Jump to content

Jmg

Advanced Members
 View Profile  See their activity

  • Posts

    1,182

  • Joined

  • Last visited

  • Days Won

    33

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Jmg

  1. Jmg
    I did a gluten challenge for my endoscopy and requested a second blood test after my follow up with the consultant. I never did see those results but my GP said no celiac was indicated: Which left me gluten free for life, that wasn't an option after the challenge, but with a less satisfactory diagnosis, one by omission rather than the definitive 'you...
  2. Jmg
    Hello and welcome Reading your post it looks like each of your results were within the 'normal' range. There doesn't appear to be mention of a total serum IGA to make sure you have enough of this to begin with to make the test accurate however - but there are others here who are more experienced who may be able to tell you more. There are some other...
  3. Jmg
    There's a great post by Tarnalberry in that thread.
  4. Jmg
    Me too. I had numerous chest x rays as I couldnt shake colds off and they always progressed on to my chest. Barely happens since my diet change
  5. Jmg
    I have been thinking that I need to change my diet and this article has only confirmed it. I eat quite a lot of gluten-free 'treats' at the moment, cakes, chocolate etc. I rationalise by the fact I dont drink or smoke and have a restricted choice so I 'deserve' a break, but I guess my choices are leading in a bad direction. Maybe I'll have a go at making...
  6. Jmg
    Hi Jennifer and welcome CyclingLady has given you some good advice above. You want certainty and that's entirely understandable. Go back to your doctors and explain that you need to know a little more and hopefully they will engage positively with you. If they don't, then do pursue a second opinion. I just wanted to address your last paragraph...
  7. Jmg
    Hello Anonymous, and if nobody has said as much yet, welcome Don't worry (difficult to do when it can cause anxiety :P) it's very early days and you have a lot of healing to come. If you've not already seen it there's advice and further info here: It gets easier over time as checking becomes routine, you know your 'safe' products...
  8. Jmg
    Hello again Well first thing is the - Open Original Shared Link and this is something you have to follow up with your doctors as you know. But it's helpful sometimes to get another perspective so here's this layman see's from outside. What I have seen from the various results posted here is that people's numbers vary wildly and, just as important...
  9. Jmg
    Hi VB Thats sounds like a good plan. Would it help to know that a frustrating experience in seeking diagnosis isn't unusual With your IGG result I'm sure a part of you is still wondering if they are right to exclude celiac. I know just how you feel as I too had a negative biopsy, but by then a gluten challenge had already established how severely...
  10. Jmg
    Hi Could a mod please move this post: and my reply below to a new thread when they get a chance? Thanks! Matt
  11. Jmg
    Hello and welcome Firstly, don't worry about it but for ease your post (and hopefully my reply) will probably be moved to its own thread. That will make it easier for others to see it and reply and also help Galaxy's own thread here on track and making sense. The antibodies that the celiac tests look for can drop very quickly, so... maybe? Celiac...
  12. Jmg
    Hello and welcome I don't have an answer, like you I'm eating rice in processed foods as well as a side dish so I'm also wondering if I'm eating too much. If the rice is in a product like flour there's no way to tell how its prepared etc However for this: You can pre soak and rinse the rice in advance and change the way you cook it to reduce...
  13. Jmg
    Fair enough, I know exactly how you feel. It would be a good idea to keep a food journal over the next few weeks, it's something to refer to when you prepare for your GI meeting and it's really useful for tracking progress or otherwise on the diet or nailing a potential source of gluten contamination. If you're sticking with the diet for the forseeable...
  14. Jmg
    I never could get into marmite in the days of gluten past. Our antipodean friends failed to sell the delights of vegemite when I lived there either. But now, starved of variety and intrigued by the B vitamins and Iron I'm almost tempted to give this a shot. Have you tried it yet?
  15. Jmg
    Applying Occam's razor, could the diarrhea simply be related to the diet change and thus separate from the rib pain?
  16. Jmg
    Hello and welcome Welcome also to the wonderful world of less than ideal medical practice... Many of us here have similar experiences to recount. The closest I've come to collapsing in the past 3 years has been due to shock when a doctor revealed they'd actually read my notes Years of TV wonder medics have skewed our vision, you come to realise that...
  17. Jmg
    Welcome Kristen If you've only just gone gluten free you may want to pause and try and get a test, otherwise you may find yourself having to undergo a gluten challenge if you want to confirm celiac. It may be worth starting a new thread and that will make it easier for others to get some more input?
  18. Jmg
    Is this any help? Open Original Shared Link
  19. Jmg
    I'm with CyclingLady, something isn't right here. Perhaps in the request that the allergist has sent? Maybe she's asked for additional tests they don't cover? The basisc celiac tests are well established and used the world over. There's nothing experimental about them. Although I don't know your system well I find it hard to imagine that there's an...
  20. Jmg
    Hi Fiona, I was you 3 years ago! I also cut gluten out myself then realised what an impact it had and went to the doctor only to be told incorrect information that may have compromised the test To save you wading through my thread, I went through a challenge and had a negative biopsy, but guess what, gluten was still the problem for me and...
  21. Jmg
    Yes it's entirely possible! Here's an explanation if you'd like to know a little more: Open Original Shared Link Sometimes other food intolerances emerge at this time but they too can be transient and disappear as you heal. Try to treat these first 6 months on the diet as a special project. Get yourself a safe, clean food prep area and utensils...
  22. Jmg
    It could also be NCGS as related by Umberto Volta in the recent Open Original Shared Link increase in IEL's was detected. I know you do your research IT but if you've not already seen it you may find this of interest: Open Original Shared Link Best wishes
  23. Jmg
    Hello and welcome Since you're only a few months into the diet I hope you don't mind me directing you to this thread: There is a lot of good advice there, much of which you're unlikely to have heard from your doctor. It would be well worth reading through to check that you're not slipping up. Have you gone through your kitchen for instance and...
  24. Jmg
    Please don't apologise! You're very welcome here and please don't be afraid to post whenever and whatever you wish. There are no foolish questions, all of us were where you are now once. There's not much data on 'how much' gluten you should eat but CyclingLadies link from the other thread has some guidance: Open Original Shared Link Sounds...
  25. Jmg
    And the people that put wheat in Walkers crips ready salted will be first against the wall... Reading the lindt section they have that ambiguity on barley malt extract from coeliac uk. That winds me up, I got ill from barley malt in cereal in part because coeliac uk were so relaxed about it. I was eating harvest morn corn flakes with barley malt because...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.