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SMRI

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Latest Celiac Disease News & Research:

Everything posted by SMRI

  1. SMRI
    I would get a copy of the exact tests they ran along with the results and lab ranges. Also, I would find another doctor. They should have run these tests first, before your scope, while you were eating gluten. A good doctor would have known that .
  2. SMRI
    In general, when a range is given, anything in that range is normal. If she were borderline where you would have to worry then the number would be more like 149 or in this case 25. This test is to see if her overall IgA level is in the normal range. Without knowing the overall IgA, you don't know if the ttIgA number is reliable. My daughter has immune...
  3. SMRI
    I figure the cleaning people might see it though .
  4. SMRI
    So, if something is just listed as artificial flavoring or natural flavorings without stating barley, wheat or rye, it's safe?
  5. SMRI
    I'm much better and I think it was the multi-vitamin I was taking that caused my issues. This link is nice, but it talks about natural flavorings....not artificial. The ingredients just say "artificial flavoring"..so those should be oK?? Remember, this is all still very new--only one month into this....
  6. SMRI
    So...one example..this should be ok to eat?? Hungry Jack Syrup does not contain ingredients derived from gluten. However, these products do not meet our established criteria for a "gluten-free" claim for one or more reasons. It is important to note that the U.S. Food and Drug Administration has not yet defined the term “gluten-free” or established rul...
  7. SMRI
    Take some Advil or similar. Suffering with joint pain just makes everything else worse. Your quality of life is deminished and walking or moving differently can cause other problems down the road.
  8. SMRI
    I'm hoping that the hotel I need to go to will allow my toaster oven due to medical necessity
  9. SMRI
    That is the part I'm trying to decipher---I can find 5 sources that say it's ok and 5 that say it's not ok--so who is right???? The comment on one company website said that there is no testing available, nor is there any standard information as to what is gluten-free but their products by their own definition are not gluten-free....um, I thought the 20 ppm...
  10. SMRI
    Well, given that every other test came back positive as well, I think the genes are right . Thanks...this clicks the last pieces of the puzzle for me!
  11. SMRI
    Ok, thanks!! Just trying to establish family history. We are pretty confident my mom probably was Celiac based on some of her symptoms and my Dad could have been--he had a lot of GERD and some other intestinal issues but was very healthy otherwise so iffy there, but did develop type 2 diabetes in his late 60's.
  12. SMRI
    What is the ruling on artificial flavors and colors. From my understanding they are all chemical in nature and can't contain gluten, but various sources on the internet flags many products with artificial flavors as containing gluten, same with artificial colors. The celiac.com "safe foods" list shows "artificial flavors" as safe but artificial colors as...
  13. SMRI
    There are frozen English Muffins at my grocery store--I can't remember the brand off hand. Have you tried them? I'm hesitant to spend $8 on them if they are awful. I used to eat English Muffins for breakfast frequently. I wonder if you can make English Muffin bread with your recipe as well?
  14. SMRI
    Thanks Nora----but for whatever reason, none of that makes send so my gluten fogged brain!! Are you saying I have 2 copies of DQ2's? Mainly I am trying to establish if I got genes from both parents.
  15. SMRI
    It would be nice if dr's ordered complete tests to give the full picture of what is going on!!! But, when all is said and done, a positive is a positive and the scope is just back up to the blood work. Now, the actual scope and biopsy is pretty easy for you--but again, not really necessary. I guess if I were your dr and got the lab results, I would have...
  16. SMRI
    Her kids are doing a gluten challenge.
  17. SMRI
    Making baked chicken, hash browns and some veges. I got bacon today but going to have it tomorrow with some french toast. We have some Udi's cinnamon raisin bread and will make the french toast with that.
  18. SMRI
    Alpha's were this...online access to tests . I asked the GI but she couldn't explain what they meant (intern). 05:01,05
  19. SMRI
    Well, I found some individual fruit cups, some individual vegetable cups ( cut green beans and corn), found some canned chicken that was gluten-free--no pouches--probably would rather have a pouch though, some single serve cups of peanut butter. I realized I don't have an extra can opener though--oops. That should get me through a few "meals". I need to...
  20. SMRI
    So does this mean I have 2 pairs of 2 ? 02:01,02:01 Serologic Equivalent: 2,2
  21. SMRI
    I just looked up the restaurants for leg 1 of my trip...not even a McDonald's in town?? They have Walmart so I guess I'll have to eat Walmart food.... I did a search for gluten-free resturants, one popped up, a pizza place. They do have a gluten-free menu, it is 3 pasta dishes and says "let us know an hour in advance if you want gluten-free pasta"....
  22. SMRI
    Well, this is less than helpful: CAN YOU PROVIDE ME WITH ALLERGEN INFORMATION FOR CAMPBELL PRODUCTS? We are committed to providing accurate and reliable ingredient statements upon which you can make your purchasing decisions. As ingredients in our products may change, we recommend that you check the label on our products for the most current and accurate...
  23. SMRI
    I'll be on the road for 8 1/2 weeks, but the first week is a lot of hotel hopping, after that I settle down some and spend weeks at a time in one place. I was going to buy some cans of chicken but my app flagged them as having gluten. I don't THINK they do but I need to check before I buy something like that....
  24. SMRI
    ohhhhh, I'll have to get some!! I had french fries for dinner---simple foods . My stomach is still funky feeling. I'm wondering if it's my multi-vitamin?? It says gluten-free but I wonder if it's just the vitamins' itself. Who knows.
  25. SMRI
    The Aldi by our old house was horrible. I haven't been to the one near us now. I'm planning on stopping tomorrow. I hope it's a better experience.
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