it would be wise to actively ingest gluten filled foods, I wouldn't anyway, but maybe it would help you in situations where you fear some cross contamination?
  13. Len I wrote this some time ago for someone visiting the UK, hopefully it may be of some use: Even if you're not going to the UK there are other travel cards you can print out. All EU countries should be following the regulations on food packaging and a lot of the gluten free foods that show up in UK supermarkets originate on mainland Europe so even...
  14. The follow up report to the colonoscopy can't diagnose, that would come from the dr/consultant. They're just flagging the high ttg and possible celiac to you and your Drs. Good practice all round
  15. Please don't apologise, one of the nice things about this community is how many people are happy to share their experiences. Everyone here will have been in the same situation as you and remembers how stressful the search for answers and relief from symptoms can be. So ask away! You are much better asking here than on some of the blogs and sites which are...
  16. You would be amazed at how many different things contain gluten! Although don't worry, there are plenty of UK sweets and chocolates you can still have should you go gluten free For now, enjoy milky way, mars or anything else you like. Hell, go and 'exterminate' the dessert tray at your local bakery! It's important to stay on gluten until the doctor...
  17. I didn't tolerate quinoa well last time I had it: http://www.livestrong.com/article/444005-reactions-to-quinoa/
  18. There are two contrasting approaches here and I understand where your roommates mother and nurse are coming from. The TTG is considered the most accurate of the serological tests: Open Original Shared Link It's also cheaper to run. However, there are some people that test negative on that test but who do show up on one of the others. That's why the...
  19. As others have said as Celiac affects the auto immune system it can present in a lot of different ways or none, here's a short summary: Open Original Shared Link and here's a much longer list of associated conditions: Open Original Shared Link It would be easier to list things that it can't affect! Again, once testing is complete, even if negative...
  20. Welcome Sarah! I hope you find this site as useful and supportive as I have. I was still finding improvements many months into the gluten free diet. As others have said the neuro symptoms seemed to take a little longer, although the fog lifted quickly. I get occasional twinges which I put down to possible cross contamination.At one month you probably...
  21. Hi and welcome I also have the orthostatic hypotension, although it's much better now I've removed gluten from my diet. I had the endoscopy without anaesthesia simply because it meant I could drive myself too and from the hospital. There was a throat spray to numb the throat and that was it. I must be honest and say that I found myself gagging...
  22. Hi and welcome You may be better starting a new topic as people may ignore an older thread resurfacing. I know how excited you will be to have potentially found some answers and you will be tempted to go gluten free, but to find out if you've got celiac you need to keep eating it. The site has an faq here: https://www.celiac.com/gluten-free/announcement...
  23. Hi and welcome You've done what many of us did, stopped eating gluten to try and address symptoms. Unfortunately to find out if you've got celiac you actually need to keep eating it. No-one here can diagnose you, but it does sound as if you have an issue with gluten. Many doctors don't know much about this, mine didn't either! The site has an...
  24. Because it offers the possibility of answers, rather than uncertainty. You want relief for her now and who couldn't understand that, but the diagnosis is as much for her when she's 20, 30, 40 or older. At this moment your daughter still has the option of a methodical, scientific, confirmation or exclusion of celiac disease. Once she progresses on the...
  25. If he ever needed an excuse for a burger, pizza, dessert or beer, now is the time! Given he doesn't experience classic celiac symptoms he could keep a food diary, just note what he eats, when and how he feels, leading up to the endoscopy, so that if he does then go gluten free that he can track any changes afterwards. the reason for this is that if he...
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